Archives For September 2016

The 27th of September. 

Well my legs are okay but my arms hurt a lot. Reaching for stuff is very painful. Thankfully I don’t need to do that much. 

This morning we went into town. It started off just being to get birthday cards for Christine, but other things were added on. Face wipes were on offer and I needed some more, plus I got a free gift of some bath stuff which will probably go to a raffle in Boldmere Court. Mommy needed some Christmassy fabric so we went to John Lewis, and I bought some festive wool because I couldn’t not. Then I went to Foyles while Mommy picked up some train tickets, but I did not but any books! The new Apple shop has opened on New Street in the old Waterstones/Midland Bank so we went to have a look, mainly to see if they’d made it wheelchair accessible. Yes, they very much have! One of the steps is actually a lift – you park on a panel, one of the steps slides in underneath the top one, and you are lifted into the store. It’s super cool. Inside it’s very spacious and airy – I could move around without having to say “Excuse me” every two seconds, and accessories area downstairs is just lovely. I particularly enjoyed the drawers full of phone cases in the wall; that is an excellent storage solution. Then we returned home because it was lunchtime and I was starving. 

This afternoon I have done lots of crocheting, and we finally watched last week’s Hunted. I do not think I would fare well on that programme. 

The 28th of September. 

Arms are much better today – I could even lift the hairdryer!

This morning I caught up with last night’s debate, and to me it seems obvious that Hillary just destroyed Trump. I am concerned that his supporters just don’t care and are determined to elect him no matter what terrible things he says or how unprepared he is, and I want to shake them all by the shoulders and say “You can’t do this to us!” because it will affect the whole world. If he becomes President, there will be armageddon. 

After lunch I had a jolly time sitting at the computer. I needed to plug in and update my classic iPod with recently downloaded music so I can listen to it on the train, now that I can’t charge my phone and listen to music at the same time unless I get Bluetooth headphones. I also cleaned out all the duplicate photos in my library which was tedious but necessary. Christine phoned while I was doing it though, and that made it slightly more bearable. 

This evening I went to The Dragon Inn in town to meet a chap from the Elis James and John Robins Podcast Devotee Facebook group. He’s going to their gig which I am also attending, and has Asperger’s, so he wanted to meet some people beforehand so it was less stressful. It was slightly awkward but we had enough in common to hold a good conversation for an hour and a half. By half seven, nobody else had turned up which may have been a blessing in disguise, so I got an Uber home in time to watch Bake Off!

The 25th of September.

Last night’s bad dream was that I got shot, then I was having to have another transplant but I’m not sure which organ. I would like this to stop now. Nice dreams please, brain. 

I had a nice morning in the soft pyjamas (honestly I hate taking them off; regular clothes suck), writing my blog and crocheting the last square. It turns out that I need one more to complete the blanket but I don’t have enough wool, so I’ll have to wait for another sale, then get some more to finish it. I also changed the battery in the heart rate monitor strap to see if that would fix it, but it still wouldn’t transmit. Had it worked, I would have gone to the gym this afternoon, but now that’s going to wait until tomorrow or Tuesday, depending on when my new one gets delivered. 

After lunch, I iced some cakes for Daddy to take into work tomorrow when they’re having their Macmillan coffee morning, and started working on one of my Christmas presents. I’m so organised. I am having to do it with a 2mm hook though, and boy, do my eyes hurt. I think I am going to need to do this with lots of breaks. 

I’ve had a text about collecting Rufus and he’ll be going on Thursday. A couple of days more to try to make him less skittish!

The 26th of September. 

Finally a night with no bad dreams! Not that I remember, anyway. I only recall one in which Christine was in her bedroom and the bathroom at the same time. 

I am tired because I’ve been back to the gym. My new heart rate monitor came this morning so I made sure it all worked before I went – didn’t want another surprise. Mommy had to go and pick Daddy up from work because he was feeling ill again, even though he’d taken his tablets and everything. Really hope he’s okay this weekend. I also did a bit more work on the Christmas present. 

