The 27th of March.
I woke up with abdominal pain which was terrifying. I was able to go back to sleep and wake up again without it so it was just a pretend attack. We had to go out to hospital at half eleven to get to photopheresis for twelve.
A rather dull (in a good way) session – I didn’t alarm too much and was finished by half past two. Afterwards, we popped into town so Mommy could pick up her new birthday handbag!
This evening, both Becky and Alison came over, so we had chats, but tonight I have been cold and tired. My white cell count was high today so I’m just hoping I don’t have an infection. Every day is so fucking stressful.
The 28th of March.
Woke up in pain again and this worries me. I checked my bloods from yesterday on myhealth and mu CRP was 16 which isn’t great, considering my white cell count too, but I checked back a fortnight and my CRP was 72 then, and I felt fine so we’ve just got to see what happens.
Photopheresis was a little bit lengthy today – my lines played up, the machine played up, it was all very boring, but I finally finished at about ten to three. Daddy and I were going to go and see The Winter Soldier, but we were going to be late and the Vue website was being a bastard so we postponed that until tomorrow.
James had come down as he and Becky are off to London in the morning, but she wasn’t home yet so he came here for a cup of tea and we had a chat. When Jonathan got home from school, James went to help him with the papers. Later on, he and Becky came back for some chocolate brownies made with an assortment of eggs, from mini to creme and caramel. I had one too, and they were rather tasty. I was lucky not to get a caramel one – I am not a fan.
I’m really looking forward to a big sleep tonight and no hospital tomorrow thank you.