Archives For birthday

The 23rd of January. 

Much better sleep last night. Think it was helped by having my dressing gown available as another layer. I’m now sleeping in a jumper and pyjama bottoms tucked into thermal socks, under the winter duvet, a blanket and a thick dressing gown. I am the coldest person in the world. 

This morning I did the big birthday blog post, and fitted in two Cats Protection calls before lunch. I also printed off some stuff I want to look over before my Anthony Nolan thing on Thursday, all about the decision to withdraw the funding.

After lunch, I went upstairs and spent a very productive hour putting together the wooden Little My and sorting out my sock drawer. I have too many that I simply do not wear and had forgotten I have, so they’re all going. Yet my drawer doesn’t seem any less full. 

Becky came round with some more birthday flowers for me – she is better than was described, although she was still careful not to touch or breathe on me, which I was grateful for. 

I think another early night tonight – Women’s Hospital in the morning. 

The 24th of January. 

Bleah, early start. Not as early as tomorrow though – we will be leaving the house at 7, so today will seem like a lie-in. Still, I’ll be having some fun drugs that may induce a nap. 

I began at the Women’s Hospital at 10, seeing Dr. Robinson in the menopause clinic. Having read my book for half an hour, I was called in by Elaine, her clinical nurse specialist, and saw her instead. There was nothing I really needed to see Dr. Robinson about specifically so I just gave her an update on my general condition, we talked about my vaginal surgery, and I’ll just carry on with my current management until I see her again in a year. 

Had to make a quick visit to haematology clinic to have my clotting checked for tomorrow, and Dr. Ferguson had asked that I get a tacrolimus level done so I had them look at that too. 

I had to be at the dental hospital for half one, so there was no point going home to come back. Instead, we went into town where I got Mommy and Daddy’s anniversary card and some thank you cards, then we went to Pret for lunch. I got a cheese, ham and mustard toastie which was WAY TOO MUSTARDY so I had my coffee and cookie instead. Stupid pathetic mouth. 

Mrs. Richards wasn’t in today, but I saw two of her team and they were both happy with my mouth is, so no injections today. 

The 21st & 22nd; Birthday!

January 23, 2017 — 4 Comments

The 21st of January. 

Birthday! Had to get up super early which I didn’t love but it was for a good reason. I had a pain au chocolat for breakfast, then opened some of my presents. I got a box of macarons from Macarons & More from Grandma, a book token and a big journal from the Hudsons, a cheque from Taid, and some Moomin paraphernalia from Mommy and Daddy – a t-shirt, a notepad and pencil, and a wooden Little My that I need to assemble.

Our train to London was at 10:10, so we set off shortly after breakfast, and we were taken to the train by a woman with a very laissez-faire attitude which I did not care for. I also didn’t like being in coach A because it means I can’t really talk to the people I’m travelling with, but there was at least a fun baby who smiled at me when I made faces at her. 

We didn’t have time to wait for the Euston team to turn up, so got the chair off the train and went to get a cab to the South Bank, where we met up with Christine. We then went on a twenty minute trek in the cold to Where the Pancakes Are, but their misleading website said they would have some free tables for walk-ins, but there was nothing, so I told the woman she had ruined my birthday and left feeling very disappointed. 

Very nearby was a Caravan restaurant where they had many tasty dishes available and nice coffee, so then I was greatly cheered. I had a flat white, then smoked salmon and scrambled eggs on toast with a mimosa. Christine gave me my presents which were two Harrods cronuts (salted caramel and Speculoos and the zebra one), then Daddy had a pudding and I had more coffee. 

We got a taxi back to the South Bank because I couldn’t bear to get that cold again, then we had an hour to kill in the Royal Festival Hall before our Moomins exhibition tour. I went to the shop and bought a little stuffed Moomin and a bowl. 

The tour was lots of fun and very informative – it’s narrated by Sandi Toksvig, along with the tour guide, which was a lovely surprise, and there were lots of original illustrations and stuff that I would never have seen otherwise. I also really liked that they didn’t just gloss over the fact that she was gay and are teaching the children going on this tour that it’s okay and not something to be ashamed of. I think we need to be reminding kids that whatever they are is okay at the moment. The only bad bit was that it was not easy in the wheelchair – we actually had to collapse it and I did a lot of crouching in each room. It would be fine in a manual one with big wheels but the spaces are too small and the floor too uneven for anything else. We coped, but other people might not. The tour guide was very helpful and apologetic, and she promised to feed it back. 

Our next stop was Konditor & Cook to pick up my birthday cake, then we headed to the BFI for hot beverages and a rest before we had to go back to Euston. I had a hot chocolate, and did a lot of coughing which worried me but I think it was just because of the temperature change between there and outside. 

