Archives For chiro

The 6th of February. 

Late night, and I spent my morning writing about yesterday, then writing it up in a blog post. We had phoned the chiro to see if I could go on the list for any cancellations, and Sandra (the receptionist) rang to see if I wanted an appointment at three. I said yes please, very much so!

This afternoon, I spoke to the person who does appointments for the pain team, to see when I might expect mine. It turns out they only got a referral for me in December, which is the one I asked Charlie Craddock to make when I saw him in clinic. She confirmed that it was a referral from haematology, which means that Spencer Harland never even bothered. I have spent months waiting for an appointment which was never going to materialise had Charlie not got involved. It’s a twelve week wait, so I’m looking at March maybe? It should have happened in January. Fucking furious. 

Needless to say, Trine was quite shocked and appalled. She can’t do anything, but she could help sort out my angry ribcage. A serious amount of kneading and stretching was done, and she told me not to be surprised if I bruise. I don’t mind, so long as my bones stop grinding together.

The 7th of February. 

A most unproductive day. My skin is doing its occasional “have some spots in awkward places” thing and because I am blessed with good skin most of the time, this is completely unacceptable. I’m really very grateful I don’t have to go anywhere this week and worry about concealer. 

I’ve given up on the sock I was making because I got to a point where the pattern confounded me so I’ve unravelled it all. One day I will find a sock that I can make! I practised some other crochet and unravelled that too, typed a pattern up so I don’t have to get the magazine that it’s in out every time I want it, and put a recently adopted cat in the Cats Protection database. SUCH EXCITEMENT. 

My arm has actually gone up another centimetre. I now look at my left arm and think it looks almost withered when it is the normal size, it’s the right one that is insanely large. I really don’t know how much good a compression garment will do.

The 31st of January. 

Well, I’ve spoken to the person who books appointments for Andrew’s clinics, and she can’t do anything until she’s spoken to him. I don’t feel ultra-confident that she will do this very quickly but hopefully she’ll surprise me. Still no sign of deflation, and I am measuring it every day. 

I have been vastly unproductive today, apart from a blog post this morning. I was at the chiro this afternoon for the first time since before Christmas, and it was not fun, but very necessary. I know it’s bad when Trine winces upon touching my back, exclaiming about how it feels “solid”. She did lots of kneading and crunching and stretching, and I’m going back in two weeks. Hopefully I will not be in pain when I try to go to sleep tonight like I have been for the past week. 

Afterwards, we had a very quick trip to Sutton so I could get a box file for Cats Protection post-adoption forms, and while there bumped into June from Black Sheep, so had a tiny chat before she had to get back to work. 

Need to decide on my next crochet project. Mindless hooking is my meditation. 

The 1st of February.

I have been surprised! The lady I spoke to yesterday actually rang this morning – she has seen Andrew and he’d like me to go to his clinic tomorrow, which I can definitely do. Still exactly the same size. 

The rest of my day has not been so great. I needed oxygen after getting dressed, have been coughing all day, and my back still feels stiff and painful. Stupid garbage body. It would be nice to be able to complete basic tasks without feeling like I’ve just sprinted 100m. 

I had been considering a new crochet project, and as we are meeting Naomi for lunch tomorrow and it was her birthday the other day, I thought I would make her something. I had seen a pattern for a cute bunny, so I’ve spent my day making that. It is super adorable. 

The 31st of October. 

Yes, yes, Happy Halloween. I don’t really do Halloween since it became the day I went into hospital and didn’t leave for seven months. We have a pumpkin and a bag of sweets but that is very much it. 

This morning we had to take all the kittens to the vet for their post-op checks. Amy was resolutely not getting into her carrier, no matter how many treats we tried to tempt her in with. Physically, she is fine, so we decided to leave her here while we took the kittens. We have to get her to go back for second jabs next week so hopefully she might feel better about it then. 

We saw Shaki and Jen at the vet so Mommy talked to them about Amy’s issues and I took the kittens inside. It was the one who did their first jabs so that was a nice bit of continuity, and I am happy to say they’re all fine. 

Back home, I just had time to fill in the paperwork before Shari came to pick up Alfie and Angelica. She was super excited, had barely slept bless her. She signed where she needed to, then we got the kittens into their new (very fancy) carrier and sent them on their way! I have had a text to say that she has a purring Alfie already. 

This afternoon has been more cat-sitting and Black Mirror. I have managed to stroke Amy a bit while giving her treats, but I’m not sure that’ll last. I watched Men Against Fire today, and it was mildly terrifying in its pertinence to the current climate. 

The 1st of November.

