Archives For cinema

The 28th of October.

Pointless is being very distracting tonight while I’m trying to write. Alma from Corrie is on it and I can only wonder if she is still the enormous alcoholic she was when she did panto at the Hippodrome. 

This morning I got very annoyed at the Vue website because I thought they weren’t accepting my disabled person card, but in fact it expired a couple of weeks ago. Then I was annoyed at the CEA people because they didn’t email to remind me like they did last year. Pah!

I was booking tickets for Daddy and I to go and see Thor: Ragnarok. I am finally able to go to the cinema and not irritate everyone with my cough. When we arrived, there was a car left in the road of the car park (not in a space) with children in the back but no adults to be seen. Curious. Inside, we discovered they are selling pizza now. You can take a while pizza in with you. This makes me furious. I don’t think it is acceptable at all. I was then amazed at the family of six in front of us who had spent nearly £110 on tickets alone, plus snacks! If I had four kids I would not think it was worth £18 each to take them to a film they’ll most likely forget. 

Still, I had a thoroughly enjoyable time. Korg is my favourite and I am very into evil Cate Blanchett. What a queen. Also shirtless Chris Hemsworth is nice. 

The 29th of October. 

It’s been a day of new kittens and Stranger Things. I woke up shortly after nine from a rubbish night’s sleep, and decided to get on with watching the rest of Stranger Things pretty much straight away. Sunday Brunch had no interesting guests, and I had six episodes left, so I thought I’d see the first of them before Shaki was due to arrive at eleven. 

She appeared on time with three tiny fluffballs. Thankfully they’re not so small that they can squeeze through the bars of the cage, but they’re not far off. They love to scream. Well, the two boys do. Oh, how they love to scream. They’re absolutely fine, just really vocal. Chester, the ginger one, purrs as well as screams. Mostly what they’ve done today is sleep. They’ll do a lot of that. We can’t let them run around on the carpet yet because they need to be flea sprayed, then 48 hours later, they can explore. 

My afternoon consisted of the rest of Stranger Things while grabbing at my face in stress. Those kids are so great. The Duffer brothers have really done am incredible job; nothing feels labored or gratuitous, it’s a bit scary but not horrifying, and in all of the tension there are still moments of tenderness and humour. Next series please!

The 25th of August. 

Ugh I had a horrible night. First, I had a dream that the muscles in my thighs had atrophied, and I was trying to walk around a supermarket with a trolley, but I couldn’t lift my legs. Then, I had another dream that I ate some sort of bud that would kill me, then I was crawling around repeating “Mommy, I ate a flower” when Gollum from Lord of the Rings started coming toward me, scrambling in a bridge position, and I woke myself up trying to kick it away. I had to listen to a lot of podcast to stop myself falling back into the same dream. 

I was glad to see daylight. Hopefully tonight will be better. This morning, I did a blog post, and went to see the kitties. I let Harvey out briefly, but then Hugo wanted to come out too and I can’t have them both running around while on my own. They can do that this evening when there are two of us there. 

I have been crocheting all afternoon – another doily. Going to be a big one. I decided I would start watching Doctor Foster on Netflix, as I want to see the second series and I only saw bits of the first, so I saw the first two episodes of that. I’m enjoying it – I cannot wait for the dinner party. 

The 26th of August. 

What a fucking garbage night. Again. It felt like I barely slept at all, although I must have done. I think I will go to bed early tonight, but that rarely works. I must have looked exhausted, because the chap at the cinema gave me a large coffee without me asking for it. 

This morning, once I had got myself feeling vaguely half-human, I said hi to the cats and then sat down with the crochet. I managed a couple of rounds, occasionally looking up at Saturday Kitchen, then stopped so I could concentrate on Only Connect. Can’t do missing vowels if I’m not paying attention. 

After lunch, Daddy and I went to see Logan Lucky. It’s a huge amount of fun – I was thrilled from the moment Parks and Rec’s Jerry appeared as Channing Tatum’s boss. I was in. Daniel Craig is having a lovely time being a bomb-making prisoner, and Hillary Swank turns up for a jolly. If you want a good, ridiculous heist movie, it’s for you. 

The 30th of June. 

Busy busy day. I had an appointment at the Women’s Hospital with Sue, the specialist nurse, at ten. I was early and she called me in straight away. It was pretty brief – I told her about my appointment with Mr. Titley, and she’s going to chase up what’s going on with that because he wrote to Miss Byrom at the start of May, so maybe I’ll hear something relatively soon. She also asked what things were like on the relationship front and I laughed. Apparently there are lots of understanding people out there. I need to find the most understanding person in the world

Went into town before going home, where I got some make up from NYX, some pants from John Lewis, and a jacket from the French Connection sale that I fell in love with and can wear with many things, with or without my fat arm!

This afternoon, Daddy and I went to see Despicable Me 3. Despite it being 2.40pm on a Friday, there were loads of children there? I don’t understand why they weren’t at school – they were of age. Grr. The film was great fun; it is exactly what you would hope for and expect from it. Lucky the unicorn-goat is adorable. 