So, the gym! On the way, I got a text from Vlad asking when I might go and do this core plan. I said I was actually nearly there, but he wasn’t around, so we agreed on Thursday. I saw Neil and paid for the rest of September, which was a whole £4.17, then went to put my stuff in a locker, where I had a panic because I thought I’d lost the lightning to headphone adapter. Thankfully I found it under the seat, which was most pleasing because a) I really didn’t want to have to buy another because I was careless and b) I didn’t want to have to listen to gym music. I did a bit more than last time and it all seemed okay – we shall see tomorrow!

The 23rd of September. 

I can move much better today. Not completely normally, but much improved. It’s only taken three days to recover. 

This morning I was not in a great mood, I think because I had a terrifying dream about Voldemort. Never found him scary but obviously my brain came up with something. I wrote up a blog post and booked tickets for Daddy and I to go and see The Magnificent Seven this afternoon, then crocheted two squares of the patchwork blanket I’m making. 

After lunch, we went to the cinema. It was not the best trip. In WHSmiths, I went to buy some chocolate buttons to eat during the film. However, there were none to be seen. I asked the man at the counter, who had to go in the back to find some, and this was fine, if time-consuming. I became irked when we had to phone someone to accompany us in the lift because it seems the public can’t use them alone. Then the machine wouldn’t let me pick up our tickets and we had to go to a counter. In front of us were an old couple having a very long discussion with the man serving, and I eventually gleaned that they were buying tickets for a screening on the 27th of November. They were taking forever and I sat behind them doing passive-aggressive sighs until they were done. Finally we got our tickets and went into the screen, where the only other two people there were sitting right behind us. When the film started, they were still talking, so I turned around and stared at them until they shut up. 

The film itself is great fun. A good old-fashioned, rootin’-tootin’, sharp-shootin’ Western. Denzel Washington does some fancy horse riding, and I greatly enjoyed Martin Sensmeier’s cheekbones. If it’s your kind of thing, I recommend it. 

The 24th of September. 

Waiting for a potential adopter to come and see Rufus. She said “after 5pm” and it’s nearly twenty five past six. She just phoned and said she’ll be 15-20 minutes. I hope she makes a better impression in person because currently I’m annoyed that I’ll probably miss Ed Balls dancing. 

I spent my morning in my very cosy new pyjamas – I got them in the 40% off sale in Gap and they are so soft; I am as snug as a bug in soft pyjamas. Read the paper and did appallingly at the puzzles while waiting for the result of the Labour leadership election. Delighted that Jeremy won, as expected. I voted for him, as did everyone else I know, but that usually means I’m wrapped in a bubble that isn’t reflective of the electorate. Not so, this time!

This afternoon I crocheted some more squares, and redesigned my blog (as you may have noticed). The colour scheme is the same as that of my business card. Now I’m sat waiting for this lady to arrive with her five year old who’s just been at a birthday party. 

*time passes*

Well, they’ve just left and it went surprisingly well! Rufus hid at first, but he came out and happily smelled their hands and played with them. They seem to be pretty keen, so I await confirmation. And I haven’t missed Ed Balls!

The 21st of September. 

Yeah everything hurts. Literally every muscle. I just got stuck in the middle of the living room because it hurt so much to move my legs. Mommy has found it all vastly amusing and has been laughing at me all day. 

This morning I did very little seeing as moving was so agonising, but this afternoon I had to extricate myself from the armchair because we had to go to the GP for our flu jabs. When we arrived, they weren’t actually open yet and people were queueing outside. Thankfully we didn’t have to wait too long before they opened the doors to let us in. We were told to have our left arms ready and Helen called our names. We both got jabbed and off we went!

When we got home, I looked into the whole blog-hosting thing, and it seems that SquareSpace don’t do domain transfers yet. Seeing as I just got a bunch of business cards made with my website address on, I kind of need to keep it. I still think I’m going to do an overhaul of the site but that can wait. 