We saw many people who’d been to the Women’s March, which I would have loved to have gone to, but if I had, I would have definitely got ill. It was so cold today, I couldn’t have coped, even in a mass of people. Wonderful, but not sensible for me. 

When it was time, we said goodbye to Christine, then back to Euston. I got some Pom Bears and New Scientist, and when we got home, it was time for cake!

The 22nd of January. 

So tired today. I had a really bad night, not getting to sleep until past one, which is way too late for me. I got up at half past nine, put on some very warm clothes and settled in to spend my morning writing about yesterday. 

This afternoon, I was about to start writing the post I would have done yesterday, but then Alison came over with my birthday presents (more wool and flowers) and there was some catching up to do. Becky is full of lurgy so can’t come round herself, so we got all her news by proxy. It sounds like the cold Grandma’s got and I do not want either of their germs. 

We put the flowers she brought me in a vase, and I was able to finish my writing, which didn’t take long. Tomorrow won’t be so quick as there was a lot to say about my birthday. Then I got to work on otter number 2. I’ve made everything except his ears and snout, so I’ll get him finished this evening. When I’m done, it’ll be an early night. I need a big sleep. 

The 19th of January. 

Another day of little activity. This morning I wrote up a post, then got somewhat engrossed in a game of Rollercoaster Tycoon. It’s back as an iPad game and I forgot how easy it is to get involved. Yeah, it’s no Theme Park World, but it’ll do. 

I spent my afternoon at Black Sheep. Cut and colour time, change for my birthday. The cut was just a trim, nothing drastic, but the colour has gone from white to pink and people; I think they are my favourite colours to be. Had a nice chat with James about his new business venture and that’s going very well which doesn’t surprise me at all. I got some more of The Man in the High Castle read, although I need to not leave it so long between reads as I have to keep reminding myself what’s happened. 

I got home about half past four, and we watched last night’s episode of Conviction, with which we are now finally up to date. Not especially productive but one can’t be all the time. 

Trump’s inauguration tomorrow. Think I might hide under my duvet until Saturday. 

The 20th of January. 

Trying to pretend today didn’t happen. Ignoring it. Just wishing for tomorrow, when it’s my birthday and hundreds of thousands of people march against a man who represents everything abhorrent in the world. 

I spent a lot of my day feeling quite uncomfortable and sad. I took a lot of selfies to document my new hair when the light was good, and blocked out current events by listening to podcasts. 

I thought I should at least do something constructive, so I’ve started crocheting a very cute pair of otters which will cheer me up when they’re done. 

There’s little else to say. Can today be finished now please?

The 9th of January. 

No joy from the postman, nor is there anything on myhealth to show any upcoming appointments. Maybe on Wednesday morning we’ll ring a clinical nurse specialist, or try Andrew Willis’ secretary. 

I’ve had a very quiet day. I did a blog post, then iced three lots of cupcakes for Mommy to take to Grandma’s for her birthday. I got very chocolatey, sticky fingers. 

We had lunch, then Mommy went to Grandma’s and I went upstairs to do some extra moisturising because my skin has become really dry with this flare. Discovered that I could peel all of the skin off my left big toe, which was the worst affected area. Classic GvHD. 

For the rest of the afternoon, I watched two episodes of The OA while crocheting my jumper, but I’ve had to stop because the skin between my thumb and forefinger is so dry and painful. I need some seriously heavy-duty hand cream. 

This evening I have to prepare answers to some questions I’m going to be asked tomorrow. I’m taking part in a radio programme for BBC World Service about death. It will be more uplifting than it sounds. 

The 10th of January. 

Definitely going to ring someone in the morning about my arm – the upper arm has grown to 29.5cm in circumference (compared to 24cm on the left). This morning I did some Cats Protection admin and had a look through the questions for the interview this evening. I don’t need to prepare much, it’s all stuff I can answer off the cuff. 

I had a follow-up appointment at the dental hospital at 1.40pm, so we went out straight after lunch. I saw one of Mrs. Richards’ registrars who I’ve not met before. I explained what I was doing with the steroid paste and my concerns about it not staying where it should. She said that I’m doing it right, but it probably won’t stick because it is on the tongue. She went to confer with Mrs. Richards, who came in to have a look and decided we should put a little bit of steroid in the two sites that are being problematic. More painful this time, right in the raw tip of my tongue and on the top. Thankfully the swelling has gone down enough for me to be able to speak. 

Afterwards, we went into town so I could stock up on facewipes and toothpaste, and we went to Lush in search of hand cream. Ended up talking to the perfect sales assistant who has a similar problem so knew exactly what to recommend. Got a tub of Helping Hands. Let’s hope it does the job!

I’ve had the pre-interview for tonight’s 9pm one (another one cropped up for BBC WM randomly), and at half six the chap is coming to record me for the one about death. In between then and now, I’ll eat dinner. 

