Archives For christine

The 4th of March.

The thaw has begun, thank god. I would like to go out in the daytime this week, not covered in eight thousand layers.

No crochet that. This morning, I watched Sunday Brunch while I wrote up a blog post, and sorted out Mommy’s Mother’s Day card and present. I don’t think it’s been this close to her birthday before.

This afternoon, I made it my mission to finish Gnomon. And I have! I had just over two hundred pages to go, and I needed to get to the end. It’s incredibly current, and so complicated – I almost now need a digested version of it, or to listen to people cleverer thank me talk about it.

I went to sit with Mac, and we were watching Christine (the film about the news anchor, not the homicidal car), but then he did a poo and jumped on my lap with poo on his arms which was very upsetting, so I left.

Daddy is off this week, so we can go to the cinema and hopefully there will be NO CHILDREN.

The 5th of March.

Outside! Normal service has resumed. Here, anyway. Any remaining snow is in dirty, sludgy piles dotted around the streets.

This morning, I phoned Christine who does Andrew’s clinics, but they have not had any instructions from him yet, so no appointment can be made. I’m thinking he hasn’t had the report from the radiology team? I don’t know. I also tried to get hold of the booking coordinator for steroid injections, but had to leave a message. Sigh. And I had a chat with Laura from Free Radio to discuss the opt-out organ donation system consultation. Obviously I am in favour, but rates only really increase is it’s a hard opt-out system, meaning families don’t get a say.

After lunch, Daddy and I went to see Lady Bird. We weren’t quite the only ones there – three other people joined us. It is a lovely film – warm and funny and smart and sad. If made me want to hug Mommy when I got home. It took me back to fifteen and able-bodied, going to parties, getting high and listening to Dave Matthews Band. I miss that.

The 2nd of March.

Snow has been constant since lunchtime. Too cold to function.

Obviously, I have not been anywhere. I wrote up a blog post, and then I got started on Nish’s boxer dog while binge-watching Bones. Thirty episodes had built up on the box so it was my duty to make a dent.

Christine has come home because we’re supposed to be going to the indoor athletics tomorrow, although I’m not sure what the weather will have to say about that. I do not feel particularly enthusiastic about braving the cold. Anyway – she got to Euston 45 minutes early because there were no problems then, and was able to get on any train to get here. This proved useful and getting here from Birmingham was tricky because of local trains, but she eventually arrived about one. She then spent the afternoon at the hairdresser while Daddy watched a film with Mac, and I sat here and watched the snow fall.

The 3rd of March.

I did not go to the athletics. Multiple reasons – didn’t fancy breathing the freezing air; driving was going to be perilous, so the train was the chosen transport and I couldn’t have got to the arena in my chair in the snow.

I had a very cosy morning, with some dodgy socks and a fuzzy jumper on, thermals underneath. I made the ears and tail of the boxer dog, and made sure Mac was happy and not too cold.

Mommy and Christine got back just before three, and we watched Masterchef while I put the dog together. Her face has been fiddly as fuck to make because of loads of colour changes, so I won’t be making another one.

They brought back a pizza some, so tonight we are having home-made pizzas for dinner for the first time. It is an experiment.

The 1st of January.

Happy New Year!

I am very warm and very sleepy. Staying up until half past one and only getting eight hours of sleep is not good for me. I know, eight hours, woe is me. I have had a small coffee so that should keep me going until bedtime.

It’s been a very sedate New Year’s Day. This morning I wrote my last blog post of 2017; will have to retire that diary to the collection in my bedroom. I’m annoyed that Moleskine have stopped doing The Little Prince stuff but this will do. I also finished the shawl! Finally. I will not be using that wool again – it’s so full of static. Then I went to give the kittens some individual cuddletime, especially Amber as she didn’t get any yesterday.

Grandma came for lunch, and we had duck and goose, not that I could tell the difference between the two. Both tasty though. And leftover puddings for pudding, because we were building up a larder.

This afternoon has been film-watching and trying not to overheat. I had some good news this morning – enough tickets to Still Standing have sold to pay the venue! Now, as long as the insurance is paid off, all extra sales go to Anthony Nolan. Got to have a chat with them about some press.

The 2nd of January.

My ribcage hurts where I had the chest drain, has done all day. I don’t know why – my breathing is no worse than normal, and I haven’t made any weird movements. I’m at the chiro tomorrow, so maybe Trine will be able to help.

Said goodbye to Christine this morning because Daddy was driving her back to Twickenham, then Mommy and I spent until lunchtime inventorying my wool. Went through both boxes and worked out what belongs together, by brand, colour, weight etc. It took ages! But now I know what I have and I can decide what to use for projects I’ve already got in mind.

This afternoon, I started reading Gnomon, and sat with the kittens so they could roam around while I watched the first two episodes of How to Get Away with Murder season three. I know I’m very behind but it’s only just come on Netflix. Amber and I are becoming quite good friends now. Ava not so much, she still runs away a lot. Will have to bribe her with treats.

