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The 8th of July.

Oh I have had such a nice day. This morning was kind of soft and quiet; pootled about in my pyjamas, had my coffee, petted the floofs (Bree is getting better at tolerating it), then went back upstairs to get dressed for coffee and cake with Vicky this afternoon. 

She was actually early (really she had no excuse to be late because 200° is pretty much next door to where she lives) so when I got there, she had already got a cosy table. I had vouchers for free coffees so I got us both nitros and a slice of chocolate and banana loaf, then she purchased a sandwich which had peaches in but was apparently enjoyable!

We just had a lovely couple of hours, eating and talking about all the things – the saga of my arm, Glastonbury, HER ENGAGEMENT 😍, my lack of love life (she is going to do some matchmaking), Pride, politics. I do love her. If cancer has given me anything, it is some really fucking great friends. 

Since getting home, I have done much writing about yesterday and today. Tomorrow morning will involve lots of typing. 

The 9th of July. 

Just counting down the days until Wednesday. Please, please work. 

I slept really badly, for no apparent reason. Spent my morning doing the blog posts that were due with Sunday Brunch on in the background. Had lunch late because Mommy and Daddy were emptying Sadie’s garage of all of Christine’s crap, then spent an hour in my bedroom with a  podcast, checking my new jumper fit (it does). 

Back downstairs, we had to shut the cats in the bathroom while a mattress got added to their setup, and they did not like that, so then I sat with them (once they had been set free) and watched some Orphan Black. Halfway through season 3 now. No Wimbledon today; Anniversary games instead. Mommy has been shouting at the tv. 

Got to ring a CNS in the morning because not all the bloods that needed to be done haven’t been, so I suspect I’ll need to go back to clinic so they have all the information on Wednesday. I remember Neil saying what tests I needed and they had all the forms so I suspect the labs have fucked up.

 

The 2nd of July. 

Opposite of the past couple of days. So quiet. I almost went back to sleep when my alarm went off, but I forced myself out of bed. When making my coffee, I think I could have made it pretty again, but I ran out of space in the cup. Try again tomorrow. I wrote up a blog post while watching Sunday Brunch, then I went through a couple of Mommy’s food magazines, marking the recipes I want to eat. One of them was mainly full of Italian dishes, e.g. pasta and tomatoes, so that was essentially thrown away. Not for me. 

This afternoon, I resisted the urge to nap after lunch, then went to sit with the kittens and watch Orphan Black. Remembered that they need to starve before their chipping and neutering tomorrow, but they keep trying to feed from Betty. I don’t know how much they’re getting, but we can’t let them do that tonight, so we’ve put the cage back up. Back in there, just for one night. 

Early start tomorrow. Got to get them to Lydon’s by half eight. Betty will be delighted to have the day to herself. 

The 3rd of July. 

Yawning. Up early to get dressed and get the kittens into the carrier so we could get them to the vet for them to be neutered and chipped. Thankfully, herding them was pretty easy, then we just had to wait ages at Lydon’s for them to be checked in. They all got paper collars with their names on, so no trouble telling who is who. 

Back home, had coffee, made sure Betty was okay, then sat and did some crocheting while watching Victoria Derbyshire, then the start of Wimbledon! I have grown to enjoy it very much. Plus, everybody I wanted to win today has done so. 

After lunch, Mommy went to Grandma’s, and I listened to the new episode of My Dad Wrote A Porno. I think today’s was the best/worst of this series. So funny but so upsetting. She got back shortly after 3, so I hopped into the car and we went to pick up the floofers. They were all fine, and had piled themselves up at one end of the carrier, bless them. I went to snip their collars off, and found that three had got stuck to their floof, so they had to have a tiny trim. They all need a brush anyway, so hopefully once I’ve done that, it won’t be noticeable. 

The 30th of June. 

Busy busy day. I had an appointment at the Women’s Hospital with Sue, the specialist nurse, at ten. I was early and she called me in straight away. It was pretty brief – I told her about my appointment with Mr. Titley, and she’s going to chase up what’s going on with that because he wrote to Miss Byrom at the start of May, so maybe I’ll hear something relatively soon. She also asked what things were like on the relationship front and I laughed. Apparently there are lots of understanding people out there. I need to find the most understanding person in the world

Went into town before going home, where I got some make up from NYX, some pants from John Lewis, and a jacket from the French Connection sale that I fell in love with and can wear with many things, with or without my fat arm!

