The 9th of April. Today I have actually done things, so that's an excellent start. I had my first ECP session with the new line, as we suspected, bigger line = quicker time. I was fine in less than an hour and a half! Julie noticed that it had leaked a bit (as in, blood was coming down the line) so we'll probably need to flush it more than once a week as it's not good to just let it sit there; it might clot. We happened to bump into Igor in the queue at Costa and he was very pleased to hear that everything seemed to be in this working order.

Had to go into Tesco on the way home because Mommy suddenly realised we only had half a swede and a parsnip in the vegetable drawer, so that really needed to be replenished. After we got home m Becky came over to borrow the pressure washer, then Mommy went to see Grandma and I went to de-hair my legs. Which I had to do twice.i I use the cream that burns the hairs off? But i think it might have gone out of date, as I have had it a while. So I went through all the motions once to find it hadn't worked, but thankfully I had some spray that was unopened, so I used that and it worked. Now I have smooth legs!

I have started that body of Anna's elephant this evening, then I've got a pig to do, then I think I can start new ones again!

The 10th of April.

Having your blood messed about with its exhausting. I yawned all the way to the QE this morning, despite having had coffee, bought more coffee and lunch, then got started ON ECP just before 12. Julie had got all the line flushing kit for me to take home already, so I just needed her to get Dr. Tim to rewrite the heparin prescription, as otherwise the district nurses won't do the amount that needs doing. I read the paper and had my lunch, then Julie took the stitches in my chest out and we were pretty much done!

On the way home, I felt somewhat crappy as I was tired and the skin on my fingers has been damaged by the GvH so they were sore and I was just a generally unhappy bunny. Since getting home, I have crocheted a banana, and that it is all, really. I will have a whole fruit bowl, eventually.