Archives For chiropractor

The 15th of September. 

A decidedly less great day. I woke up so excited and full of beans because today was the day I was finally going to get some answers about my back, but now I just feel tired and deflated. 

This morning I wrote about yesterday, then was at the chiro again. My neck needed some serious attention, and I promised I’d let Trine know how my appointment with Mr. Harland this afternoon went. 

We went home for about forty five minutes, then back out to The Spire to finally see the surgeon and get some answers. I had a little bit of time to read my book before he called me in, but I was very ready when he did. We talked a little bit about my background, then he showed us my scan pictures (I wish I’d taken photos now) and talked us through them. It is the discs that are causing my pain – the ones at the top are okay, but as you go down my spine, they get thinner and thinner, down to about a fifth of the size they should be, and are now just a couple of millimetres thick. At the very bottom, it looks like two of the vertebrae are on their way to fusing together, and what’s left of the discs is prolapsing. He’s never seen scans of a back like mine belonging to a 25 year old. Maybe a 50 year old. Of course. And it turns out, there’s no surgery he can do to fix it. I’m being referred to the pain team and their physio, who will hopefully have a solution for the agony. Maybe pills, maybe patches, maybe steroid injections into my spine, we’ll see. I’m disappointed because I was really hoping for something more immediate. It might get better when the bones fuse, I’ll definitely get stiffer, and that’s it. No real cause – not steroids, just a case of bad genes and bad luck. I’m an unfixable disaster. 

The 16th of September. 

This is not going to be an exciting entry. I had a really bad night; awake on and off since 3am. Maybe it was the incredibly noisy weather, I don’t know. It was not good. 

I emerged from my bedroom at half past eight, and spent my morning getting my phone ready to back up so such my new one was delivered I could get started setting it up. It did not go to plan. 

Everything ran rather slowly. I only started trying to back up the current phone after lunch, and I have been sat at the computer all afternoon. The first backup, during which I watched Bad Neighbours (I give it 3 stars), failed for some reason, then the second go took the entirety of 22 Jump Street (3.5 stars) and I thought that had failed too. However, when I went to try a third time, it appeared that a backup had been made and I could finally start on the new one!

My time has not been totally wasted – I have finished the snood I’ve been working on. It’s very long and so will keep my face warm and snuggly. 

Anyway. Back to work. I suspect I will be here all evening. 

The 7th of September. 

Things are not so bad today. I was concerned this morning when I was still in pain every time I took a step, but this evening it is not so terrible. I have hope that tomorrow might be tolerable. 

Not much action to report. Mommy was out with Grandma most of the morning, taking her to Good Hope to have her eye measured for her second cataract operation. I wrote up a blog post and did some crocheting – I’m making a scarf with some of the nice wool I got last Christmas. I also occasionally poked my head in on Rufus who was being very chatty. It’s been a long time since we had a cat who miaowed this much. 

This afternoon, I’ve been planning what I’m going to say on Tuesday at the Anthony Nolan event I’m speaking at. I have to condense my diagnosis, treatment, transplants, life afterwards, Anthony Nolan’s part in the transplant and how I want the future to look into five minutes. I think I’ve got it down, I just need to see how long it takes when I say it out loud. 

We’ve let Rufus out of the cage. It has not made him any less talkative and he keeps scratching the armchair instead of the post but I’ve been allowed to stroke him so we’re making progress. 

The 8th of September. 

Going to Trine about my back was certainly the right call – I’ve got an appointment with Mr. Harland next Thursday. Hooray!

It’s okay today; bad when I expect it to be, but I can get out of a chair and walk around without wincing. That probably won’t be the case when I have my appointment because I’ll have been in my wheelchair pretty much all day Tuesday and it will hurt. I was in a chair most of this morning, but it was at Black Sheep so I was comfortable. I was getting my colour touched up and was there from 10.45 until 2. It’s amazing how time flies in there. I read a decent chunk of The Bone Clocks and caught up with Apple’s announcement from last night. 

When I got home, there was a message from the place Trine had referred me to, so I called them back and sorted out my appointment. Then they rang me back because they needed my NHS number so they can get my MRI results, so I had to run up the stairs to get a letter with it on, then I had to try to tell it to the chap while also getting my breath back. Not easy. I am so happy to know that soon we’ll have some answers. Then I ate my lunch and went to see Mr. Chatty Rufus. I made him purr! I tricked him by stroking behind his ears and he liked that. Didn’t want to be picked up though and I’ve got the plaster on my hand to prove it. Baby steps. 