The 19th of December.

Oh lord I am so tired. I got home about half eleven last night (the gig was much fun), and it took me hours to fall asleep, then I woke up several times so the sleep I did have was not of good quality. I am going to have Zopiclone tonight. Stupid lack of sleep.

So I have been really sleepy all day. I did a blog post this morning, and rummaged through my back up hard drives to find the original photos that were taken during my first stem cell transplant. Ten years ago today, I had my first cells from Christine. All the versions of the photos on my phone were rubbish quality, and I knew there had to be a better one somewhere.

Once I’d found it, I spent a lot of my afternoon trying to compose a tweet to send out to promote Still Standing. It took a stupidly long time for something so insignificant. I’ll probably do the same again on Thursday. Maybe I’ll be better at it then because my brain won’t be mush from not sleeping.

I can’t wait to go to bed.

The 20th of December.

Zopiclone worked. Nice big sleep, thankfully. I could not have coped with the wrapping pain if I was exhausted.

This morning I brought all the presents downstairs and wrote all my Christmas cards. Tidied up the living room table so we can fit food on there. Not much else for me to do until after lunch, really!

Mommy went out to Grandma’s then to pick up Christine from the station. I took everything into the dining room, made myself a peppermint chocolate drinking fudge, put The Polar Express on and it was wrapping time! I thought it would be best if I wrapped everything in the paper first, then did the ribbon on them all after, otherwise I might not have been done by the time Mommy and Christine got back. My paper was stupid and didn’t want to stick together, so I was glad I’d bought string as well as ribbon. Maybe next year I will not do glitter paper.

When The Polar Express finished, I watched a funny little film on Netflix called Pottersville. It was quite amusing, kept me entertained while I covered everything in glitter.

Now I am finished and my back is excruciating but I am done. It was worth it.

The 25th of November.

I think this will be a short one – not a huge amount of activity to report.

The festive period is certainly upon us! This morning, I wrote up a blog post, and got an email from Biscuiteers saying my advent calendar biscuits were going to be delivered today. I had actually changed the delivery date to Tuesday, but today is also fine. Now I have my biscuits and coffee, all I need is for the Mach countdown to begin and it’ll really be Christmas!

I also received the wool and one of the presents I ordered yesterday, so I can make all the gifts! The rest of my day was taken up doing different crochet things – mainly the snood, but while Mommy was out, I started on a present for her. Will have to take every opportunity I have because she, like me, is here all the time!

Eeee going to be so Christmassy!

The 26th of November.

No Sunday Brunch today. I can’t bear Fearne Cotton, no matter how much I enjoy Richard Osman. Instead, I watched a bunch of Bones episodes while working on the snood. Grandma came towards the end of the morning, so I switched to some more appropriate viewing for her. Bit of sport.

We had some tasty beef for lunch, then lemon posset with shortbread because we are fancy. I then went upstairs to lie down for some back rest with Gardener’s Question Time, but I couldn’t stay up there for too long because I had to be back downstairs when Christine left. I think she will be glad to not have to have me pulling threads through on her jeans that the kittens have caught any more.

Grandma left about six, then I had a cinnabon for dinner before watching Susan get eliminated from Strictly. Sob!

The 23rd of November.

Much quieter day today.

This morning, I tried Dr. Blaney’s secretary, but she wasn’t there, and only works Monday to Thursday so I’ll have to try again next week. Sigh. Then we had an interesting time with a Zara delivery – I’d ordered a couple of dresses, and I got an email saying my Hermes delivery person had left my order in a safe place. I checked the porch but there was nothing there, and no card had been put through our letterbox.

I phoned Zara to see if they could talk to Hermes, but first we had to go through everything that had or hadn’t happened multiple times. Then he went into another system where it said my parcel was left in a blue bin, but there aren’t any in the vicinity of my house. Once the Zara chap was satisfied I didn’t have it, he emailed Hermes and will get back to me when they reply. However, it has since transpired that it was in a blue bin, just on a completely different road. It clearly wasn’t our usual Hermes man, and the substitute is a moron.

After lunch was crochet, no Riverdale because it’s Thanksgiving, so I started watching The Punisher instead. I think I need some back story; will do some Wikipedia research. And we’ve just been doing the kittens’ panacur again – they have remembered how much they hate it and my hands have suffered because of it.

Ed Gamble tonight!

The 24th of November.

I am very tired today. I wasn’t out too late at Ed Gamble, who was very good, but maybe my sleep quality wasn’t very good? Bleah.

So I actually started doing some Christmas shopping this morning. I looked at many of the Black Friday offers but there wasn’t anything that really jumped out at me. I did get some things that were cheaper than they might normally have been, but nothing ridiculous. It took me ages to find anything that I really want to give to anyone – there are lots of things to buy, but that doesn’t mean they’re good presents.

