The 21st of October.
I feel like hell. It took me hours to get to sleep because I couldn’t stop coughing, and this morning it took about an hour for me to get up and dressed.
I’ve basically not moved from the armchair because everything is massively difficult. I’m not sure how I’m going to get back upstairs. My abs, ribs and back ache so much, every cough is painful. I’m quite glad I have photopheresis tomorrow so they can take samples of the cack I’m bringing up and then see if it’s a virus or something they can actually treat.
I am so tired. I need to go upstairs really early because last night it took me forever to actually get into bed.
The 22nd of October.
More coughing. I had a Zopiclone which I think was beneficial, and I’ll do it again tonight.
I had to move out of the armchair to go to hospital for photopheresis. They gave me a sample pot for anything I bring up (unfortunately nothing has come up far enough so far) but they also took bloods and a viral swab so they might show something. They showed that my haemoglobin was 8.4 though so I’ll be having a bag or two of O-neg in the morning, meaning I have to get up early tomorrow so that just fills me with joy.
Ugh I just feel like shit because I’m exhausted and all my muscles and bones ache from the coughing. And I’m not even allowed ibuprofen because I’m on steroids! And we can’t taper the steroids while I’m poorly because that’ll make the gvh kick off more!