The 5th of September. 

All the sitting at the table yesterday was a very poor decision. Getting out of bed this morning was excruciating, and it has only got worse as the day’s gone on. I am supposed to be at an Old Hallfieldians meeting tonight but I can barely walk so I’ve had to email my apologies. Every movement has to be carefully considered. 

I was up early for Shaki to arrive with Rufus. He is teeny-weeny! Mainly black with some white bits on his face and feet. He has smelled my hand and not hissed, but he has resolutely stayed hiding in a box all day, only emerging to eat in secret. I keep going in to say hi and see if he wants to say hello but he just sits very still and stares at me. Sigh. 

So, not moving much means crocheting. I think I’ve finished the blanket I’ve been doing, but now I look at it, I’m not sure it’s wide enough. The chevrons make it wrinkle up, so I need to squish it under some heavy books and see how I feel then. If I need to, I can unravel it all because I haven’t cut any ends. 

I have to get up early tomorrow too because Radio WM called and want to talk about Harry Potter again. I don’t really understand why but whatever, I’m available. Quarter past seven. 

The 6th of September. 

I didn’t think it was possible but today my back has actually been worse. Like when I take a step I can feel the force of my foot on the ground shooting up into my back and it’s agonising. We finally got through to Mr. Harland’s secretary and she couldn’t even find me on a waiting list for an appointment with him. This was very disheartening news. We decided to speak to Trine and see what she thought/recommended. She really didn’t like the sound of my appointment not even existing yet, and she knows everything that’s been happening, so she’s making a referral to him privately for me today. It’s going to cost some money but honestly this is intolerable and we at least need to know what’s going to happen and he might be able to do something about the pain until the matter is resolved. Really hoping his private secretary rings very soon. 

I’ve moved very little again, just occasionally going to see Rufus. He mews a lot but doesn’t want to be stroked so I say hello and sit for a while before leaving again. Think we’ll let him out tomorrow to explore the room a bit more. 

Oh and my early radio thing was fine. I was awake because I had a terrible night – every time I turned over, I felt this violent pain in my back. I thought I’d check out these Pottermore ebooks that were mentioned yesterday and it was a good thing I did because that was the main topic. Five minutes of chat and I was done. 

The 27th of July. 

Woke up at stupid time AGAIN. I am sure it is the fault of the Tramadol even though it is supposed Fri have the opposite effect if anything. I would mind less if it was actually doing anything for the pain but I am in just as much misery as before, even more so today because the tops of my legs hurt. For crying out loud. 

This morning I had an appointment at the Women’s to see a nurse about the problems I have being examined. Apparently, radiotherapy can cause a condition called vaginismus. Yeah, I’m going to talk about my vagina, if you are upset about that then skip to the next paragraph. People don’t talk about this enough, there is no information, so I’m doing it. It’s very painful and annoying but it can be treated, hooray! I have been prescribed these things called vaginal dilators. There are five sizes, the largest of which is apparently terrifying and I will never have to use it. I start with the smallest, obviously, and I have to use it every day until it is easy to insert, then move on to the next size up. I will require lots and lots of pillows, a distraction and a lock on my bedroom door. It’s going to be interesting. 

While I was seeing her, Mommy went to see the pharmacist in haematology clinic (they’re on the same site) to ask how long we should wait before deciding the Tramadol isn’t working, as the doctor had said it would take a few days. It turns out she didn’t know what she was talking about because I should have felt relief within 30-60 minutes of taking the first dose. Obviously, that has not happened. My consultant was not around to prescribe more or something stronger, so we are ringing the GP at 8am to get an appointment and make them write something up for me. I can’t carry on like this. 

Before going home, we went into town again to get my Pandora charm for Saturday because we won’t get another chance before then. We got the diagnosis anniversary one too, because it’s only a few weeks away anyway. They just have to stay in the boxes until the days themselves. 

After lunch, Mommy went to see Grandma, and I set about watching more episodes of Stranger Things (only three left!) and writing up a monster blog post from Saturday and Sunday. It took all afternoon with the uploading of the photos too, then when I’d finally got it posted, something malfunctioned and the entire thing got deleted. Many obscenities were uttered. 

I went to give the kittens a stroke to lower my blood pressure, then did it all over again. I have a problem with the cats now, because they are all my friends, it means that they all want to be petted simultaneously and I do not have enough hands! Nettie is the worst – if anyone is getting attention, she has to get involved. So jealous. 

The 28th of July. 