This afternoon, Daddy and I went to see Despicable Me 3. Despite it being 2.40pm on a Friday, there were loads of children there? I don’t understand why they weren’t at school – they were of age. Grr. The film was great fun; it is exactly what you would hope for and expect from it. Lucky the unicorn-goat is adorable. 

Back at home, I tried to play with the kittens, but it didn’t really work because Bree is really lazy and Bailey and Betsy cheat. 

The 1st of July. 

Oooh I am crashing. This morning, I went to the Custard Factory for the Birmingham Coffee Festival. I can’t remember the last time I was in Digbeth. Anyway. I was glad I got there relatively early, because I was able to do a lap of the stands before it became so busy that I was ramming ankles. My first purchase was a box of five bags of beans plus some offers for £12. Then I went over to the Java Lounge stand where they were teaching latte art. I have tried so many times at home and it never works. But today the chap showed me and I actually did a half-passable rosetta! They were also giving out free flat whites, bonus! Next, I went to look at 200° where I had a very nice chat with the manager. She gave me a nitro which which was really good, so sweet and creamy without any milk. She also gave me some vouchers for free coffee and I need to book myself in for a class. 

Time for lunch, so I got myself a cheese and spinach crêpe, then back to coffee. I bought beans from Quarter Horse, Urban Social and Urban Espresso, and two doughnuts from Donut Day Dream. Deep-fried brioche, mmm. That was me pretty much done, then I found out my chair couldn’t mount the ridge to leave, so people had to help me. 

Back home, I ate one of my doughnuts while watching the latest Nashville (no crying today), then I went to sit with the floofs. Bree is going to get fat if her adopter is not careful because she just can’t be arsed to do anything. 

The 12th of June.

It’s Daddy’s birthday!

He had already gone to work by the time I got up, which was a good thing because I hadn’t written his card yet. We’re going to take him to the Pink Floyd exhibition in London for his present, so I didn’t have to worry about that.

I had a phone call with Anthony Nolan this morning because they need examples of post-transplant care, so I was telling her how excellent mine has been. I know not everyone is so lucky. Then I had a chat with Nationwide because they had frozen my debit account for no apparent reason and hadn’t told me. It turns out that I had used it at a cashpoint or on a website that has left me exposed to fraud so they’ve had to cancel it. Well, that’s fine, but they could have sent me a letter? I’ll get a new card,it’s all fine.

This afternoon, Mommy and I went into town to take back all the kimonos I didn’t need. I also needed to get some facewipes, then we went into Selfridges to get Daddy some token bits – essentially fudge. I also bought myself some espresso chocolate spread so I’m very much looking forward to my toast in the morning.

Once home, I finished crocheting the bear, so he can go in the post this week!

The 13th of June.

I am annoyed and sad. Finally managed to speak to Tracey (the booking coordinator) and she hasn’t even had the paperwork yet. I have haematology clinic tomorrow so we’ll get them to chase Andrew. It’s all well and good for him to say “Yes we need to do another venoplasty” but if he doesn’t send the paperwork for three weeks I’m going to have to wait even longer for this nightmare to be over. It has been six months and it should not be this hard.

My alarm didn’t go off this morning so I didn’t wake up until quarter past ten. Thankfully I didn’t have anything that needed doing, but I still don’t like waking up that late. I got to have my coffee spread on toast for breakfast though, so there was that.

Since talking to Tracey early this afternoon, the heavy cloud has descended. I don’t think it’ll be a long-term storm, but it’s here all the same. I’ve just sat crocheting, listening to podcasts, trying not to think about it. I’m just so tired and it feels like nobody is trying.

The 6th of June. 

Today has been pretty lame, ranked in terms of holiday fun time. The weather was not terrible, so it was felt we should go out. I was woken up by a child playing basketball outside my window which was not ideal, but I refrained from putting a passive-aggressive note through the door of the owners of said basketball hoop. If it happens again tomorrow, I will be less accommodating.