I had an unusually busy morning. We have decided that my room really needed a tidy/clean, because it is so dusty in there, it makes me really cough- every morning and evening. However, it has to be a team effort, because with my lungs and back the way they are, I cannot physically do the tidying myself. Mommy brought down a bunch of crap for me to go through that she had already dusted, and I dealt with that while she vacuumed one of my bookcases. I cleared out most of it, kept some, and felt very productive before I’d even been to the chiro!

Trine did some work on my neck and upper back, particularly on my grindy ribcage/shoulderblade situation. She basically pulled them away from each other so it no longer feels gristly which is very pleasing. 

After lunch, I went to the gym, where the only bothersome thing was that the shoulder press is out of order, but my irritance was assuaged by the fact that I got to listen to the new Regina Spektor album which has been out for a month but I was unaware. Also, while I was waiting to be picked up, I made my Christmas playlist, so I have my festive tunes immediately to hand. The jumpers will come out soon.  

The 15th of September. 

A decidedly less great day. I woke up so excited and full of beans because today was the day I was finally going to get some answers about my back, but now I just feel tired and deflated. 

This morning I wrote about yesterday, then was at the chiro again. My neck needed some serious attention, and I promised I’d let Trine know how my appointment with Mr. Harland this afternoon went. 

We went home for about forty five minutes, then back out to The Spire to finally see the surgeon and get some answers. I had a little bit of time to read my book before he called me in, but I was very ready when he did. We talked a little bit about my background, then he showed us my scan pictures (I wish I’d taken photos now) and talked us through them. It is the discs that are causing my pain – the ones at the top are okay, but as you go down my spine, they get thinner and thinner, down to about a fifth of the size they should be, and are now just a couple of millimetres thick. At the very bottom, it looks like two of the vertebrae are on their way to fusing together, and what’s left of the discs is prolapsing. He’s never seen scans of a back like mine belonging to a 25 year old. Maybe a 50 year old. Of course. And it turns out, there’s no surgery he can do to fix it. I’m being referred to the pain team and their physio, who will hopefully have a solution for the agony. Maybe pills, maybe patches, maybe steroid injections into my spine, we’ll see. I’m disappointed because I was really hoping for something more immediate. It might get better when the bones fuse, I’ll definitely get stiffer, and that’s it. No real cause – not steroids, just a case of bad genes and bad luck. I’m an unfixable disaster. 

The 16th of September. 

This is not going to be an exciting entry. I had a really bad night; awake on and off since 3am. Maybe it was the incredibly noisy weather, I don’t know. It was not good. 

I emerged from my bedroom at half past eight, and spent my morning getting my phone ready to back up so such my new one was delivered I could get started setting it up. It did not go to plan. 

Everything ran rather slowly. I only started trying to back up the current phone after lunch, and I have been sat at the computer all afternoon. The first backup, during which I watched Bad Neighbours (I give it 3 stars), failed for some reason, then the second go took the entirety of 22 Jump Street (3.5 stars) and I thought that had failed too. However, when I went to try a third time, it appeared that a backup had been made and I could finally start on the new one!

My time has not been totally wasted – I have finished the snood I’ve been working on. It’s very long and so will keep my face warm and snuggly. 

Anyway. Back to work. I suspect I will be here all evening. 

The 29th of June. 

Last night it still took a while to fall asleep, but I didn’t wake up and need to drink a lot of water so that’s a plus. Still getting light-headed every time I have a big cough though; I have to force a pause to stop myself going too far. I need to make an appearance on Hallfield Day on Saturday, and right now I think it might be quite brief. 

This morning we had a fun job of looking through the litter tray to check what the kittens’ poos were like, because last night, one of them was upsetting. I spoke to Shaki to discuss handover, and I’m going to meet her at the vet on Friday afternoon so they can have their first jabs and go home with her. I don’t have a carrier big enough for all five but apparently one will be dropped off for us. 

This afternoon, I went upstairs to try to sort out some stuff to take with me on holiday. We’re going to Weymouth and I find it impossible to choose clothing because a) I like to have options and b) it’s Britain so who knows what the weather will do? I procrastinated by updating my iPod and finding powerpacks and camera batteries to charge. I listened to the second heat of the BBC Radio New Comedy Award which Nish hosted, and I really enjoyed everyone unlike the first heat. I wanted Olga Kokh to win, but she came runner up to Michael Odewale. I liked him too though, so I wasn’t as irritated as I might have been. I really ought to keep note of all the people I enjoy. 

The 30th of June. 

When people who aren’t used to it hear me coughing, they must think I have TB or something equally disastrous. I was at the chiro this morning and I couldn’t suppress the cough for that long, so I was offered water and then gin if that would help. Trine had a fair few things to work on, what with me having been doing this for a good three weeks now. She asked about my x-ray and I explained about the lack of reporting. I knew she could do one, they have the equipment, but unless the hospital say they’ve lost the original, she cannot expose me to more radiation. I have liver clinic relatively soon, and I think James will try to sort something out for me because he is a top fellow. We also had a chat about the referendum, as she is from Norway, so she couldn’t vote, but is married to a Brit and has been here for years. She despairs as much as I do. 

