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The 12th of June.

It’s Daddy’s birthday!

He had already gone to work by the time I got up, which was a good thing because I hadn’t written his card yet. We’re going to take him to the Pink Floyd exhibition in London for his present, so I didn’t have to worry about that.

I had a phone call with Anthony Nolan this morning because they need examples of post-transplant care, so I was telling her how excellent mine has been. I know not everyone is so lucky. Then I had a chat with Nationwide because they had frozen my debit account for no apparent reason and hadn’t told me. It turns out that I had used it at a cashpoint or on a website that has left me exposed to fraud so they’ve had to cancel it. Well, that’s fine, but they could have sent me a letter? I’ll get a new card,it’s all fine.

This afternoon, Mommy and I went into town to take back all the kimonos I didn’t need. I also needed to get some facewipes, then we went into Selfridges to get Daddy some token bits – essentially fudge. I also bought myself some espresso chocolate spread so I’m very much looking forward to my toast in the morning.

Once home, I finished crocheting the bear, so he can go in the post this week!

The 13th of June.

I am annoyed and sad. Finally managed to speak to Tracey (the booking coordinator) and she hasn’t even had the paperwork yet. I have haematology clinic tomorrow so we’ll get them to chase Andrew. It’s all well and good for him to say “Yes we need to do another venoplasty” but if he doesn’t send the paperwork for three weeks I’m going to have to wait even longer for this nightmare to be over. It has been six months and it should not be this hard.

My alarm didn’t go off this morning so I didn’t wake up until quarter past ten. Thankfully I didn’t have anything that needed doing, but I still don’t like waking up that late. I got to have my coffee spread on toast for breakfast though, so there was that.

Since talking to Tracey early this afternoon, the heavy cloud has descended. I don’t think it’ll be a long-term storm, but it’s here all the same. I’ve just sat crocheting, listening to podcasts, trying not to think about it. I’m just so tired and it feels like nobody is trying.

The 6th of June. 

Today has been pretty lame, ranked in terms of holiday fun time. The weather was not terrible, so it was felt we should go out. I was woken up by a child playing basketball outside my window which was not ideal, but I refrained from putting a passive-aggressive note through the door of the owners of said basketball hoop. If it happens again tomorrow, I will be less accommodating. 

Daddy and Christine wanted to go to a castle, which did not sound appealing, so they dropped Mommy and I off in Torquay so we could do a bit of shopping while they looked at the ruins. We spent about an hour and a half in a nice coffee shop, having a tasty lunch and beverages. I had a mozzarella, tomato and pesto bagel with a carrot and orange juice, although I took the tomatoes out. Don’t want those. Then I had a coffee and we shared some vegan chocolate banana bread which was excellent, but it was demolished before I had a chance to take a photo. We were thinking about going, but then an old man sat down and started talking to us, starting with the premise of the election but he actually ended up telling us about how he is having to move because his landlady’s husband is a weed addict and he wants to start a singing group in which they sing old French songs in a Black Country accent because he thinks it would be fun. All this while eating two croissants with butter and jam. He was a curious fellow. We did have to leave as we had a jigsaw to buy, so we went in search of that. It turns out Torquay is quite shit in terms of shopping. We tried several places, and finally found one in WHSmith, where I also found a Father’s Day card. Not got Daddy a birthday card yet but nevermind. 

My eyes started being problematic, and we had nowhere else left to go, so we started trawling places in desperation, waiting to be picked up. We even went round Wilko’s, where they were selling my facewipes for more expensive than in Superdrug, shockingly. 

I was very happy to see the car arrive so I could shelter from all the bright light. Honestly, if it gets even vaguely sunny, I am essentially blind. Really hoping it is kind of dull on Thursday when we go to Michael Caines’ restaurant. 

Back at the house, I made my contribution to the jigsaw by finding all the bits of the two windows in the picture. That was enough for my back, so I then returned to the sofa where I have been curled up ever since. 

