Archives For exercise

The 29th of April.

I’m going to be straight with you – today has not been very interesting.

I was happy to see Tom on Sunday Brunch and he was on top form (and very well dressed I might add) so I spent my morning watching him and writing up a blog post. We tried several times to clean the kitty’s wound (I’m going to call her Little Pidge because because she mews like a pigeon with a sore throat) but she was really very cosy in bed and we couldn’t bear to disturb her. I also ordered some more wool using one of my birthday vouchers to make another jumper, with a different pattern. Got to decide what to make for new baby Esmée.

This afternoon, we persuaded Little Pidge to get out of bed with treats, I painted my nails three times (let’s not go into detail, it was a mess) and I started season 5 of Scandal with the kitty on my lap. I have two weeks to watch two seasons and for at least four days I’ll be without time or Wi-Fi. Going to be a challenge.

The 30th of April.

I’ve had a rather productive day!

Up and dressed in gym wear, listened to The Riverdale Register, and cleaned Little Pidge’s wound before she had settled down to get cosy in her bed, and decided I’d have my gym trip before lunch.

Once I got there, I’d just done my first set of squats when a lady came over to me. I took my headphones off to talk to her, and realised it was the mother of a guy I went to primary school with. She checked that I was who she thought I was, then we had a nice albeit brief catch up on how we both are, what her son’s up to, how my family is. Then we both got back to our respective workouts and I’ll probably see her around in the future. Small world! Upstairs, I did my usual routine, then at the end I decided to get on the BodiTrax machine to see if there’s been any change since I first went. Pleasingly, my fat percentage has decreased by 3.2% or 1.9kg, and I’ve gained 0.9kg of muscle, do everything is going in the right direction! I also discovered, through standing up for the time it took, that the steroid injections probably haven’t worked. Maybe I need a second set, maybe I need more time, or maybe this is it. I don’t know.

When I got back, I had my lunch, then watched the last two episodes of How to Get Away with Murder and crocheted some of Esmée’s gift, before going to sit with Little Pidge and watch more Scandal. Powering through.

The 23rd of April.

It has been a very boring day.

This morning, I wrote up a blog post, sewed up the seam of the first sleeve of my jumper, and got very bored of hearing about the new royal baby. So much baby news. Now he is born and home, one hopes it will die down once we know his name.

I had an ultrasound with Andrew at one, to check if there were any strictures or thromboses in the lower arm. After checking all the veins, and looking at the visible tissue, it seems my veins are fine, there isn’t any fluid anymore, and now there are just fat deposits in my arm for no reason! So I’m going to get back in touch with Anne Dancey to explore my options. I can’t leave it like this.

Then we had two hours to kill, so we bought some crap sandwiches from WH Smith and read our books. Much book-reading today. I finally went in to the x-ray suite at quarter past four, where Dr. Blaney was waiting. I lay face down, trying to breathe comfortably. My lower back was exposed, and I then had an x-ray probably every twenty seconds while Dr. Blaney did lots of injections. I think he was doing some local anaesthetic, then putting in a bigger needle and using that for the steroid. It took maybe five to ten minutes and was slightly uncomfortable, but not enough to put me off having them again. If they work, that is – it’s hard to tell at the moment. They might work immediately, it could take a few days, or they might not work at all. If they don’t, I don’t know what I will do.

The 24th of April.

Well, I think I might very tentatively say that my back may be slightly improved?

This morning it was quite tricky to tell, because I didn’t do anything to really test it out. I got up, had breakfast and coffee, and listened to The Riverdale Register while getting dressed for the gym. Mommy and I printed out all our tickets for Mach so they are sorted in folders for when they’re required, then I did the first two rows of the second sleeve of my jumper.

After lunch, I went to the gym for a short session. Partially because I didn’t want to overdo things, and partially because Mommy had to be at Grandma’s for twenty to four, so I needed to finish earlier than I usually do. Basically, I skipped all the stuff I do downstairs, so I just did the circuit of machines upstairs. I didn’t have the pain I was experiencing last time, but that was a very bad day. The pain is definitely not gone, but I think it might be a tiny bit better.

Tonight I am out at the mac seeing Tez and the seats there are not the most comfortable, so that might give me a better assessment.


The 28th of March.

I have been outside!

This morning, I got up a bit earlier than usual, which meant I had time to write up my blog post before we had to go out. I had a chiro appointment at eleven, which was sorely needed after all the crocheting I’ve been doing. These jumpers have rather fucked up my neck – too much sitting here, looking down. Trine had to apply some rather intense pressure to some knots and ooh it was painful.

From there, I went to the gym. I met up with Karen, but there wasn’t much for her to show me today. I just need to do my thing for a few weeks, then come back to her with my progress to talk about any changes.

I worked out for about two hours, getting to do everything in my preferred order which was most pleasing. Even more so was that when Mommy picked me up, she’d been to M&S where they had a pretzel and a cinnamon swirl!

This afternoon, I have returned to the crochet (trying to look up more often) and watched thimgs that recorded last night. I did some screaming at How to Get Away with Murder because of Connor and Olly’s wedding and Scandal crossover! Going to be SO GOOD. I haven’t actually watched Scandal, but I feel very very excited about this.