Speaking of which – Boris! Or no Boris, as it happens. This is really all going a bit too far now. Gove pitching in is bizarre too, the man who has previously said he has absolutely no interest in being the leader, doesn’t have the capacity, but suddenly he’s realised that actually, Boris is a nincompoop who you wouldn’t trust to run a bath, let alone the country, not to mention a coward and a liar. Let’s not even discuss Labour. 

The 4th of May. 

Just been playing with the kittens and the sun is out – it’s a great day. 

Woke up from a really odd dream about having seven hamsters in individual balls in a bag and I really needed to get home to let them out. I had a little bit of kitty time this morning, between writing up a blog post and going out to the hygienist. That all went very well – I am good at brushing and flossing twice a day so I have a good gum score, but I still had to have the abrasive flossing done. Shudder. 

This afternoon, I thought I might as well go to the gym because I didn’t need to supervise the kittens. Nothing upsetting happened today; people who irritate me only arrived by the time I had finished, so I had an excellent session. Christine rang while I was waiting for my lift, so I was telling her about the kittens and I think she’s a little bit jealous she isn’t here right now. She’s off to see The Maids tonight at Trafalgar Studios which ought to be good. 

When we got back, we let the kittens out for an explore and a play. Had a worry when Frieda got behind the tv cabinet and I thought she’d get stuck, but she found her way out. The path in has now been blocked up with cushions. Freddie had a wonderful time chasing his tail, and Freya was determined to get the ball. Oh, to be so free of care. 

The 5th of May. 

Well I feel better about my back and elbow but worse about some other things that I need to ring Dr. Robinson about. 

I was at the chiro this morning and I told Trine about all my aches and pains. My gristly ribs was just a misbehaving muscle so that was easy to fix, but she couldn’t do a great deal for the rest. She’s keen for me to get a bone density scan because I could have a vertebrae fracture, and she thinks my elbow feels “anatomically different” and there could be a bone spur? So I have to bring all this up with Andy on the 18th. 

This afternoon I’ve been watching Netflix and allowing the kittens to roam free around the room. They are so full of energy, running, jumping and climbing all over stuff. Lots of pretend hunting too – bushy tails galore! Eventually they wore themselves out and I had three sleepy kittens on my lap. Oh, and Freddie is another hair-eater. What is it with cats and my hair?

I’ve been waiting for two books from Amazon to arrive all day and as I started writing that sentence, they did! They said I could pay £5 extra for them to be delivered today (the hardback’s release date) or have free delivery in about ten days. I chose the free delivery, then got an email last night saying they were on their way! Feeling super smug. 

The 6th of April. 

I thought I might go to the gym this afternoon, but I woke up to a text from Becky asking if I wanted to catch up this afternoon, and to be honest that was going to be more fun, so the leggings went back in the wardrobe. 

After I’d written up my blog post this morning, I went back upstairs to the bathroom to have a bit of a pampering session because I haven’t done that for ages. Although my kind of pampering is really just a lot of nice moisturiser. So now I’m super soft!

After lunch, Mommy went to see Grandma, and I went to see Monica/await Becky’s arrival. When the doorbell rang, I had to remove the kitty from my lap to let her in, and we had a good long chat. She’s signed up to Cats Protection now so when the right cat/kitten comes along, she and James can have one or two. We talked about James’ upcoming birthday, the wedding they went to last week, and the progress on the house. Plus all the usual japes from school – thank god for the holidays!

The blinding sun is back, while it rains and is windy. This is just not on. 

The 7th of April. 

I had my second rubbish night in a row, being so hot I had to remove all my layers of blankets and duvet until I was comfortable enough to sleep. I didn’t drop off until past midnight both nights which is very late for me!

This morning I had a visit to the chiro to have Trine crunch my bones. My back needed some work, but it was mainly my neck that she had to knead – I had a large knot on the left side that was quite serious. She put some BioFreeze on afterwards so I wasn’t in too much pain. 

Quick trip into Sutton to buy many birthday/anniversary cards (April is busy), then home for lunch. I said hello to Monica because she was sad from being alone, then it was gym time. I didn’t have any stress at any other people today, and I had a great time listening to some 90s R’n’B. I’m pretty sure I can guarantee I was having the most fun in that place, with Honeyz, Eternal and En Vogue soundtracking my workout. 

I got my first Anthony Nolan job (job?) today. I’ll have to go down to London on the 1st and 6th of June to talk to students about transplant and answer their questions, and be filmed speaking about the impact Anthony Nolan have had.