 

The 7th of June. 

One day out in the wheelchair/car and I am fucked for the next one. Been hobbling all day. Nevermind the fact that Mommy fried some meat last night and I obviously can’t cope with being in the vicinity of that either because my sats are only just getting back to normal. People are only allowed to bake, roast, boil or steam things near me, thank you. 

I was not woken by basketball today, thankfully. Instead, it has been a very quiet day – Daddy and Christine went to the tiny zoo this morning, while Mommy and I stayed in. She cross-stitched, I crocheted! Actually was able to focus on it. I had to unravel the doily I had been working on, because I can’t remember what size hook I was using, but I’ve started a new one and I’ve made a note of the hook, so if I have to stop again, I won’t have the same problem. 

When Christine and Daddy got back, we ate lunch while watching today’s Pretty Little Liars (FINALLY things actually progressed) and I had a very tasty crab sandwich from one of the nearby coffee shops. I was then left alone while everyone went shopping to buy dinner, so I watched an episode of Scream and before I knew it, they were back again! Time for iZombie. (Yes it seems on holiday I behave exactly as I do in hospital.)

It is the last day of election campaigning. Tomorrow, the people vote. Obviously, I have already sent off my postal vote. Part of me is hopeful. The other part is terrified. I am so afraid of what I might wake up to on Friday morning. 

The 21st & 22nd; Birthday!

January 23, 2017 — 4 Comments

The 21st of January. 

Birthday! Had to get up super early which I didn’t love but it was for a good reason. I had a pain au chocolat for breakfast, then opened some of my presents. I got a box of macarons from Macarons & More from Grandma, a book token and a big journal from the Hudsons, a cheque from Taid, and some Moomin paraphernalia from Mommy and Daddy – a t-shirt, a notepad and pencil, and a wooden Little My that I need to assemble.

Our train to London was at 10:10, so we set off shortly after breakfast, and we were taken to the train by a woman with a very laissez-faire attitude which I did not care for. I also didn’t like being in coach A because it means I can’t really talk to the people I’m travelling with, but there was at least a fun baby who smiled at me when I made faces at her. 

We didn’t have time to wait for the Euston team to turn up, so got the chair off the train and went to get a cab to the South Bank, where we met up with Christine. We then went on a twenty minute trek in the cold to Where the Pancakes Are, but their misleading website said they would have some free tables for walk-ins, but there was nothing, so I told the woman she had ruined my birthday and left feeling very disappointed. 

Very nearby was a Caravan restaurant where they had many tasty dishes available and nice coffee, so then I was greatly cheered. I had a flat white, then smoked salmon and scrambled eggs on toast with a mimosa. Christine gave me my presents which were two Harrods cronuts (salted caramel and Speculoos and the zebra one), then Daddy had a pudding and I had more coffee. 

We got a taxi back to the South Bank because I couldn’t bear to get that cold again, then we had an hour to kill in the Royal Festival Hall before our Moomins exhibition tour. I went to the shop and bought a little stuffed Moomin and a bowl. 

The tour was lots of fun and very informative – it’s narrated by Sandi Toksvig, along with the tour guide, which was a lovely surprise, and there were lots of original illustrations and stuff that I would never have seen otherwise. I also really liked that they didn’t just gloss over the fact that she was gay and are teaching the children going on this tour that it’s okay and not something to be ashamed of. I think we need to be reminding kids that whatever they are is okay at the moment. The only bad bit was that it was not easy in the wheelchair – we actually had to collapse it and I did a lot of crouching in each room. It would be fine in a manual one with big wheels but the spaces are too small and the floor too uneven for anything else. We coped, but other people might not. The tour guide was very helpful and apologetic, and she promised to feed it back. 

Our next stop was Konditor & Cook to pick up my birthday cake, then we headed to the BFI for hot beverages and a rest before we had to go back to Euston. I had a hot chocolate, and did a lot of coughing which worried me but I think it was just because of the temperature change between there and outside. 