Back at home, I tried to play with the kittens, but it didn’t really work because Bree is really lazy and Bailey and Betsy cheat. 

The 1st of July. 

Oooh I am crashing. This morning, I went to the Custard Factory for the Birmingham Coffee Festival. I can’t remember the last time I was in Digbeth. Anyway. I was glad I got there relatively early, because I was able to do a lap of the stands before it became so busy that I was ramming ankles. My first purchase was a box of five bags of beans plus some offers for £12. Then I went over to the Java Lounge stand where they were teaching latte art. I have tried so many times at home and it never works. But today the chap showed me and I actually did a half-passable rosetta! They were also giving out free flat whites, bonus! Next, I went to look at 200° where I had a very nice chat with the manager. She gave me a nitro which which was really good, so sweet and creamy without any milk. She also gave me some vouchers for free coffee and I need to book myself in for a class. 

Time for lunch, so I got myself a cheese and spinach crêpe, then back to coffee. I bought beans from Quarter Horse, Urban Social and Urban Espresso, and two doughnuts from Donut Day Dream. Deep-fried brioche, mmm. That was me pretty much done, then I found out my chair couldn’t mount the ridge to leave, so people had to help me. 

Back home, I ate one of my doughnuts while watching the latest Nashville (no crying today), then I went to sit with the floofs. Bree is going to get fat if her adopter is not careful because she just can’t be arsed to do anything. 

The 10th of June.

Is been a weird sort of day. Back home, back in my own bed (which was beautiful), but outside of our lives, the world is imploding. Part of me wants to avoid the news until it is all sorted but part wants to get up and fight for what is right because five more years of what we have been enduring is a death sentence , and that is not an exaggeration.

I might be feeling buoyed because I have just watched Wonder Woman. I am ready to kick the asses of a thousand men. We went to a 2.20 screening, and about five minutes before we were due to leave, Mommy got a phone call from Grandma’s home because she had fallen (her dining chair broke), she’d hit her head and was refusing medical treatment, so she had to go down there to convince her otherwise.

There was nothing Daddy and I could do, so we went to the film. There were some pretty terrible people in the screen (who takes a seven year old to a 12A?) so I had to ignore them but that wasn’t too difficult. It is a decent film – there are some holes and I had major issues with continuity and Ares just doing the whole “villain explaining his plan” – but I still enjoyed Gal Gadot being super badass. I liked the beginning part the best though. All the women being strong and awesome. More of this all the time! Show little girls we can fight.

Grandma has gone to hospital and is having a CT. I think she is going to be okay.

The 11th of June.

My bed is so great. I won’t mention it again (until my next admission). I have just missed it a lot.

This morning was Sunday Brunch and apparently the finale of season 2 of Scream, although there is another one left on Netflix? I don’t really understand. However, I feel quite smug as I had thought that Kieran might be the killer since he showed up at the funfair (sorry if that’s a spoiler but oh well). He was too quick.

Grandma came to join us for lunch – she is fine, just a bit bruised. I say “lunch”, but it wasn’t until five. She sat in the back room and watched the tennis (good thing we have no kitties at the moment), and I did much crocheting. I’m making another bear, this time for Jodie who was in the year below me at school and is expecting her first child.

Got my hair washed, and I had a really nice lie down with traditional Sunday afternoon radio. I also achieved quite a milestone – I climbed the stairs without oxygen and didn’t feel like I was going to die! Well done me. Maybe there is some hope for the rest of this year.

The 30th of March. 

Fairly acceptable breathing today. I’m on 0.5 litres of oxygen. Normal air is not quite oxygenated enough for me. 

I at least had a better sleep, and this morning I got a blog post done and not much else. I had another appointment (which I had entirely forgotten about) at the Women’s at half past one, so we ate our lunches and got on our way. Thankfully no hellish traffic jams today, but there was nowhere to park so Mommy pulled over, I drove off in my chair with the oxygen on the back and she found somewhere to put the car. 

I was seeing Miss Byrom for a follow-up after the procedure I had in November, and Sue, the sexual health nurse, was there too. I said that I thought it had been successful, but only up to a point. She examined me, using a very small speculum and a very long swab, and it turns out part of me has sealed up again. JOY. It’s to do with a thing I have called lichen planus and it’s just another stupid thing that I have that has no cause. I have to carry on with the dilators, and she’s going to talk to a plastic surgeon about me to see if he has any ideas. 

Too many things wrong with me right now. I feel like a collection of conditions rather than a human woman. 

The 31st of March. 

Today was the most normal I have felt in a while. My sats were good enough for me to not need extra oxygen for most of the day. I’m on it now, but still, it’s been a good day. 

This morning, I didn’t fancy watching Eamonn and Ruth be unbearable, so I caught up on The Magicians and did some mindless crocheting. After this project, I really need to make something for nurse Jenny’s baby and for James. I also had issues with Vue and their stupid website trying to book tickets for Ghost in the Shell. 

