Archives For arms

The 30th of July.

I’ve had really quite a shit day. My arm has decreased in size which is obviously good, but it means I need to be remeasured for a new sleeve because the current one is almost baggy. I spent all morning trying to ring the people who book the appointments for Julie at The Spire and left a message, but no one answered or got back to me. I rang the main number who bounced me from pillar to post before putting me through to the number that no one was picking up. It was only at lunch time when I tried the main number again (after another no answer) and voiced my frustration did I get to speak to someone. They said they’d been there all morning which just tells me they couldn’t be arsed to talk to me or any patient that called. I finally got an appointment for next week. Hopefully I’m not adversely affected.

Another reason for the shitness of the day was that I put up a post this morning about how I feel about having been in remission for ten years, which I’ve been working on for weeks and was really hard, but the overwhelming lack of reaction makes me feel like very few people really give a fuck. I have had a couple of comments but really I don’t know why I bothered.

Finally, I got a letter from the pain nurse who I talked to on the phone six weeks ago. Turns out the reason I’ve heard nothing is because she only just wrote to Dr. Blaney. Great.

Happy 10th Marrowversary. Again.

The 31st of July.

I feel better today. I got some responses which cheered me up and made me think a bit differently. Plus I went out and had a nice time which perked me up.

Didn’t have time to do much this morning belt going out to meet Sadie at 12. Daddy dropped me off, then went to work to pack up some more of his stuff. I got a text as I was going up in the lift, and it was Sadie telling me that the place we were going to eat wasn’t open yet. Boo. We had a look at what was available instead and settled on Giraffe. Sadie had some spicy rice thing, and I ordered tapas of bao buns, patatas bravas and chorizo. The chorizo ended up being too hot for me so Sadie ate that, but my buns were delicious and the potatoes were fine. Then we shared some churros. Yum. Talked about Love Island, her current/future job, our shared desire to and see The Meg, and stupid people in our lives.

When we finished, she was going the other way to me, so we said goodbye, then I went to Foyles to browse and ended up buying Hunger by Roxane Gay. I then texted Daddy come and pick me up, but traffic meant it took him 25 minutes to get about a mile. Bleah.

Since getting home, I’ve watched the most recent Sharp Objects and the pilot episode of House while crocheting the dress.

I nearly got Dolly on the chair with me last night! Two paws up, thought about it, but no. Soon!

The 12th of June.

Happy Birthday Daddy!

First thing, I gave him the presents I bought him yesterday. I had ordered some other stuff but it didn’t look like it would arrive in time, hence the shopping yesterday. Of course, they were actually delivered today. Oh well, he can have them for Father’s Day! Anyway, he’s very happy with his fudge and astronaut.

I did a blog post this morning, then we went out for lunch at The Boathouse. I don’t think we’ve been there since Becky and James’ wedding. They have done it up, and I do not like the new artwork. Mirrors with bottles of alcohol sticking out of them, appearing to spray. Awful. And being sold for £295! Still, I had some tasty food: mac and cheese, and baked cod in a brie and chive cream sauce. All very delicious.

We had about an hour at home, then Mommy and I had to go to The Spire to see Anne Dancey about my arm. We went through all that has happened in the past year, she examined both arms, and basically, I’m going to have liposuction. I’ll get a quote tomorrow, then I will book a date to have it done. I will have two arms that are the same size!

Dolly is still unhappy and I think we are stuck. I have texted the adopter of Dot, because her daughter in law looked after Dolly at the cattery and I think she might be able to help.

The 13th of June.

There is not much of interest to say today. This morning was pretty quiet – I booked my trains to London and back for the stem cell APPG summer reception in July, and found myself panicking about getting the train home in time, despite me doing it last year and getting the same trains. I need to calm the fuck down.

After lunch, I went to the gym and actually had a good session without any terrifying breathing or terrible back pain! Amazing.

This evening, Sarah, who worked with Dolly at the cattery, came round to see her. We hoped she might be able to coax her out but unfortunately, she wasn’t having any of it. Stayed under the chair, hissing. We’ve got some rescue remedy to put in her water, and I’m going to talk to Shaki to see if she has any further ideas. Otherwise, we’re at a loss. 

The 23rd of April.

It has been a very boring day.

This morning, I wrote up a blog post, sewed up the seam of the first sleeve of my jumper, and got very bored of hearing about the new royal baby. So much baby news. Now he is born and home, one hopes it will die down once we know his name.