When I came back downstairs, we watched the final episode of One of Us (I worked out the twist about two minutes before it was revealed) and I complained about being freezing. Thermal vest, jumper and cardigan. 

The 22nd of September. 

Today has been marginally better. My movement is about 2% better. Seriously, I am broken. I have actually tried not to move because I can feel how stiff I am and I know when I do have to get out of my chair, it’s going to be excruciating. 

Our only trip out today was to the Women’s Hospital for my follow-up appointment with the specialist nurse to see how I’m getting on with the dilators. She is very punctual – 1.45 on the dot she called me in, I didn’t even have time to open my book! She asked how it was going and I said not well; I am still on the first one and feel like I’ve made no progress at all. She asked a couple of questions to make sure I’d been doing it right and I have, so we had to go to an examination room. Jeans and pants off (with difficulty), legs akimbo, and she had a feel (it was more professional than this sounds). She said it feels quite badly stenosed, which is something you can get from radiotherapy or chronic GvHD, but to determine as to whether it’s that or muscle spasm, I’m going to have to have a general anaesthetic to be examined. So that’s fun. I do like the magic liquid sleep. 

Since getting home, I have stayed in the armchair and crocheted. I really want to stretch out on the floor but I’m not sure I could get up again. 

The 19th of September. 

It’s been about fifteen degrees today, yet I am wearing a thermal t-shirt, a jumper and a long cardigan. When it gets actually cold I think I will literally perish. 

When we went out this morning to the dental hospital, at home it didn’t feel cold enough to warrant a jacket, but in Edgbaston it was raining and freezing. Then inside, their “natural ventilation” air conditioning was going and it felt like a howling gale. I was having to hold the pages of my book down to stop them from blowing over. I was called in and saw Mrs. Richards straight away, no minions today, so we had a chat about how I am, she looked at my mouth, and I’ll go back in three months (which happens to be the ninth anniversary of my first transplant). No surprise tongue injections today!

Popped into town on the way home – I needed some pens from Muji, a new hoodie for the gym (I’m going back tomorrow eee) and some cotton wool pads. Also went to Pret for one of their chocolate chip cookies and a flat white to warm me up, which the chap very kindly wrapped a napkin round because it was very hot. Bless. 

This afternoon I’ve weaved in all the ends of my snood and fought the urge to nap. Trying would only make me sleepier anyway so it would be fruitless. Hopefully I will sleep well tomorrow night after my return to the gym!

The 20th of September. 

I am going to hurt tomorrow, as I had my first session back at the gym today and it was haaard. But more about that later. 

I was surprised to find that Daddy had gone to work this morning seeing as he was throwing up again last night. But apparently he felt okay and he’s not called so assuming he’s been fine. I put my gym clothes on so I had no excuse not to go, and did some research into moving my blog from WordPress to SquareSpace. It’s quite easy to move the blog across, it’s the photos that are an issue. If I decide to do it, I think I’ll have to spend another day in front of the computer. 

After lunch, Mommy took Grandma to fellowship, then when she got back I leapt into the car and to the gym we went. My card had not been unfrozen which was awkward but it got fixed, and I just have to pay the balance for September next time. Then I discovered that my heart rate monitor has died which was most inconvenient. Bah. Anyway, I went through my usual routine in a rather low-key fashion. It’s going to take a while for me to get back to where I was. I saw Vlad and explained that I can’t train with him right now, but he’s going to help me come up with a routine for my core. Lots of planks methinks. I didn’t see anyone I hate, just the girl I am incredibly jealous of because she has the most phenomenal body I have ever seen in real life. I want to be her friend but also I am very intimidated by her. 

And Brangelina! I am loving all the petty Jennifer Aniston gifs on Twitter (even though I very much doubt she cares).

The 17th of September. 

And we are back to it being freezing. I do like getting to wear fluffy, snuggly jumpers but if we could have that kind of season without my fingers feeling like icicles that that would be great. The thermal bed socks will be coming out very soon I think. 

