Archives For October 2017

The 28th of October.

Pointless is being very distracting tonight while I’m trying to write. Alma from Corrie is on it and I can only wonder if she is still the enormous alcoholic she was when she did panto at the Hippodrome. 

This morning I got very annoyed at the Vue website because I thought they weren’t accepting my disabled person card, but in fact it expired a couple of weeks ago. Then I was annoyed at the CEA people because they didn’t email to remind me like they did last year. Pah!

I was booking tickets for Daddy and I to go and see Thor: Ragnarok. I am finally able to go to the cinema and not irritate everyone with my cough. When we arrived, there was a car left in the road of the car park (not in a space) with children in the back but no adults to be seen. Curious. Inside, we discovered they are selling pizza now. You can take a while pizza in with you. This makes me furious. I don’t think it is acceptable at all. I was then amazed at the family of six in front of us who had spent nearly £110 on tickets alone, plus snacks! If I had four kids I would not think it was worth £18 each to take them to a film they’ll most likely forget. 

Still, I had a thoroughly enjoyable time. Korg is my favourite and I am very into evil Cate Blanchett. What a queen. Also shirtless Chris Hemsworth is nice. 

The 29th of October. 

It’s been a day of new kittens and Stranger Things. I woke up shortly after nine from a rubbish night’s sleep, and decided to get on with watching the rest of Stranger Things pretty much straight away. Sunday Brunch had no interesting guests, and I had six episodes left, so I thought I’d see the first of them before Shaki was due to arrive at eleven. 

She appeared on time with three tiny fluffballs. Thankfully they’re not so small that they can squeeze through the bars of the cage, but they’re not far off. They love to scream. Well, the two boys do. Oh, how they love to scream. They’re absolutely fine, just really vocal. Chester, the ginger one, purrs as well as screams. Mostly what they’ve done today is sleep. They’ll do a lot of that. We can’t let them run around on the carpet yet because they need to be flea sprayed, then 48 hours later, they can explore. 

My afternoon consisted of the rest of Stranger Things while grabbing at my face in stress. Those kids are so great. The Duffer brothers have really done am incredible job; nothing feels labored or gratuitous, it’s a bit scary but not horrifying, and in all of the tension there are still moments of tenderness and humour. Next series please!

The 26th of October. 

Thought I should mention that my cough has essentially gone. The odd one here and there but generally, I am feeling much better. 

This morning, I wrote up a blog post, then got back on the crochet. We put my sleeve back on, because the numbness is still exactly the same, in intensity and area. I’m just waiting for it to be next week now – nothing will happen until then. 

After lunch, I had a hairwash, then it was time for the new episode of Riverdale. Mommy was out with Grandma for pretty much the whole afternoon, so I then settled down with the last four episodes of The Blacklist. Frustratingly, I did not get all the answers I wanted but how else would they get me to keep watching? Crochet was also somewhat irksome because I think I’m going to run out of wool. AGAIN. 

The 27th of October. 

I did not run out of wool! Close, but I managed. 

So! This morning, Daddy was off to the QE (not me for once) to have steroid injected into his ear to try to alleviate his Ménière’s. Without local anaesthetic. No thank you. I know I have plenty of steroid injections but I have the local. He will next time!

While he was doing that, I was assembling the Christmas crochet project I’ve been working on. It is now complete except for one final accessory. 

Mommy went out just after lunch to pick Daddy up from the hospital because he wasn’t supposed to travel alone, and it was at this point I put on Stranger Things 2. I got the first three episodes watched (Mike and Eleven is the purest love story of all time) and while I did that, I turned a skein of wool into a ball. I needed to do that before I use it because otherwise it gets knotted up in a tangle which is unbearable. To do this, I had to wrap it around the legs of two upturned tables while I sat on the edge of my seat, which killed my back. Being able to relax back was bloody glorious.

The 24th of October. 

Well, here’s a weird new development; part of my lower arm has gone numb. When I touch it, it feels like it would if I had had local anaesthetic put in. Just dead. 

I rang the lymphoedema nurses to see if they thought it was because of the new compression garment. They said probably not, but to take the sleeve off for a day or two, and see if it changes. So far, it’s still exactly the same. I have to ring them on Thursday to let them know but I’m pretty convinced it’s something internal. I might email Anne Dancey as well to see what she thinks because Andrew is unavailable as it’s half term. 