The 7th of January. 

Fuck I am still so tired, despite having caught up on sleep I missed at New Year. I think it’s because I’m still coughing a lot, especially in the mornings – they are awful. I would really like to feel good again soon. 

This morning, I wrote up a blog post, went on a hunt for a place for us to eat on my birthday (settled on Where the Pancakes Are, yum), then did some Cats Protection training. There was a new fosterers induction so I went through it. I did learn something so it wasn’t a waste of time. 

After lunch, I rang a potential adopter and forwarded him to the appropriate fosterer so hoping that’s a good match when he goes to see the kitty tomorrow. 

The rest of my time has been spent finishing the blanket – I just need to sew the fin to the tail and it’ll be done! Rainbow mermaid tail. It’s quite snug – only to be worn with leggings or tights. Unless it stretches. 

Tonight I will have to give the kittens lots of hugs before they go tomorrow. I will miss their stupid, pretty, rascally faces. 

The 8th of January. 

Not feeling quite so shitty today. Everything is still the same, I’ve just had a reasonable amount of sleep. Praying the postman brings me an appointment for a venogram tomorrow. Or someone calls me. Please. 

Shaki came this morning to pick up the kittens so they could go to Exeter. They were very scrabbly and did not want to go, which I took to mean that they will miss me. It meant we had to get them into the carrier very quickly, so I didn’t really get to say a proper goodbye. Probably a good thing or I might have had a cry. 

When they were gone, I had to call a potential adopter, then I finished my blanket. I’m not sure when I’ll use it, but it’s fun. 

We took Grandma to Miller and Carter for lunch because it’s her birthday tomorrow. I had scallops and then brisket, which I managed to eat quite successfully. Mash and gravy were very handy aids to mastication. 

Since getting home, I have begun making a jumper. I’m using the pattern from the last jumper I made, but with quite a lot of alterations – it’ll be shorter, have a narrower body, longer and narrower sleeves, and a smaller neckline. Just a little bit different. 

The 1st of October. 

Even more pain tonight, but for a good reason – London trip for Christine’s birthday! Had to be awake ridiculously early so we could be at New Street for 8:40. I bought a Guardian and a Pumpkin Spice latte for the train because I am so very basic, and we sped down the country to Euston. 

Christine met us there, and we got a cab to Berner’s Tavern. Had it not been pissing it down, we would have walked/wheeled. Not today. The restaurant is within The London Edition Hotel and it is niiiiice. Very fancy. We were early for our reservation, so sat in the lobby, had coffee and gave Christine her presents. Just token things because we’re giving her a voucher for a fancy cooking lesson of her choosing, so I gave her a crocheted mini manatee and whale. She is going to add them to her crochet corner at work. 

We moved through to our table, and I already knew what I was having, so while everybody else perused the menu, I just looked at all the pictures on the walls and watched the other people coming in. I was the only one who went for a sweet brunch dish – buttermilk pancakes with Nutella and bananas (no hazelnuts, I had those omitted). They were so good, but I couldn’t quite finish them. Curse my tiny stomach. I had a curly kale, apple, cucumber and lime juice to go with it, so I had some of my five a day. Plus the banana of course. Then everybody else wanted pudding, which I most definitely did not, so I had a flat white while they ate their desserts. I’m fairly certain Liam Gallagher came in while we were there – I tried to take a stealthy photo but it didn’t work out very well. 

By the time we left, the rain had stopped, so we decided not to get a cab to the theatre, where we were seeing Ian McKellen and Patrick Stewart in No Man’s Land. On the way, we happened to pass a Crosstown Doughnuts, so I went in to buy a cinnamon scroll to eat later, and while in the queue, I petted a dog called Cherub who was a chihuahua/Japanese Chin cross and I was happy as a clam. 

We arrived at the Wyndham’s just after two, so we stashed the wheelchair and found our seats. We had an excellent view, but it is an old theatre, and the seats were not good for my back. For the most part, I managed to forget about the pain, because the play was so good. I have not seen any Pinter before, so being introduced to his work by two of the world’s greatest living actors was pretty cool. Obviously it was an incredible performance from all the four actors involved (there are two younger men as well), sometimes uncomfortable, sometimes funny (and some lines taking on new meaning in current context) and overall amazing. Standing ovation at the end, and I found myself welling up for no reason that I could think of. Maybe because I just felt so lucky to be there. 

From there, we went to Picturehouse for a drink and a nibble before returning to Euston. I just had a St. Clements because I still didn’t want any food, but I did get a Mini Egg cookie to take home and eat tomorrow. We talked about the play, found that Daddy had nodded off a couple of times but not missed too much, tried to work out why the man sitting in front of us had left in the interval, and before we knew it, it was time to get a taxi back to the station. Hailing one wasn’t yielding results, so I whipped out my phone, and within five minutes we were on our way home. 