Daddy and Christine wanted to go to a castle, which did not sound appealing, so they dropped Mommy and I off in Torquay so we could do a bit of shopping while they looked at the ruins. We spent about an hour and a half in a nice coffee shop, having a tasty lunch and beverages. I had a mozzarella, tomato and pesto bagel with a carrot and orange juice, although I took the tomatoes out. Don’t want those. Then I had a coffee and we shared some vegan chocolate banana bread which was excellent, but it was demolished before I had a chance to take a photo. We were thinking about going, but then an old man sat down and started talking to us, starting with the premise of the election but he actually ended up telling us about how he is having to move because his landlady’s husband is a weed addict and he wants to start a singing group in which they sing old French songs in a Black Country accent because he thinks it would be fun. All this while eating two croissants with butter and jam. He was a curious fellow. We did have to leave as we had a jigsaw to buy, so we went in search of that. It turns out Torquay is quite shit in terms of shopping. We tried several places, and finally found one in WHSmith, where I also found a Father’s Day card. Not got Daddy a birthday card yet but nevermind.

My eyes started being problematic, and we had nowhere else left to go, so we started trawling places in desperation, waiting to be picked up. We even went round Wilko’s, where they were selling my facewipes for more expensive than in Superdrug, shockingly.

I was very happy to see the car arrive so I could shelter from all the bright light. Honestly, if it gets even vaguely sunny, I am essentially blind. Really hoping it is kind of dull on Thursday when we go to Michael Caines’ restaurant.

Back at the house, I made my contribution to the jigsaw by finding all the bits of the two windows in the picture. That was enough for my back, so I then returned to the sofa where I have been curled up ever since.

The 7th of June. 

One day out in the wheelchair/car and I am fucked for the next one. Been hobbling all day. Nevermind the fact that Mommy fried some meat last night and I obviously can’t cope with being in the vicinity of that either because my sats are only just getting back to normal. People are only allowed to bake, roast, boil or steam things near me, thank you.

I was not woken by basketball today, thankfully. Instead, it has been a very quiet day – Daddy and Christine went to the tiny zoo this morning, while Mommy and I stayed in. She cross-stitched, I crocheted! Actually was able to focus on it. I had to unravel the doily I had been working on, because I can’t remember what size hook I was using, but I’ve started a new one and I’ve made a note of the hook, so if I have to stop again, I won’t have the same problem.

When Christine and Daddy got back, we ate lunch while watching today’s Pretty Little Liars (FINALLY things actually progressed) and I had a very tasty crab sandwich from one of the nearby coffee shops. I was then left alone while everyone went shopping to buy dinner, so I watched an episode of Scream and before I knew it, they were back again! Time for iZombie. (Yes it seems on holiday I behave exactly as I do in hospital.)

It is the last day of election campaigning. Tomorrow, the people vote. Obviously, I have already sent off my postal vote. Part of me is hopeful. The other part is terrified. I am so afraid of what I might wake up to on Friday morning.

The 21st & 22nd; Birthday!

January 23, 2017 — 4 Comments

The 21st of January. 

Birthday! Had to get up super early which I didn’t love but it was for a good reason. I had a pain au chocolat for breakfast, then opened some of my presents. I got a box of macarons from Macarons & More from Grandma, a book token and a big journal from the Hudsons, a cheque from Taid, and some Moomin paraphernalia from Mommy and Daddy – a t-shirt, a notepad and pencil, and a wooden Little My that I need to assemble.

Our train to London was at 10:10, so we set off shortly after breakfast, and we were taken to the train by a woman with a very laissez-faire attitude which I did not care for. I also didn’t like being in coach A because it means I can’t really talk to the people I’m travelling with, but there was at least a fun baby who smiled at me when I made faces at her. 

We didn’t have time to wait for the Euston team to turn up, so got the chair off the train and went to get a cab to the South Bank, where we met up with Christine. We then went on a twenty minute trek in the cold to Where the Pancakes Are, but their misleading website said they would have some free tables for walk-ins, but there was nothing, so I told the woman she had ruined my birthday and left feeling very disappointed. 

Very nearby was a Caravan restaurant where they had many tasty dishes available and nice coffee, so then I was greatly cheered. I had a flat white, then smoked salmon and scrambled eggs on toast with a mimosa. Christine gave me my presents which were two Harrods cronuts (salted caramel and Speculoos and the zebra one), then Daddy had a pudding and I had more coffee. 