We saw many people who’d been to the Women’s March, which I would have loved to have gone to, but if I had, I would have definitely got ill. It was so cold today, I couldn’t have coped, even in a mass of people. Wonderful, but not sensible for me. 

When it was time, we said goodbye to Christine, then back to Euston. I got some Pom Bears and New Scientist, and when we got home, it was time for cake!

The 22nd of January. 

So tired today. I had a really bad night, not getting to sleep until past one, which is way too late for me. I got up at half past nine, put on some very warm clothes and settled in to spend my morning writing about yesterday. 

This afternoon, I was about to start writing the post I would have done yesterday, but then Alison came over with my birthday presents (more wool and flowers) and there was some catching up to do. Becky is full of lurgy so can’t come round herself, so we got all her news by proxy. It sounds like the cold Grandma’s got and I do not want either of their germs. 

We put the flowers she brought me in a vase, and I was able to finish my writing, which didn’t take long. Tomorrow won’t be so quick as there was a lot to say about my birthday. Then I got to work on otter number 2. I’ve made everything except his ears and snout, so I’ll get him finished this evening. When I’m done, it’ll be an early night. I need a big sleep. 

The 15th of January. 

It is going to be an early night tonight. Well, as early as possible. As in, I will go upstairs and watch Sherlock in bed so I can go to sleep straight away afterwards. I was woken not long after eight this morning by the builders next door using the angle grinder, and tomorrow I have to get up super early for liver clinic (which is now on a Monday morning). 

Other than the noisy builders, it has been a pretty quiet day. I wrote up a blog post, watched Sunday Brunch, and worked on practising crocheting cables. I think I’ve got the hang of it now which is most pleasing – being able to do them properly has eluded me for ages. 

I also watched three more episodes of A Series of Unfortunate Events – it’s too good and I can’t help myself. Neil Patrick Harris is so excellent, and I’m enjoying Cobie Smulders and Will Arnett too. Having listened to all of the audiobooks when I had to live in the dark, and several times again since then, I can’t wait to see how they do the rest of them. The first four books just won’t do. 

My hands are still very dry. Leathery, one could call them. And not a soft leather, like a stiff, hard, scaly leather. Moisturising all the time, but this is going to take a while. 

The 16th of January.

Sherlock was not even worth staying up for in the end. So many questions, so many things wrong with it. Mycroft is a fucking idiot. 

Anyway. At least my very early clinic appointment meant I got through quickly. Philippa and James both really loved their crocheted animals for their respective children, and we got to see the latest pictures of James’ new baby. Then down to the business of my body – I explained everything that happened over Christmas and how far we’d got in regards to fixing me. The only things that need to be sorted are my arm and eyes – James’ secretary is going to get on the case about my arm (and the dates I’d rather not have it on) and we just have to wait for the eye appointment.

Then we were on our way and home just after half ten, at which point I needed more coffee. I am very sleepy. The rest of my day has been spent yawning, crocheting nothing in particular and having multiple chats with Shaki about the logistics of kitten/cat movement. It is very complicated. 

The 28th of November. 

I think I’m just about okay today. I was still a bit wibbly when I got up, so my potential gym trip was off. Not lifting heavy weights when I might fall over. 

This morning I did a blog post and painted my nails a festive green while snuggled up in my pyjamas and fur-lined hoodie. I did get dressed, just later than might be considered socially acceptable. Well, I’m kind of poorly. It’s allowed. 

After lunch, I sorted out some of the crap in my bedroom so now it has either been put away or is in piles to get put somewhere else or in the bin. Then I had a try at making a coffee using a drip filter, as my Pact advent calendar coffee is ground for that particular brewing method, and I usually use my espresso machine. 