It’s an odd sort of film. I kind of get the premise and I found it interesting, but I didn’t really see the point. Having done some research, I think it’s too large a story and world to cram into a 100 minute film. One thing I did like was the choice Scarlett Johansson made to lead her walk with her head. It was curious because the company in the film go to so much effort to make Major appear human, but her walk was so unwomanly. Hm. 

Tonight I am going out to The Glee to see Fin Taylor and Mat Ewins, but there is no way I am climbing the stairs, so I’m going in the chair and have arranged for someone to let me up in the lift. Then tomorrow I will feel terrible, I suspect. 

The 18th of March. 

I have an oxygen-induced headache because I’ve had to use it much more today. I don’t know why, it’s not like I slept badly or took any lorazepam, just the breathing has been worse today. I could tell when I was getting dressed that I was struggling, and I’ve had to have it on for most of the day, even when Daddy and I went to see Beauty and the Beast. 

It was the first time I have been in a public place that is not a hospital while wearing specs. It was a moment I have been dreading – being in a wheelchair and wearing oxygen is, in my mind, the image of a visibly sick person and I never saw myself as that. Even when my breathing has been bad, I’ve never been able to cope with the idea of myself going out with oxygen. I suppose it is the immediate sense of pity it inspires that I can’t bear. In my wheelchair it is not quite so bad, I am able to retain some sense of independence, but needing extra oxygen just to exist, people’s first thought is “Oh that poor young woman.” I couldn’t look anyone in the eye. 

The film is magical. I didn’t know if they could match Be Our Guest from 1991 but they did and more, and I was delighted to see the line “I use antlers in all of my decorating” get the prominence it deserves. I nearly cried several times, for more reasons than I care to put down, but for as long as I could forget myself, I had fun. 

The 19th of March. 

My eyes hurt and I am tired. I don’t understand why they’re sore – they’ve been getting much better since I started the steroid eye drops but today they are not good. Blah. I think I’m knackered just from being poorly. Stupid pneumonia, this is going to take weeks to get better. At least I have not needed the extra oxygen today (except to go upstairs/eat a main meal). 

This morning, I watched Sunday Brunch and finished off another doily. Actually, I finished it just after lunch, and with impeccable timing, that was when Becky and Alison rang the doorbell. They went to the knitting and stitching show at the NEC yesterday and had bought us presents! Mommy has a very cute set off Christmas decorations to make (there will be no room left on our tree this year for any decorations that were shop-bought) and I have Lauren the angora bunny from Toft to make! It will be a welcome change from table decorations. 

When they left, I went upstairs to try to nap, or at least lie down and rest. I put on Gardeners Question Time and closed my eyes for 90 minutes (I listened to a podcast too) but I didn’t do any sleeping. I don’t know if it helped, but I didn’t have the energy to do anything else. 

The 20th of February. 

I so want to be able to breathe normally again. Or at least, normally for me. To walk from the living room to the kitchen without needing to recover, to not need to spend the first hour of every day coughing up endless amounts of crap. I suspect Andrew won’t be able to get me in next week because he’ll be only just back from half term, so I have to be patient. I am just so tired. 

I spoke to the orthotics team this morning and I’m going in tomorrow at 9.30, presumably to be measured for a sleeve that goes over the hand. 

The rest of the day, I have been waiting around for Mommy to be available so we could bake brownies with the triple double chocolate Oreos in. At one point, we almost got started, then there was decorating chat, then Alison came over, so an hour after going to the kitchen, we began. I made sure we cooked them for the full amount of time, so hopefully they won’t be underbaked like usual. 

Good news! NHS England have announced they “are confident” that funding for second transplants will become available, but this is not yet confirmed. It also begs the question of what the hell has the anguish of the past six months been for? The pressure is not off. 

The 21st of February. 

I think the steroid eye drops are working – I had to wake up at quarter to seven, and it took much less time for my eyes to adjust to the light. Hooray!

Up early to see the orthotics team – Chris is on annual leave this week so I saw Pete, the clinical lead. I explained what had happened and showed him the pictures. He took some more measurements (and was pleased I had worn a jumper with easy arm access), and with any luck, I’ll be able to pick up the new sleeve tomorrow after haematology clinic. 

Before going home, we went into town so I could return the jumper I bought the other day, and I got a birthday card for Mommy. Her present is on its way, so if it arrives in time, I’ll wrap it on Thursday while the dining room is being painted and the fumes will force me to retreat to upstairs  

This afternoon, Daddy and I went to see Hidden Figures. It is really superb. I adored all of the costume, especially Janelle Monáe’s dress at the beginning. Loooove. I read an article about the three women (Katherine G. Johnson, Dorothy Vaughan and Mary Jackson) in New Scientist a few weeks ago, and have been really looking forward to seeing it since then. I can’t believe I did not hear about these women until now. And I am worried that we are going back to the time they came from.