Yep, I am no longer sleeping past six am it seems. That’s fine, it just means I’ll get through more coffee and Netflix will definitely be value for money for a while. This morning, I finished off Stranger Things. It was so good

I got a GP appointment today for 11.40, because we rang up at 8. I had the chiro first, and obviously we talked about what’s going on with my back. It seems that they know Mr. Harland very well; they refer patients to each other. Trine said that if she were having spinal surgery, she would want him to do it. She also explained what actual surgery he might do, which is really good to know. One of the receptionists is training to be a doctor, and she was in surgery with him just the other week! I am feeling very confident about seeing him now. 

Straight to the GP who was on time, astonishingly. It was a lady I don’t know, and it didn’t go well. She hadn’t bothered to even look at my notes before seeing me. I got her to sort out the vaginal dilators, then we talked pain relief. She wouldn’t give me opiates. I have to take gabapentin in combination with the tramadol and regular paracetamol. I am not expecting it to work. I will try it and if/when it doesn’t work, I’m going back to hospital and getting Ram to write me up oxycontin or morphine. When we left I was so angry, I could just feel the tears in my face and couldn’t speak for rage. 

I calmed down after an hour at home, had lunch, and this afternoon my friend Anna came round. We had coffee and cake and lots of chat. Memories from school, of Miss Jackson, the deaths of our respective pets (R.I.P. Polo and Oscar), all the crap that’s going on with my body. She is a teacher, so we discussed that a lot. Secondary school, which I think is probably harder than primary. All those hormones. She said some very disturbing things about the way girls talk to each other, it sounds dreadful. They have no problem calling each other slags, they are of the opinion that if you are drunk or in a short skirt, you are asking to be raped. It is horrifying. They need Anna because they are not learning about feminism from anyone else. 

She left just after half four, and shortly after, a lady called Tracy arrived with her mother to view Nettie. Sheila rang me about it while I was in the changing room at the chiro, so I had to cut her off, but she emailed me the details and I set up the meeting. They are lovely people, very knowledgeable about cats and dogs – she has a boxer but she’s very timid and obviously wants something to mother. Nettie will absolutely fine with that; she is will be the alpha. Everyone was very well-behaved actually, But Nettie is who she wanted and Nettie wanted her. Perfect match. She’ll be picking her up in the morning!

Keep sharing and ask your friends to! Jeremy Hunt needs to see this.

The 29th of June. 

Last night it still took a while to fall asleep, but I didn’t wake up and need to drink a lot of water so that’s a plus. Still getting light-headed every time I have a big cough though; I have to force a pause to stop myself going too far. I need to make an appearance on Hallfield Day on Saturday, and right now I think it might be quite brief. 

This morning we had a fun job of looking through the litter tray to check what the kittens’ poos were like, because last night, one of them was upsetting. I spoke to Shaki to discuss handover, and I’m going to meet her at the vet on Friday afternoon so they can have their first jabs and go home with her. I don’t have a carrier big enough for all five but apparently one will be dropped off for us. 

This afternoon, I went upstairs to try to sort out some stuff to take with me on holiday. We’re going to Weymouth and I find it impossible to choose clothing because a) I like to have options and b) it’s Britain so who knows what the weather will do? I procrastinated by updating my iPod and finding powerpacks and camera batteries to charge. I listened to the second heat of the BBC Radio New Comedy Award which Nish hosted, and I really enjoyed everyone unlike the first heat. I wanted Olga Kokh to win, but she came runner up to Michael Odewale. I liked him too though, so I wasn’t as irritated as I might have been. I really ought to keep note of all the people I enjoy. 

The 30th of June. 

When people who aren’t used to it hear me coughing, they must think I have TB or something equally disastrous. I was at the chiro this morning and I couldn’t suppress the cough for that long, so I was offered water and then gin if that would help. Trine had a fair few things to work on, what with me having been doing this for a good three weeks now. She asked about my x-ray and I explained about the lack of reporting. I knew she could do one, they have the equipment, but unless the hospital say they’ve lost the original, she cannot expose me to more radiation. I have liver clinic relatively soon, and I think James will try to sort something out for me because he is a top fellow. We also had a chat about the referendum, as she is from Norway, so she couldn’t vote, but is married to a Brit and has been here for years. She despairs as much as I do. 

Speaking of which – Boris! Or no Boris, as it happens. This is really all going a bit too far now. Gove pitching in is bizarre too, the man who has previously said he has absolutely no interest in being the leader, doesn’t have the capacity, but suddenly he’s realised that actually, Boris is a nincompoop who you wouldn’t trust to run a bath, let alone the country, not to mention a coward and a liar. Let’s not even discuss Labour. 