It was okay but next time I will use more coffee – I started off with just 16g. Not strong enough. My next job was to have another trawl of the internet for potential Christmas presents, but I am severely lacking in inspiration. Everything I see, I just think is a terrible gift. I’ve bought four things I like and made two crocheted things but that is all and I am struggling. I am really hoping some ideas come to me in a dream. Mommy and I have our annual London Christmas shopping trip next week, so maybe I will see things then.

The 29th of November. 

I’ve only had the one wobbly moment today, so I think whatever it was has passed. Hooray!

I had a quiet morning. Mommy was out at the chiro, and I spent my time doing another filter coffee and crocheting a leg of the unicorn I’m making. I used some of Daddy’s coffee for today’s practise and it was not nice at all. I do not like that blend. I’m glad I have my own. 

I had an appointment to get my hair cut after lunch, and we had quite the palaver with the hair washing. Just as my first shampoo was being done, the pressure on the boiler went, and the shower heads weren’t producing any hot water. Not ideal. They tried various things, but ended up having to use hot water from the coffee machine to rinse my hair, which was fine but I was just glad I got in when I did and wasn’t having any colour done! The chap couldn’t come until five, so I hope it’s fixed now. 

So I was there somewhat longer than expected, but that was fine with me, I just felt bad for Michaela and the knock-on effect it was having. All nice and short now, and re-whitening in two weeks. 

When I got home, I had to ring a potential adopter because I didn’t think she fully understood how Cats Protection works, then I made another unicorn leg and ordered all my Christmas cards. At least I have that sorted. Glee Club tonight! Seann Walsh and the best fish finger sandwich. 

The 1st of October. 

Even more pain tonight, but for a good reason – London trip for Christine’s birthday! Had to be awake ridiculously early so we could be at New Street for 8:40. I bought a Guardian and a Pumpkin Spice latte for the train because I am so very basic, and we sped down the country to Euston. 

Christine met us there, and we got a cab to Berner’s Tavern. Had it not been pissing it down, we would have walked/wheeled. Not today. The restaurant is within The London Edition Hotel and it is niiiiice. Very fancy. We were early for our reservation, so sat in the lobby, had coffee and gave Christine her presents. Just token things because we’re giving her a voucher for a fancy cooking lesson of her choosing, so I gave her a crocheted mini manatee and whale. She is going to add them to her crochet corner at work. 

We moved through to our table, and I already knew what I was having, so while everybody else perused the menu, I just looked at all the pictures on the walls and watched the other people coming in. I was the only one who went for a sweet brunch dish – buttermilk pancakes with Nutella and bananas (no hazelnuts, I had those omitted). They were so good, but I couldn’t quite finish them. Curse my tiny stomach. I had a curly kale, apple, cucumber and lime juice to go with it, so I had some of my five a day. Plus the banana of course. Then everybody else wanted pudding, which I most definitely did not, so I had a flat white while they ate their desserts. I’m fairly certain Liam Gallagher came in while we were there – I tried to take a stealthy photo but it didn’t work out very well. 

By the time we left, the rain had stopped, so we decided not to get a cab to the theatre, where we were seeing Ian McKellen and Patrick Stewart in No Man’s Land. On the way, we happened to pass a Crosstown Doughnuts, so I went in to buy a cinnamon scroll to eat later, and while in the queue, I petted a dog called Cherub who was a chihuahua/Japanese Chin cross and I was happy as a clam. 

We arrived at the Wyndham’s just after two, so we stashed the wheelchair and found our seats. We had an excellent view, but it is an old theatre, and the seats were not good for my back. For the most part, I managed to forget about the pain, because the play was so good. I have not seen any Pinter before, so being introduced to his work by two of the world’s greatest living actors was pretty cool. Obviously it was an incredible performance from all the four actors involved (there are two younger men as well), sometimes uncomfortable, sometimes funny (and some lines taking on new meaning in current context) and overall amazing. Standing ovation at the end, and I found myself welling up for no reason that I could think of. Maybe because I just felt so lucky to be there. 

