Archives For November 2014

The 26th of November. 

A relatively more exciting day. This morning, Mommy and I went to the German market again as there were foods I wanted to get. On the way, I got a replacement Babydoll mascara from YSL, and a card for Fiona and Nick for Friday. 

I decided to have an ostrich burger with Jack Daniels onions which was nice enough but not worth £6, and a cinnamon/chocolate doughnut which was very tasty. 

Since we got back, I’ve been working on a scarf for Grandma for Christmas. Making good progress but it’s not tremendously exciting. 

Tonight I am really tired and I have to get up early as we’re picking up Grandma at nine to go to the food show. That will be lots of fun though – I plan on eating all the things!

The 27th of November. 

Good Food Show day! I had to get up early, so my body didn’t really rest overnight m and now I am drained. 

We arrived just after half nine, so after collecting my mobility scooter (necessary because Mommy was pushing Grandma so couldn’t push me, I can’t self-propel, ergo scooter), I went in search of a good coffee and I found a flat white of acceptable standard at The Shack Revolution. I drank it while planning my day, parked in the corner at the Saturday Kitchen stage, after I’d bumped into Miss Mold (my head of key stage 3 from school and terrifying back in the day) and so we had a chat. She is exactly the same, minus the terror. 

I watched Glynn Purnell do the omelette challenge, then I went off to go round all the stalls I had my eye on. I bought a set of 3 chocwiches from 5d chocolates, 2 brownies (Nutella and Oreo) and a corker from The Brownie Bar, a brownie from Gower Cottage and another one from Tarte and Berry. I also got some whisky marmalade, some shortbread and a bottle of carrot, orange and apple juice. I sampled nearly all the juices from b. fresh. For my lunch, I had a burger from The Naked Sausage and it was so much better than the one I had yesterday. Beef, sliced and cheese put in the middle, caramelised onions, Jack Daniels barbecue sauce. So good. After I’d stuffed all that in my face, I met up with Mommy and Grandma and we came home!

By the time we left, I was so sick of pedestrians and being in a scooter. Nobody has any spacial awareness and they just glare at you if they have to make any slight movement to accommodate you. At so many points, I just wanted to cry in frustration. Sometimes everything seems so difficult.  





The 24th of November. 

I slept well again, waking up at half past nine, and thankfully just in time for me to be dressed and about to go downstairs when Becky texted me to ask if she could quickly pop over to show us something. It was a potential solution to the bridesmaid predicament (we’re all very different shapes) so we approved that. 

Today we were waiting for a parcel that didn’t arrive until past five o’ clock, but before then we did take one for 22. We needed to go round the corner so I could buy some more wool from the closing down pound shop, so we left a note on the door saying to deliver to no. 12 but that was unnecessary. 

I have done very little today but crochet – I am worried that the scarf I sent to Argentina hasn’t arrived so I thought I’d better get started on a replacement. Silly postal service. 

The 25th of November. 

The most productive thing I have done today is untangle a ball of wool. 

I had less good of a sleep than the past few nights but still reasonable. Awake at half eight. This morning we had a brief trip to Tesco because Mommy had a small list of things to buy and I wanted to go out. I was also intrigued by their new biscuit spreads. We managed to get the cookie one and the cookies and cream one. I wasn’t bothered about the bourbon version, and the custard cream one was out of stock, boo. 

This afternoon I finished off the ball of black wool (after spending literally an hour unravelling it) on the scarf I was going to send to Argentina but it’s far too short. I shall have to get more. I think I am keeping the wool industry in business single-handedly. 

I have somehow pulled a muscle in my inner thigh and I have no idea how when I do nothing all day long!

The 22nd of November. 

I had a really big sleep (for me) until half past nine, and after I had my breakfast, Mommy washed my hair and I was able to get away with not putting quite so much product in it today as my face has started to decrease in size, I think. 

I was forced into going to see Interstellar today (I made a bargain with Daddy that if he came to Mockingjay, I’d go to Interstellar) and I hated it. 

I cried at least four times. When Cooper realises he’s missing his children’s entire lives, and when the professor dies, and when Cooper’s trapped behind the bookcase, so frustrated because he is watching the people he loves and can’t seem to communicate with them. It was everything I hate about my life and everything I fear about what might happen after it. 

When we left, I was just sad and angry. The film I saw yesterday made me want to use my voice to try to save people, and the one I saw today made me wish I was already dead. 

The 23rd of November. 

Six milligrams! I think this is the lowest dose of pred I’ve been on since the beginning of June, when I went from 0 to 20 overnight because the topical steroid wasn’t making my mouth and skin better. I do hope I’m able to continue in this fashion. 

I had to take a Zopiclone last night because I got sudden heartburn which I soothed with some Gaviscon, but then my body was all freaked out and I needed some help to fall asleep. 