This afternoon, I was at the hospital for Dr. Richter’s clinic. I didn’t see her, but one of her colleagues, Dr. Antrobus. He wanted to know about my infection history, so I tried to run him through the significant ones. Most of the discussion revolved around the pneumonia this year and the e. coli/klebsiella/sepsis debacle of 2013. He has ordered a couple of blood tests to look at my levels of antibodies and what pathogens I’m immune to. He thinks there probably isn’t any treatment that they would give to reduce the white cell count, and he’s going to write to everyone concerned to basically say that it may well just be one of those things and they should just accept it and give me what I need. 

The 25th of October. 

Having so much bizarre shit go on with my body has made me more neurotic than I think is normal. I emailed Anne this morning to see if she had any ideas, with a photo indicating the affected area. She had some very specific thoughts (including technical medical language) and thinks I need to see Andrew asap. I then emailed his secretary with what she said, and she is so patient with me, bless her. I am sure I am a nuisance but having been dealing with this for over ten months, I just feel I have to push all the time. She and the appointments lady are on the case and as soon as Andrew is back he will see all the emails and I’m sure there will be discussions. 

This afternoon, I have been doing Christmas crochet and watching The Blacklist. I am nearing the end of the first season now so it’s all getting rather tense.

The 22nd of October. 

Inside my elbow hurts so much. I didn’t have the compression garment on yesterday because Mommy wasn’t in and I wasn’t going to teach Daddy how to put it on. So today it’s been back on again and oh god it is so tight. I just need to keep it on; I’ll get used to it again.

Similar day to yesterday. Good night. Mostly crochet, in my chair. Watched Sunday Brunch, did a blog post. Won’t be watching next week, not unless I’m desperately bored. Just nobody of interest on at all. 

Crocheting something for a different project – can’t carry on with Heidi’s until the extra wool arrives. What I’ve worked on today might have to be done again, depending on the size of the next part I make. It’s a complicated equation involving different wools and hook sizes. 

Last night we ate the ciabatta and focaccia. The brioche got baked today but sort of got accidentally cremated so they haven’t been so good. Have to try that again and watch the oven a bit more closely. 

The 23rd of October. 

Well, tomorrow is off. It’s so frustrating. 

I spent my morning waiting for Michelle, Mr. Titley’s secretary, to phone me to tell me what exactly need to do tomorrow. I was going to give her until eleven, then ring her, but at 10.55 my phone rang. It was Stella, Dr. Richter, the immunologist’s, secretary. She was calling to offer me a cancellation appointment tomorrow afternoon, which I had to pass on because I didn’t expect to feel up to it. I then rang Michelle, and she told me that actually, they weren’t sure if tomorrow could go ahead, because I haven’t seen Dr. Richter yet. How fucking ironic. She said she needed to talk to Mr. Titley to know for sure, and she’d ring me back.

When she did, it was with bad news. No surgery. They booked me in with the hope that they’d know what was happening with my white cells by now. But we don’t. So she’s going to book me in for his next pre-screening clinic on the 22nd of November, when he comes back from holiday. 

I rang Stella back in the vain hope she hadn’t found someone else for the appointment. Of course, she had, and then I got a bit upset and explained how nothing I need doing can move forward until I see Dr. Richter. She agreed to try and squeeze me in it she could, and I left it with her, not feeling hopeful. But sometimes I can be surprised. I think a slot has been made for me at the start of the clinic, because I’m booked in for 2pm. Small victories.

The 20th of October. 

I feel somewhat better this evening. Had a good sleep, although it seemed very busy – I had so many dreams. In one, I meowed at a lion and it did not like it. 

The day has been mainly dictated by the fixing of the door. The only effect it had on me was that we didn’t go to the cinema, but that wasn’t a major issue. I wrote up a blog post, but didn’t post it until the door was fixed. I don’t know why, nobody could have broken in. Anyway. I then had to remake the head of Heidi’s doll, so I sat with that on my lap until about three, and now her body is finished (again). Except she needs hair. 

Went upstairs for an hour and watched an episode of The Blacklist. I can climb the stairs a bit more easily than last week – I don’t need oxygen when I get to the top. I think I’ll be alright on Tuesday for my anaesthetic. 

Back downstairs, I put on today’s Buffy and started making the hat required for Heidi’s doll, while Mommy and Daddy went to pick up the car from its MOT. Mid-hat, I had a visit from James who wanted to leave a drill with us and borrow a key. We had a nice chat – I haven’t seen him or Becky for ages. Need to have her round when we’re both not ill. 

The 21st of October. 

I suspect this is going to be a rather short entry because my day has been one of little action. 