The 4th of May. 

Just been playing with the kittens and the sun is out – it’s a great day. 

Woke up from a really odd dream about having seven hamsters in individual balls in a bag and I really needed to get home to let them out. I had a little bit of kitty time this morning, between writing up a blog post and going out to the hygienist. That all went very well – I am good at brushing and flossing twice a day so I have a good gum score, but I still had to have the abrasive flossing done. Shudder. 

This afternoon, I thought I might as well go to the gym because I didn’t need to supervise the kittens. Nothing upsetting happened today; people who irritate me only arrived by the time I had finished, so I had an excellent session. Christine rang while I was waiting for my lift, so I was telling her about the kittens and I think she’s a little bit jealous she isn’t here right now. She’s off to see The Maids tonight at Trafalgar Studios which ought to be good. 

When we got back, we let the kittens out for an explore and a play. Had a worry when Frieda got behind the tv cabinet and I thought she’d get stuck, but she found her way out. The path in has now been blocked up with cushions. Freddie had a wonderful time chasing his tail, and Freya was determined to get the ball. Oh, to be so free of care. 

The 5th of May. 

Well I feel better about my back and elbow but worse about some other things that I need to ring Dr. Robinson about. 

I was at the chiro this morning and I told Trine about all my aches and pains. My gristly ribs was just a misbehaving muscle so that was easy to fix, but she couldn’t do a great deal for the rest. She’s keen for me to get a bone density scan because I could have a vertebrae fracture, and she thinks my elbow feels “anatomically different” and there could be a bone spur? So I have to bring all this up with Andy on the 18th. 

This afternoon I’ve been watching Netflix and allowing the kittens to roam free around the room. They are so full of energy, running, jumping and climbing all over stuff. Lots of pretend hunting too – bushy tails galore! Eventually they wore themselves out and I had three sleepy kittens on my lap. Oh, and Freddie is another hair-eater. What is it with cats and my hair?

I’ve been waiting for two books from Amazon to arrive all day and as I started writing that sentence, they did! They said I could pay £5 extra for them to be delivered today (the hardback’s release date) or have free delivery in about ten days. I chose the free delivery, then got an email last night saying they were on their way! Feeling super smug. 

The 5th of January. 

Last night was the first time in at least a week that I had some proper sleep without the aid of drugs. Not all night, by any means, but Mommy had to wake me up at ten, which has only happened before when I’ve had Zopiclone. I don’t think it means I’m getting better; I’m not expecting it to happen again tonight. We shall see!

My only sale purchase was delivered today – a polo neck jumper from Superdry. They look very snuggly but are usually about £60, and in the sale it was less than half price, so I’ve worn that and been very warm. 

This afternoon I’ve done a small amount of crocheting, written up a blog post, and watched Spiderman 2, the Toby Maguire one. It’s a really bad film! Quite glad I didn’t pay money to see that, although at the time I imagine I would’ve enjoyed it. Why am I writing about this? Sorry, not interesting at all. 

I’ve got the chiro tomorrow which is going to be massively painful but I’m hoping she can do something about my ribs. They are so sore – aggravated by coughing and no way of stopping that. It would be tolerable if I could have ibuprofen but I’m not allowed to take it. Ice packs can only do so much. 

The 6th of January. 

Well I had some sleep again! Really very shocked by this but obviously pleased. Won’t take it for granted though – I’m still not expecting it again tonight. 

We had a visit from Becky and James’ plumber who needed the key, after he’d gone next door, been told she was in hospital, and rung Alison to tell her. She then rang here, thinking I’d gone in, but in fact it was all just a hilarious misunderstanding. Next, a trip to the chiropractor! Oh, how I have needed this. My neck needed a huge crunch, the rib that was bad before needed work, then the one on the left side needed much manipulation. Trine described it as “gristly” as she massaged the muscle, feeling it tense up every time I coughed  

We went into Sutton afterwards to get birthday cards for Grandma and other such exciting things. I sound like Tiny Tim when I talk, which I think people see as quite pitiful, but I start coughing and they look at me as if I have the plague. I did my best not to touch anything so I haven’t spread my germs about too much. 

We had lots of fun with the oxygen company today – they delivered the wrong cylinders yesterday, and brought the wrong thing again today when they were supposed to be rectifying their mistake! Mommy rang them again and they were as confused as us. The phone calls are recorded, so they listened back to the calls and found they’d actually written it down incorrectly. So they’ll be back again tomorrow and it will all be fine.