I had an ultrasound with Andrew at one, to check if there were any strictures or thromboses in the lower arm. After checking all the veins, and looking at the visible tissue, it seems my veins are fine, there isn’t any fluid anymore, and now there are just fat deposits in my arm for no reason! So I’m going to get back in touch with Anne Dancey to explore my options. I can’t leave it like this.

Then we had two hours to kill, so we bought some crap sandwiches from WH Smith and read our books. Much book-reading today. I finally went in to the x-ray suite at quarter past four, where Dr. Blaney was waiting. I lay face down, trying to breathe comfortably. My lower back was exposed, and I then had an x-ray probably every twenty seconds while Dr. Blaney did lots of injections. I think he was doing some local anaesthetic, then putting in a bigger needle and using that for the steroid. It took maybe five to ten minutes and was slightly uncomfortable, but not enough to put me off having them again. If they work, that is – it’s hard to tell at the moment. They might work immediately, it could take a few days, or they might not work at all. If they don’t, I don’t know what I will do.

The 24th of April.

Well, I think I might very tentatively say that my back may be slightly improved?

This morning it was quite tricky to tell, because I didn’t do anything to really test it out. I got up, had breakfast and coffee, and listened to The Riverdale Register while getting dressed for the gym. Mommy and I printed out all our tickets for Mach so they are sorted in folders for when they’re required, then I did the first two rows of the second sleeve of my jumper.

After lunch, I went to the gym for a short session. Partially because I didn’t want to overdo things, and partially because Mommy had to be at Grandma’s for twenty to four, so I needed to finish earlier than I usually do. Basically, I skipped all the stuff I do downstairs, so I just did the circuit of machines upstairs. I didn’t have the pain I was experiencing last time, but that was a very bad day. The pain is definitely not gone, but I think it might be a tiny bit better.

Tonight I am out at the mac seeing Tez and the seats there are not the most comfortable, so that might give me a better assessment.


The 4th of February.

I am cold and tired, and I think one is feeding the other. I don’t know why; I didn’t have a particularly bad night but maybe my body is just furious with me for trying to exercise. My back has been absolutely horrendous today, to the point where I still can’t even force myself to stand up straight.

This morning, I wrote up a blog post while watching Sunday Brunch, then I made the antlers, ears and arms of Heinz. I also put together a post on World Cancer Day, using some bits from the Anthony Nolan blog that they didn’t keep, and adding some extra paragraphs to make it more suitable for today.

After lunch, I went upstairs to get dressed (I couldn’t be arsed to get out of my pyjamas this morning) and take some photos wearing my Anthony Nolan Links badge for the blog post I then put up.

Back in the living room, I put Heinz together, and now all the Christmas dudes are finished! Off to Iceland they go.

The 5th of February.

My MRIs on Wednesday cannot come soon enough. Last night, my right arm and calf felt really heavy and swollen, and today it feels like something is being squeezed in the arm. I could blame it on the fact that I’ve been crocheting for a lot of today, but that’s no different to many other days when I haven’t felt like this.

This morning, I suddenly had no project to work on, so I decided to look at the jumper I started over a year ago before my arm swelled up. I’m far less keen on wearing the wool I used, so I unravelled it and instead I am using it to make a chunky cabled scarf like the one I made for Christine for Christmas. It’s going well, but my arms need a rest now.

This afternoon, my Edward’s Menagerie Dogs book arrived, so I won’t be short of projects for long. There are so many great patterns, I can’t wait to make them all, although some will be very wool-heavy and time-consuming.

Can’t believe it’s only a week until Still Standing. I do not expect my sleep pattern to be good until then.

The 26th of October. 

Thought I should mention that my cough has essentially gone. The odd one here and there but generally, I am feeling much better. 

This morning, I wrote up a blog post, then got back on the crochet. We put my sleeve back on, because the numbness is still exactly the same, in intensity and area. I’m just waiting for it to be next week now – nothing will happen until then. 

After lunch, I had a hairwash, then it was time for the new episode of Riverdale. Mommy was out with Grandma for pretty much the whole afternoon, so I then settled down with the last four episodes of The Blacklist. Frustratingly, I did not get all the answers I wanted but how else would they get me to keep watching? Crochet was also somewhat irksome because I think I’m going to run out of wool. AGAIN. 

The 27th of October. 

I did not run out of wool! Close, but I managed. 