Mommy has been out all day on a bread-making course that Christine and I bought for her for Christmas, so I’ve had to get everything for myself today. That doesn’t sound like a big deal, but it meant much pain, especially when making coffee and lunch. Stupid disintegrating back. 

So I have spent pretty much my entire day sat in front of the tv, bingeing on The Blacklist and attaching strands of hair to the doll. It’s a very tedious job, but it is a labour of love. I have now run out of wool so I’ve got to order some more. My collection is growing out of control. 

And that is literally it. Mommy’s back now, and she has brought home a white loaf, two wholemeal breadbuns, half a foccacia, half a ciabatta and a milk bun which I have eaten. So much bread. I am delighted.

The 18th of October. 

I think I am getting better? Very slowly. Like, I am definitely coughing less. I haven’t been quite as phlegmy today? Ohh progress is glacial. 

This morning I did a blog post, and did some more phoning to find out what’s going on with my Andrew appointment. Turns out Christine hasn’t had anything about me, but because I’ve made contact with her, she’s going to find me-related paperwork and wave it in his face so he tells her what he wants. 

After lunch, back on the crochet. Starting a Christmas present (eee!) – have to start thinking about that. Mommy and I have booked our train tickets for our annual London Christmas shopping trip. I hope I can wear more of my festive jumpers this year. 

My left eye has been protesting all day. So looking forward to going to bed and closing them. 

The 19th of October. 

I am just exhausted this evening. It’s not like I’ve been out much, or had a bad night, I’m just tired. Bleah. 

I spent my morning sewing beads to the thing I’m making for Heidi. Mommy had taken Alison to her physio appointment, and must have done something to the door, because when the veg man arrived, I couldn’t open it. It shouldn’t have been locked, but I got my keys and tried anyway. Couldn’t open it. I tried everything but it wouldn’t budge. He put the box in the porch and I yelled out the window “Sorry, I’m locked in!” When Mommy returned, she couldn’t open it from her side, so I ended up having to open the garage and let her in that way. I didn’t have to walk much, but I could barely breathe. I know I’m not well at the moment but still…I think the pneumonia has probably damaged them permanently. I suppose I’ll have to ask Dr. Thompson in November.

We had trip to St. Giles again today to try some more sleeves – not going for made-to-measure just yet. I’ve got two – one that stops at the wrist so I’ve got a glove to go with it, and one that’s the same style as my other one, both in different materials. I’m not enjoying the glove; it’s so squeezy on my fingers. 

And my eye is bad again today. Can I rest, please? Let me rest. 

The 16th of October. 

Started my day with a phone call from Shaki. She was outside, about to put some paperwork through my door, but didn’t want to come in because she has tonsillitis, bless her. Poor us. 

Once dressed, I got downstairs and promptly chucked my water over the table in the living room. This meant I had to take everything off it, including the heavy glass top so the embroidery underneath could dry. Well done me. 

I rang Emelda to discuss my next appointment with Andrew, but found out she’s on annual leave. Rats. I’ll try Christine, the appointments lady, again tomorrow. Then I wrote up a blog post, trying to ignore the apocalyptic light that’s been over us most of the day. 

Lunch, then sat here crocheting a cowl most of the afternoon. Suddenly it was half past four and we had to go to the chiro for my rescheduled appointment. I knew it was going to be painful, but necessary. The muscles that go up either side of the spine had contracted so no wonder I’ve been in more agony than usual. Plus lying on my front on that floor has been bad for my neck so it was a generally unenjoyable visit. 

I also spoke to a lymphoedema nurse because I’ve not been able to wear my compression garment today because it has made the skin on my elbow raw due to it being so tight. Going to try another brand. Why is nothing ever simple?

The 17th of October. 

This is exhausting. I think last night was better? The cough has been pretty similar today – I’m still bringing up phlegm the same colour as before so I emailed Dr. Thompson again. Today is the last day of the co-amoxiclav, and the last sputum sample I gave was essentially spit so obviously it hasn’t grown anything. Anyway, he wants to leave it a few days and we’ll see how I am. 

Spoke to St. Giles again and they want me to have a made-to-measure sleeve, so I’m being measured for that on Thursday. Also spoke to Mr. Titley’s secretary because I haven’t had my letter about Tuesday yet. She said one has been sent, but if it doesn’t arrive by Thursday I’ll be ringing her back. I do need to know what time to turn up etc. This cough better have fucked off by then too or we’ll be in trouble. 

I spent my afternoon watching stuff on Now TV and crocheting the cowl. It’s finished now. I watched the Nashville concert at the Royal Albert Hall and got emotional at Stand Up because it reminds me of Dean. I miss my friend.