We were sat in the quiet coach on the train, but I put my earphones in anyway, and listened to a Flatshare Slamdown podcast while wishing the journey faster so I could lie down. 

So much fun, but so much pain. 

The 2nd of October.  

I don’t feel quite as awful as I thought I would, but still not great. I think I was helped by the Zopiclone I took last night, and I made no effort to get out of bed before I wanted to. I was up by ten though, I’m not an animal. 

I threw on my huge green polo neck for the first time this year, and spent what was left of the morning curled up in the armchair, writing about yesterday. Long post ahoy. I did get it finished by the end of Sunday Brunch, and to take my mind off my stiffness, I had scrambled eggs on one of my rainbow bagels for lunch, then my Mini Egg cookie. It definitely helped. 

This afternoon, Mommy took Grandma to get her hearing aids adjusted, and while I waited for her to return (so we could watch last night’s Strictly), I have just sat and crocheted. It is not super interesting to write about but I’ve made a good amount of progress and I don’t think it’ll take much longer to finish. I do look forward to being able to reveal it after Christmas. 

Going to lie down on the floor again now. I am going to be doing lots of stretching until I see the pain team.

The 11th of June. 

It is Daddy’s birthday weekend, so we are having family bonding fun time. 

We have celebrated by going to the Cholmondeley Power and Speed Festival. We were leaving at eight, so I was the first one up, at six. I don’t know why I require two hours to be ready, I just do. The weather was supposed to be pretty grey all day, so I did not take my sunglasses. As soon as we arrived, I realised this had been a mistake. It was cloudy, but too bright for me, and I was struggling. Thankfully, Daddy had his clip-on sunglasses and they fitted on my specs too. Without them, I’m not sure what I would have done. Probably bought some sort of hideous hat with a large brim (not that hats with large brims are hideous, I look great in them, but this was not the sort of place where they would sell good hats). I was also grateful we’d brought the manual wheelchair, because although I do not love being pushed around, the motorised chair would not have coped with today’s terrain. There was a stand selling fancy off-roading chairs but they cost about £4000 and I am not in regular need so I don’t think that’ll be necessary. 

To be honest, there is not a great deal to say about what we saw. Lots of cars and motorbikes, some helicopters and a plane. Oh, and many retro ice cream vans. I had a pulled pork bun for lunch which was only a tiny bit spicy so my mouth could tolerate it, then we had some tiny fried funfair doughnuts and frankly I could have devoured the whole bag on my own. 

We left when we’d seem everything we wanted to, about half two, and on the way home it chucked it down, so I listened to Pillars by Josh Record and my sore eyes didn’t really matter anymore. 

The 12th of June. 

I came downstairs today with arms full of presents, and I interrupted Daddy’s viewing of the Grand Prix qualifying to give them to him. I bought him a Rubik’s Cross (like a cube but harder) which I suspect may never get scrambled, and a Vinyl Pop figure of Flash, the sloth from Zootropolis, who brought him much joy. 

My breakfast was very exciting because it was an enormous crumpet! I have wanted to try one for ages but we couldn’t find them in shops, and suddenly Tesco decided to stock them so I got to eat a crumpet as big as my face. Hooray!

I let the kittens have a run around while Christine and Mommy were very busy in the kitchen, ganache-ing Daddy’s cake and making delicious foods for us all. Grandma was collected from up the road to join us, and we were round the table by half past one for roasted venison, followed by our favourite, chocolate mousse. There was also rhubarb galette but I had no interest in that. 

Spent the afternoon watching the Queen’s celebrations, letting the food to down, while I crocheted a dumpling kitty (as it’s called in the pattern). We paused for birthday cake, chocolate and vanilla marble, then Daddy took Christine to the station so she could go home. 

This evening, I went to see Sara Pascoe at The Glee. I was sat on one of the side benches, along with all the other lone people. So cool. Obviously she was brilliant, even when a lady fainted in the middle of the first half. Lights went on, the line “Is there a doctor in the house?” was heard, and Sara told us some lovely stories about Lanzarote and did some impressions (once we we fairly sure the passed out woman was awake and okay).

I went to see her in the interval, any we talked about her book and the dramas of the first half (she was fine, awake and talking, paramedics in attendance), then she had to work out if she needed to cut stuff so I left her to do that. 

I’m still trying to compute the massacre in Orlando. Their laws won’t change, because the NRA is too powerful, and they love guns so much. Gay clubs are supposed to be a safe space, somewhere to escape the stares and prejudices of Straight White World, and that security has been shaken. But I am heartened by the queues of people wanting to give blood for the casualties. Most people are good.