So! This morning, Daddy was off to the QE (not me for once) to have steroid injected into his ear to try to alleviate his Ménière’s. Without local anaesthetic. No thank you. I know I have plenty of steroid injections but I have the local. He will next time!

While he was doing that, I was assembling the Christmas crochet project I’ve been working on. It is now complete except for one final accessory. 

Mommy went out just after lunch to pick Daddy up from the hospital because he wasn’t supposed to travel alone, and it was at this point I put on Stranger Things 2. I got the first three episodes watched (Mike and Eleven is the purest love story of all time) and while I did that, I turned a skein of wool into a ball. I needed to do that before I use it because otherwise it gets knotted up in a tangle which is unbearable. To do this, I had to wrap it around the legs of two upturned tables while I sat on the edge of my seat, which killed my back. Being able to relax back was bloody glorious.

The 26th of September. 

Ughhh. So much phlegm. Bad night, full of coughing, sneezing, bleugh. This morning I wrote up a blog post, then it was time to try on more jumpers. Yes, more jumpers. I don’t know when this saga with my arm will end and Zara have an abundance of large-sleeved clothing so I’m taking advantage. I do at least know that I will be getting a better compression garment on Monday – Jemma from St. Giles rang and said she’d spoken to Andrew, who says it’s fine to have one, so maybe one that fits properly will actually help?

This afternoon, I’ve been crocheting the first of my little wintery chaps, Woody the Pine Cone. He is adorable, but he still needs some arms. 

It seems Christine is poorly too. She is also on the Strepsils and doing all the coughs. Hopefully she is tolerating it better than I am. Stupid germs! I’m pretty sure it’s just a virus, not bacterial, as the phlegm that’s come up hasn’t been green and it can’t be the pneumonia again because then the phlegm was too viscous to move. 

I miss Dean a lot today. I keep expecting to see his name pop up on my phone screen, thinking of things I want to tell him. Maybe it’s finally hitting me. 

The 27th of September. 

Another bad sleep, but I’ll just have to expect that while I’m ill. My throat was less sore, but that’s probably because I was awake in the night and had Strepsils. 

I think my nose is less runny today, but the coughing is much worse and more painful because all my ribs and muscles ache. Christine went home at lunchtime today so she is obviously not feeling great either. 

More crochet and TiVo. I finished Woody and started on Simon the Snowman, who currently looks like a tooth. The wool I had ordered to make Chloe’s seal came today so I can do that next. Can’t believe I had run out of light grey. 

I had a break from the crochet when we went to collect the kitties from the very after their neutering, chipping and vaccinations. Henrietta is sulking but the kittens are fine. We’ve got a couple coming to see them tomorrow and there’s no way they won’t fall in love with them so I’ll probably have to say goodbye soon. 

The 12th of September.

Today has been fairly acceptable, pain-wise. I had to bend over this morning which my back didn’t like, and I’ve had the occasional twinge, but moving has been much easier. I had a longer sleep, which I think helped too. 

Quiet day for me; this morning, I wrote up a blog post, and tried on two dresses that I had ordered. Keeping one, sending the other back. Chatted with the kittens. I think bribery is working on Hugo, as he’s not running away from me quite so much. 

After lunch, I perused some crochet patterns and did some experimenting with different sized hooks, eventually deciding to just make a scarf/snood with some wool I bought to get free delivery on an order. I watched some Bones, then went to sit and give Hugo treats while I stroked him. He’s getting better at it. Even Harvey wanted to come and join us watching Buffy, although he doesn’t care about Dreamies. 

The 13th of September. 

Well it’s been a rather productive day. I saw Anne Dancey this morning about my arm. I explained my situation, and my history, and she examined me. She was pleased to hear that Andrew is organising this nuclear medicine test, as she would do something similar, and would like to see the results when they come through. Let’s hope the appointment materialises soon. She thinks it is probably vascular, but that a proper compression garment and seeing specialist nurses will help me, so it’s handy that I’ve got St. Giles (who are the same team she uses anyway) next week. If I do need lipo, she will provide it, but I have several other avenues to try first. 

We popped into town before going home, to take back two of the three coats I’d ordered from Zara, then had to get straight back home so Mommy could get to Grandma’s for 12. 

This afternoon is used up a second ball of wool on the scarf, so that’ll be done by the weekend, and I had a bit more Hugo petting time while listening to PM. I think we’re making progress. Henrietta, not so much.