No sitting in front of the computer today – I had a better night, spent my morning with the weekend Guardian and enjoyed the fact that I wasn’t having to plug my phone in after using it for ten minutes. 

I had another one of my rainbow bagels for lunch because apparently the bakery man at M&S hadn’t made any pretzels today, then spent my afternoon waiting for Shaki to appear so she could give me Rufus’ paperwork and trim his pointy, pointy claws. She finally turned up an hour and a half late and it seemed the text she’d sent didn’t arrive, and Rufus was friendly enough but we couldn’t get hold of him. Still not a fan of being picked up which just means I have to do it more, to get him used to it. More injuries ahead!

The 18th of September. 

Last night I was so cold I had my duvet, blanket and dressing gown on. And my electric blanket to begin with. I’ve already got my full-length pyjama bottoms on, I think the long sleeves are going to have to come out too. Even the towel rail thinks it’s cold enough to try and warm up. 

This morning was Sunday Brunch and looking at Christmas crochet patterns. Got to decide on what I’m making people for presents (plus some other cute things), and I got an email about a sale, so some wool for gifts is on its way! I have two planned – working out what to make Mommy is hard because I have to be able to do it in secret. It’s fine. I have time. 

This afternoon, I watched several episodes of my new favourite show, Crazy Ex-Girlfriend (Rebecca Bunch is my spirit animal), and I designed myself a business card. I keep meeting people at things and not having anything to give them but soon that will no longer be a problem!

Hoping Rufus has eaten all his lunch. He is such a finicky eater. Nobody is interested in him! Poor kitty. 

The 15th of September. 

A decidedly less great day. I woke up so excited and full of beans because today was the day I was finally going to get some answers about my back, but now I just feel tired and deflated. 

This morning I wrote about yesterday, then was at the chiro again. My neck needed some serious attention, and I promised I’d let Trine know how my appointment with Mr. Harland this afternoon went. 

We went home for about forty five minutes, then back out to The Spire to finally see the surgeon and get some answers. I had a little bit of time to read my book before he called me in, but I was very ready when he did. We talked a little bit about my background, then he showed us my scan pictures (I wish I’d taken photos now) and talked us through them. It is the discs that are causing my pain – the ones at the top are okay, but as you go down my spine, they get thinner and thinner, down to about a fifth of the size they should be, and are now just a couple of millimetres thick. At the very bottom, it looks like two of the vertebrae are on their way to fusing together, and what’s left of the discs is prolapsing. He’s never seen scans of a back like mine belonging to a 25 year old. Maybe a 50 year old. Of course. And it turns out, there’s no surgery he can do to fix it. I’m being referred to the pain team and their physio, who will hopefully have a solution for the agony. Maybe pills, maybe patches, maybe steroid injections into my spine, we’ll see. I’m disappointed because I was really hoping for something more immediate. It might get better when the bones fuse, I’ll definitely get stiffer, and that’s it. No real cause – not steroids, just a case of bad genes and bad luck. I’m an unfixable disaster. 

The 16th of September. 

This is not going to be an exciting entry. I had a really bad night; awake on and off since 3am. Maybe it was the incredibly noisy weather, I don’t know. It was not good. 

I emerged from my bedroom at half past eight, and spent my morning getting my phone ready to back up so such my new one was delivered I could get started setting it up. It did not go to plan. 

Everything ran rather slowly. I only started trying to back up the current phone after lunch, and I have been sat at the computer all afternoon. The first backup, during which I watched Bad Neighbours (I give it 3 stars), failed for some reason, then the second go took the entirety of 22 Jump Street (3.5 stars) and I thought that had failed too. However, when I went to try a third time, it appeared that a backup had been made and I could finally start on the new one!

My time has not been totally wasted – I have finished the snood I’ve been working on. It’s very long and so will keep my face warm and snuggly. 

Anyway. Back to work. I suspect I will be here all evening.