Today I dressed incredibly comfortably in knitted jogging bottoms and my angry kitty sweatshirt. It’s nearly advent and I do not care; I will be an elf if I wish. I have spent my day being cosy and crocheting myself a snood. I’ve now run out of wool, dearie me. I have also watched many things on the V+ box – so much recorded stuff which I probably shouldn’t bother watching. I should finish reading my book. 

The 20th of November. 

Tired. Another day of things. 

Photopheresis again at half eleven, on which I rattled along quite nicely, barely finishing my paper before I was done. This afternoon, I was going to be trying on bridesmaid dresses for Becky’s wedding so I thought I’d better be wearing clothes that weren’t too much effort to get out of. 

When we got home from hospital, I sat on a towel and tried to buff dead skin off my legs and moisturise because my skin is just so dry. I put tights on afterwards in the end anyway. 

So I tried on four dresses, plus one that I just liked for me. They didn’t allow photos in the shop for copyright reasons, so unfortunately I have no pictures. We have some definite contenders though. 

This evening I have just been eating all of the things because I started my period yesterday. Artificial hormones driving my body mental. 

The 21st of November. 

It’s been a weird day. I feel like nothing happened until I went to see Mockingjay but that wasn’t until half past two. 

At first, watching Nat Dormer do actual acting (I haven’t seen anything she’s in before) was a bit strange but then I got used to her character and it was fine. She has a good shaped head. 

I think it just reminded me of having something that you believe in so fiercely that you would fight for it. I’m not fighting for a revolution, I’m not going to pretend my cause is more important than anyone else’s, but I’m still hoping to make a difference in the world. What I want only takes a few moments but can give years. 

I listened to Photograph by Ed Sheeran on the way home and it was really hard work to not cry. 

The 18th of November. 

Ughhh I did not want to get up at half eight this morning but I had to be at the dental hospital at half ten and we couldn’t rearrange them again. The chap who saw me was happy, then Mrs. Richards had a look and she was also happy! Back in six months, carry on doing what I do. 

We went into town after because I needed some caffeine, then I wanted to look at some boots but wasn’t 100% sure about them so they stayed in the shop. I did get a good Christmas jumper with angry kitties on from H&M though. 

Becky came over after we got back to show us the handicraft she has been working on and discuss her knee progress. We talked dresses a bit – trying on bridesmaid dresses on Thursday! And I told her about yesterday and showed her all my heat swag. The “dirt” fragrance does not smell good. Fox repellent. 

When she left, I wrote about Sunday and yesterday, and tomorrow morning I’ll type them up. I caught up with TOWIE and I’m A Celeb, and tonight I’ve been practising crocheting in the round. Back to my enviable life of excitement. 

The 19th of November. 

What a very busy day. First thing, Mommy and I went to the sorting office as they had a parcel for me and one for Christine, although it took them ages to find mine as it hadn’t actually been put on the system yet. It was a necklace and some earrings from one of my lovely instagram followers who I made a scarf for. They are very pretty. 

This afternoon was photopheresis and Faye came to visit/watch – being a nurse, she was quite fascinated by the process. She arrived just as I was getting set up on the machine, and brought parkin and Yorkshire curd tart which Mommy was overjoyed about because they are her favourite nostalgic foods. I tootled along on my machine and Igor came to see me. He was pleased that my heart rate had come down to 106, but he still wants me to have an echo and another sort of CT to confirm the PE so we’ll see what they say. Such fun. Mommy went down to the restaurant to acquire some plastic knives to cut the parkin with, which I have never had before but it was really nice! Like a gingery cakey flapjack. 

Do it all again tomorrow!

The 16th & 17th; heat day!

November 19, 2014 — 1 Comment

The 16th of November. 

In London! This morning I was just excited about this afternoon and tomorrow, so I really was just killing time until we left. 

The assistance office at the station was more entertaining than usual as there were some very angry people who had missed their trains for various reasons. We got on ours and it was all fine. There were some delightfully lairy women who started drinking vodka and being very loud, so I was grateful to have my earphones to drown them out. 

Upon our arrival in London, neither of us wanted a heavy meal, and that was all we were going to get at Euston or the hotel, so we went down the road to St. Pancras where we went to Le Pain Quotidien. I had a butternut squash and feta frittata and it was as lovely as the French waiters accommodating us. Plus we saw the pretty Christmas tree but there are no F&M hampers on it this year. 

We got a cab to the hotel which was nice and functional. It was comfortable and had what we needed so we were quite happy. 

We watched Strictly and were pleased that Judy is finally gone, then X Factor and were indifferent about Jaz’s elimination, then I’m A Celebrity Get Me Out Of Here and Gemma is not going to cope. I feel very prepared for heat tomorrow!

The 17th of November. 

Heat day! It has just been incredibly surreal. Plus I woke up at four but never mind. Duck & Waffle breakfast didn’t happen because they didn’t get back to Jo, so instead we went to Curators Coffee, where I bought a bag of ground coffee because the flat white I had really delicious and I actually correctly identified country of origin which I felt a bit smug about. Then we went to Association Coffee and I had a pain au chocolat for my breakfast and Mommy had a ham and cheese croissant. We watched people’s rain faces from the window. The rain did abate eventually, and we went to Rinkoff’s and I got a cronut and some mini fruity biscuits. Paul A. Young has done some toast and marmalade chocolates to celebrate the Paddington movie so we wanted to get some of those. 