From there, we went to Picturehouse for a drink and a nibble before returning to Euston. I just had a St. Clements because I still didn’t want any food, but I did get a Mini Egg cookie to take home and eat tomorrow. We talked about the play, found that Daddy had nodded off a couple of times but not missed too much, tried to work out why the man sitting in front of us had left in the interval, and before we knew it, it was time to get a taxi back to the station. Hailing one wasn’t yielding results, so I whipped out my phone, and within five minutes we were on our way home. 

We were sat in the quiet coach on the train, but I put my earphones in anyway, and listened to a Flatshare Slamdown podcast while wishing the journey faster so I could lie down. 

So much fun, but so much pain. 

The 2nd of October.  

I don’t feel quite as awful as I thought I would, but still not great. I think I was helped by the Zopiclone I took last night, and I made no effort to get out of bed before I wanted to. I was up by ten though, I’m not an animal. 

I threw on my huge green polo neck for the first time this year, and spent what was left of the morning curled up in the armchair, writing about yesterday. Long post ahoy. I did get it finished by the end of Sunday Brunch, and to take my mind off my stiffness, I had scrambled eggs on one of my rainbow bagels for lunch, then my Mini Egg cookie. It definitely helped. 

This afternoon, Mommy took Grandma to get her hearing aids adjusted, and while I waited for her to return (so we could watch last night’s Strictly), I have just sat and crocheted. It is not super interesting to write about but I’ve made a good amount of progress and I don’t think it’ll take much longer to finish. I do look forward to being able to reveal it after Christmas. 

Going to lie down on the floor again now. I am going to be doing lots of stretching until I see the pain team.

The 29th of September. 

Oh dear I am so very tired. Had to get up super early this morning because Rufus was being adopted at half past nine. I filled in the paperwork before Junisha arrived, so we could just finish it off before going to try to get Rufus into the carrier. He was surprisingly amenable – I was able to pick him up and pop him in without much of a struggle! He is not going to be happy tonight but he’ll get used to his new home quickly, I am sure. 

For the rest of the morning, I wrote about yesterday, then put all that on my blog. Plus a little bit of crocheting before lunch. 

After eating, I went to the gym. Vlad was going to do some core stuff with me, but I wanted to get through my usual routine before that. I didn’t see many familiar faces, but I did see a new chap who kind of looks like a six foot toddler, like his body isn’t ready to be that tall. Vlad essentially just did planks with me, front and side, and the bridge. I was pretty impressed with myself being able to do a standard plank for 1 minute 43 seconds – going to try to get that up to 2 minutes. At the end I made it quite clear that I don’t want a trainer right now, so I think I’ll be able to get on by myself now. 

So sleepy. 

The 30th of September. 

Oh my god my ribcage hurts. That normally only happens when I have a terrible cough; what the fuck did Vlad have me do yesterday that has caused this pain? So glad I am not actually going to be training with him because I do not want to spend money to become this stiff and sore. 

This morning, Jen came round to pick up the kitten paperwork, and I did some work on the crocheted gift I am doing. Mommy and Daddy were in and out, going to Sutton, the GP, the pharmacy…so busy! I just got to watch the new neighbours moving in next door. I refrained from going and introducing myself (although I will soon – they have a one year old and I want to squidge him). 

This afternoon, I went into Sutton with Daddy. He had an eye test at 2, and if he was done in time, we were going to go to the cinema at 3. While he was at Specsavers, I went to get some chocolate buttons to eat during the film (yes they are my snack of choice), but incredibly, none of the shops had the ones I wanted. I had to go and meet Mommy so she could hand over Daddy’s tablets that he’d forgotten to bring, then I went up to Under Pressure where I got a flat white and a cinnabon. I tried not to show my excitement but I can’t lie; this has improved life greatly. Cinnabons in my immediate vicinity!

Daddy had to get new lenses, so by the time he’d had all his measurements done and got back to the car, there wasn’t time to go to the cinema. Not a totally wasted trip though. Cinnabons!