We got a taxi back to the South Bank because I couldn’t bear to get that cold again, then we had an hour to kill in the Royal Festival Hall before our Moomins exhibition tour. I went to the shop and bought a little stuffed Moomin and a bowl. 

The tour was lots of fun and very informative – it’s narrated by Sandi Toksvig, along with the tour guide, which was a lovely surprise, and there were lots of original illustrations and stuff that I would never have seen otherwise. I also really liked that they didn’t just gloss over the fact that she was gay and are teaching the children going on this tour that it’s okay and not something to be ashamed of. I think we need to be reminding kids that whatever they are is okay at the moment. The only bad bit was that it was not easy in the wheelchair – we actually had to collapse it and I did a lot of crouching in each room. It would be fine in a manual one with big wheels but the spaces are too small and the floor too uneven for anything else. We coped, but other people might not. The tour guide was very helpful and apologetic, and she promised to feed it back. 

Our next stop was Konditor & Cook to pick up my birthday cake, then we headed to the BFI for hot beverages and a rest before we had to go back to Euston. I had a hot chocolate, and did a lot of coughing which worried me but I think it was just because of the temperature change between there and outside. 

We saw many people who’d been to the Women’s March, which I would have loved to have gone to, but if I had, I would have definitely got ill. It was so cold today, I couldn’t have coped, even in a mass of people. Wonderful, but not sensible for me. 

When it was time, we said goodbye to Christine, then back to Euston. I got some Pom Bears and New Scientist, and when we got home, it was time for cake!

The 22nd of January. 

So tired today. I had a really bad night, not getting to sleep until past one, which is way too late for me. I got up at half past nine, put on some very warm clothes and settled in to spend my morning writing about yesterday. 

This afternoon, I was about to start writing the post I would have done yesterday, but then Alison came over with my birthday presents (more wool and flowers) and there was some catching up to do. Becky is full of lurgy so can’t come round herself, so we got all her news by proxy. It sounds like the cold Grandma’s got and I do not want either of their germs. 

We put the flowers she brought me in a vase, and I was able to finish my writing, which didn’t take long. Tomorrow won’t be so quick as there was a lot to say about my birthday. Then I got to work on otter number 2. I’ve made everything except his ears and snout, so I’ll get him finished this evening. When I’m done, it’ll be an early night. I need a big sleep. 

The 15th of January. 

It is going to be an early night tonight. Well, as early as possible. As in, I will go upstairs and watch Sherlock in bed so I can go to sleep straight away afterwards. I was woken not long after eight this morning by the builders next door using the angle grinder, and tomorrow I have to get up super early for liver clinic (which is now on a Monday morning). 

Other than the noisy builders, it has been a pretty quiet day. I wrote up a blog post, watched Sunday Brunch, and worked on practising crocheting cables. I think I’ve got the hang of it now which is most pleasing – being able to do them properly has eluded me for ages. 

I also watched three more episodes of A Series of Unfortunate Events – it’s too good and I can’t help myself. Neil Patrick Harris is so excellent, and I’m enjoying Cobie Smulders and Will Arnett too. Having listened to all of the audiobooks when I had to live in the dark, and several times again since then, I can’t wait to see how they do the rest of them. The first four books just won’t do. 

My hands are still very dry. Leathery, one could call them. And not a soft leather, like a stiff, hard, scaly leather. Moisturising all the time, but this is going to take a while. 

The 16th of January.

Sherlock was not even worth staying up for in the end. So many questions, so many things wrong with it. Mycroft is a fucking idiot. 

Anyway. At least my very early clinic appointment meant I got through quickly. Philippa and James both really loved their crocheted animals for their respective children, and we got to see the latest pictures of James’ new baby. Then down to the business of my body – I explained everything that happened over Christmas and how far we’d got in regards to fixing me. The only things that need to be sorted are my arm and eyes – James’ secretary is going to get on the case about my arm (and the dates I’d rather not have it on) and we just have to wait for the eye appointment.

Then we were on our way and home just after half ten, at which point I needed more coffee. I am very sleepy. The rest of my day has been spent yawning, crocheting nothing in particular and having multiple chats with Shaki about the logistics of kitten/cat movement. It is very complicated.