I wanted to get some treats for the team at heat, so we got a cab to Covent Garden where we had more coffee at Timberyard and I bought twelve cakes and cookies – just one of everything really! Then Mommy left me at Bauer Media and I was greeted by Gwen and we went up to heat which was exactly as I imagined, and everyone was very apologetic about the mess. We put the cakes on the crap table and I was introduced to everyone and they were all so sweet and lovely. I want to work there and be best friends with them all. I left at one and Mommy and I went to have lunch at Nordic Bakery (ham, cheese and mustard in rye) in Golden Square, then at two I met Lucie Cave in the radio building for Jason Manford and Olly Murs interviews! Jason was there very promptly so we went to find the appropriate studio and while Lucie and Rachel set up, I had a little chat with Jason about TCT and life etc and he is very nice and funny in real life. I had to suppress my laughter during the interview because random chuckling would be weird on air. Then it was over and we had a selfie, and we went to wait for Olly Murs! He wasn’t until half three, so I spent some time eavesdropping on his team’s conversations about his schedule and Lucie and Dan the photographer did some test shots for an interactive Christmas card pulling a cracker, which Olly then wanted to actually pull so we did! I won a tiny photo frame. Then he wanted to read me the joke, make me name the four US states that begin with I (which I did – Iowa, Illinois, Idaho and Indiana) then he did the charade of The Lion, The Witch and The Wardrobe which I did get after a wee while! A lion is the opposite of a tiger, apparently. He’s great fun, very down to earth – the interview was vastly entertaining; porn star names and sex faces were discussed. Listen to heat radio on Saturday to hear it! Another selfie and many hugs, then Lucie and I returned to heat for Samaritans Club 7! I got to meet them all and it was like I was nine again. I was complimented on my hair and glasses, and I talked with them about how Bring It All Back was my first ever single that I bought. I talked to Paul, Rachel and Jo, then they had to do some filming so I went back to the office where I was presented with a bag of many goodies! I was leaving at five, so had lots of hugs and got a selfie with three of S Club as they were rushed out to go to Manchester, then I met Mommy back in reception and we left! I wanted to stay forever. 

We were fairly exhausted so just went back to Euston and had dinner at Ed’s Diner, then I ate my cronut and read my advance copy of heat on the train. Daddy picked us up, I crawled up the stairs and it was oxygen and sleep time. But so happy.  


The 14th of November. 

Our suspected pleurisy is not, in fact, pleurisy. It seems I have a pulmonary embolism. 

I was obviously still in pain this morning, and I barely slept. It felt easiest to stay in bed, while Mommy rang Nicola the clinical nurse specialist who spoke to Igor and he wanted to see me in clinic at one. Kate the district nurse came to flush my line, which worked fine, so the problem isn’t in there. I stayed in bed, dozing in and out until half eleven, when Mommy helped me get dressed, then I was able to have lunch before we came to the QE. 

I had some obs and bloods done, and Igor chatted to some other doctors. He said it probably wasn’t pleurisy, but could be the line again or a PE which was unlikely (so obviously that’s what I have). He was also concerned by my resting heart rate of approximately 120, so he wanted me to have a CT scan then stay in overnight for observation. 

I couldn’t have the type of CT they wanted to do because I’m allergic to the dye and the substitute wouldn’t work for some reason, so nuclear medicine were very efficient at getting me in almost immediately for a different kind of CT which involved me inhaling some radioactive gas, them taking some pictures for twenty minutes (I had a little nap), then I had an injection and some more pictures for five minutes. Then a chest x-ray to make a fully comprehensive picture of my lungs. 

And diagnosis: pulmonary embolism. Treatment: clexane injections again. Still staying in for obs, but home tomorrow afternoon. 

Got to keep these doctors on their toes. 

The 15th of November. 

Back home! I had some lorazepam last night because I just wanted sleep, so I made sure I had the oxygen on and I slept beautifully. I’m not sure what time I properly woke up, but I felt alright. I had a bread roll and a satsuma for breakfast, plus an instant latte from a sachet. 

While I watched Saturday Kitchen, I wrote in my diary, then put those entries into the blog, which was relatively time-consuming. Dr. Tim came to see me at about half twelve and said I could go home! We weren’t expecting to leave until four, so when Mommy arrived with lunch, we ate it and subsequently left! It’s a good thing she hadnt brought me any extra stuff. 

So we packed up the room and got home just after three! I have been a busy bee since then, trying to sync Apple devices, do a little bit of crochet, make sure all the blog posts were completed, and tonight I just have to decide on my appearance tomorrow and I need to tidy up in the living room because it’s a mess. 

All my chest pains and headaches are gone tonight. Drugs are magic.