The 9th of October.
Well I decided that I wasn’t going to do the lung function tests. We arrived and talked to Dot who is a lovely nurse and she agreed that there wasn’t much point when I can’t walk a few metres without getting breathless. I still had to go and see Dr. Thompson and he wanted me to have a chest x-ray because he’d feel silly if there was another reason for my breathlessness and we hadn’t checked. So we did that and there was indeed nothing, as usual.
I didn’t need blood which was also a handy bonus because we were expecting to be there all day, so that was a couple of hours lopped off. After photopheresis, we went into town where I bought a sparkly fisherman’s knit pullover from American Apparel, and I had a flat white from Origin.
This evening, Becky came over as we haven’t seen her all week and we talked wedding, school, and her masters, all very stressful things! In some ways, I am quite glad I don’t have a normal life, because I don’t have to worry about the future.
The 10th of October.
Today did not start off well, with the news that Emma (big sister of squidgy baby Sophie)’s brain tumour has grown, and in a few weeks they’ll be heading for Oklahoma for treatment. She’s only six years old, for fuck’s sake.
This morning I went round the corner with Mommy to get money and mint imperials for Grandma, and I got some sherbet pips. I had some apple, pea and mint soup for lunch which was interesting. Not that it was bad,but it was very sweet.
This afternoon, I started reading a Jeffery Deaver that I thought I’d already read but actually haven’t! Shocking. Oh, and Julie’s filed copy with Grazing, so that’ll be out around Christmastime, spreading the joy.