This afternoon, I was on the hunt for more wool for crocheted gifts because if I can’t find stuff to buy, I will make people things I think they will like. Once I’d got that sorted, I started on another snood, but had barely got going when Tom and Ann came to visit the kittens. It seems only reasonable as they can’t have them until Clarrie/Molly gains more weight. They didn’t stay very long, so then I got back to my snood, and Daddy came home with Christine!

Family fun time weekend!

The 5th of August.

Oh god such a long day. I am in so much pain. I got up at ten to five because we had to be at New Street for twenty to seven, and that is too early for a Saturday. When we got there, we bought coffee and breakfast pastries, then sat in the assistance office until it was train time.

Arriving at Euston, we did not have time to wait for even five minutes for the ramp, so we just sorted ourselves out. Bought lunch from Pret, and a coffee to put in the thermos for later (Olympic Park coffee is vile). Then we bombed down the road to St. Pancras and got on the javelin to Stratford. I got the last seat, by sheer dumb luck. Thankful, because I can’t stand for six minutes. Upon arrival, we had to join the queue of wheelchairs for the lift, then had to navigate Westfield, trying to find a way to get to the corner of John Lewis where we were meeting Christine. The first lift was broken, and marshals didn’t know where we should go, so we ended up going all the way to the other end of the mall to find a working lift, then doubled back so we could finally get on the correct route and meet Christine. Found her, then joined the crowds heading for the Olympic Stadium. Got settled in our seats, in the disabled position just above the start line, so we had a great view of that, plus some of the heptathlon events that were going on.

For most of the morning, my eyes were killing me, and there was a freezing cold wind which I couldn’t seem to find respite from from, despite even putting up an umbrella to use as a windbreak, so I couldn’t enjoy myself as fully as I might have. I saw a lot through my camera lens, between drowning my eyes in drops and screwing them up tight. At one point, I wanted to drink the coffee we’d brought in, so I poured some out only to find it tasted really weird. I drank a bit more, then remembered that the woman behind us at Pret had ordered a soy milk cappuccino. We must have got that. No wonder it tasted so disgusting.

We saw lots of events – no finals, just heats, but it’s always fun to shout at people to run faster, and groan with everybody in the crowd when someone knocks the high jump bar down. It was so sad when KJT hit the bar on her final attempt, and we all watched her curl up in a ball on the mat, poor thing. We all felt it.

The weather made things interesting; we had several showers, and as we left, some huge rumbles of thunder. I’d been covered in the giant wheelchair poncho, so didn’t get wet when the rain came. We weren’t herded the way we were after the Anniversary Games, so we got back to Stratford much quicker than we expected. Started talking to a couple on the platform who also had a wheelchair, to find that their son is having a stem cell transplant this week! Tried to share the successes of my life to give them hope. No liver failure chat for first-timers.

We arrived at St. Pancras just after two, so had just over an hour before we needed to be at Euston. I suggested we go to Origin to have an actual nice coffee, so that took up a good half an hour, then we scooted down the rest of the round.

We picked up some reading material for the train, plus some Pom Bears, then off to the assistance office again! We’d barely sat down before we were sent to the platform, despite our train not departing for nearly thirty five minutes. We were told the chap would meet us with the ramp, so we waited out in the freezing wind for him to appear. After ten minutes, there was no one, so I rang to check the situation, and she said he was coming. We waited another ten minutes, and still nothing, so we hauled the chair on to the train, only to find the wheelchair position floor was covered in food and some other crap. I didn’t really feel like covering my wheels in that, so we folded up the chair and I sat next to Mommy. This turned out to be a smart move, because a couple got on the train with an old Westie who sat under the chair in front of me so I had a dog friend for the journey home! Then we picked up some pizzas for dinner and have about an hour in the house before I have to go out again for Regina Spektor tonight. Busy busy busy.

The 6th of August.

So. Tired. So. Much. Pain.

Regina Spektor was beautiful last night. She was, frustratingly, half an hour late on, but was so charming and brilliant, I forgave her. I never thought I’d hear Us live and it was so gorgeous. She is one of few singers who are just as good as their record if not better in person. And I was spotted by Hayley from school so we caught up afterwards which was delightful.

I am very tired now though. I got to bed after midnight, and slept until ten. I’ll still be having an early night tonight I think. Plus my back hurts all over, and my neck, and my bum. Having zero fat on there means sitting on non-padded seats all day leaves me in much, much pain.

This morning, once I was actually up, I wrote about yesterday, which was a long one. I’ll have lots of blog work to do tomorrow – got to get the photos off my camera before I do a post as well.

After lunch, I crocheted. Just crocheted squares for Michaela’s baby blanket and watched the new Orphan Black, which made me do a small cry.

We wear our scarves just like a noose
But not ’cause we want eternal sleep
And though our parts are slightly used
New ones are slave labour you can keep

We’re living in a den of thieves
Rummaging for answers in the pages
We’re living in a den of thieves
And it’s contagious