Tomorrow I am finally going to find out exactly what is going on in my arm. Let’s hope, or I’ll have a breakdown in the middle of Andrew’s clinic.

The 29th of March.

Hm well not really proper answers. I love going to see Andrew because he’s very punctual and I never have to wait when I am called through.

Basically, we don’t know why my arm is fat. The pictures from the MRI show that the veins in my neck and chest are as good as they can be, and any further intervention using stents or whatever won’t really make any difference. So I asked if we can look at my actual arm to see there is a stricture anywhere, because the forearm is where I get pain, where it feels like things are being squeezed, and he’s going to do an ultrasound in it when I go in for my steroid injections. That’s all that’s left, really. I think I will email Anne Dancey and ask her if there is a scan she could do that would determine the exact composition of my arm – what the veins and lymphatic system look like, what is fat, what is fluid, and then what can be done with the results of that. This would be so much easier if I weren’t allergic to contrast.

We picked up Christine at New Street (eventually), and this afternoon I have been crocheting the second sleeve of the jumper and starting Scandal. I’m doing this one longer, so I’m going to have to unravel the first one and do it again. I have enough wool.

 

The 24th of March.

Well, today didn’t go quite as planned but was okay all the same.

I was about to get dressed, when I got a text from Selina asking if we could move our coffee date on a week because she’s not well and neither of us want to get together if that’s the case. So I put those clothes away and got my gym stuff out instead.

I’d typed up my blog post last night before Tiff, so this morning I just had to put it up, then I could get back to work on my next jumper. This one is a bit more tedious, as each stitch is a bit more effort than in the pattern for the previous one.

After lunch, Mommy took me to the gym, where I was able to try out my new headphones. The sound was good, I just have to take my earrings out because they dig into my head.

There were loads of children in today, as in under 16 year olds, and I just wanted to gather up all the girls and tell them they don’t need to be running on the treadmill, they are precious and should sit around eating brownies on Saturday, not be lifting weights.

The 25th of March.

I am very tired. I have not coped well with the clocks going forward. It will be a struggle to keep myself awake until ten.

This morning I was coughing probably a normal amount, but being so tired, I struggled. Plus my muscles hurt from yesterday, so getting dressed was more effort than it was worth, at least straight away.

I put off having my coffee until the chest wind’s arrival, to see if eliminating it stopped it from coming. That didn’t work – it began about half ten, so coffee came shortly after. When I had finished that, I thought I would climb the stairs to stretch a bit and get dressed. Fun fact: my arms physically cannot straighten today.

This afternoon, I have been doing the tedious jumper. I do hope it is worth it in the end. While working, I’ve watched Astro Boy and Despicable Me 3, because Sunday afternoon family films are very wholesome. Now I’m watching the Bake Off from the other day and I really want to try to make Viennese biscuits.

The 20th of March.

It’s probably going to be another short one, as there’s not much to report.

Mommy is fine today, as are all my muscles, so a gym visit would have been possible, but as I’m seeing Karen there tomorrow, I don’t want to be in pain. Still feeling a bizarre amount of chest pain/heartburn, so I’m going through Rennies like it’s my sole responsibility to keep them in business. Very frustrating.

This morning I typed up a blog post, which I’ve just realised is still in draft form. Never mind. Since then, I’ve been working on the jumper. I have to make sure I pay close attention because I fucked up the stitch count once already and it’s been a struggle to get it back on track. I really want this to be wearable when I finish. I’ve never made a proper item of clothing before!

The 21st of March.

I don’t know how things are with the chest wind today. I had porridge for breakfast in the hopes that maybe it would keep me full and stop it from setting in, but that didn’t really work because I started having the pain about eleven anyway. I did some googling and it could be bile related? I think I will see if it persists for a few more days and if it keeps going for a week I’ll get in touch with the liver team.

Back at the gym today! Karen showed me some stuff on the Synergy station, which was cool. I did some battle rope – as in, one rope, two arms. I’m not quite up to both simultaneously. Then I did this thing where I pull down on a rope that goes round on a loop which was good but also hard! Medicine ball next – hold it at the chest, push out, bring back in, above my head, back down, out in front again and twist from side to side. All slowly. And I did all of these in my chair so I can work these parts of my body without totally exhausting myself and causing myself pain. I also did some medicine ball deadlifts and yoga ball sit ups. Lastly (with Karen, anyway), I did some TRX squats and pull ups. It’s good to have stuff to do that isn’t just sitting on a machine.

That is what I did next – climbed the stairs and followed my circuit round. I was there for about two hours in total so I imagine I’ll feel it in all sorts of places tomorrow. I’m at the dental hospital in the afternoon so I hope I’m able to transfer between chairs without yelping.

Had lunch, then went upstairs to get changed because tonight I’m out at The Glee to see John Robins. Between food and more food, I managed to get a few more rounds of the jumper done. I’ve got about fifteen left and then I think I’m done so could be finishing it this weekend! Let’s hope it’s not a disaster.

 

The 31st of January.

Today has been fine, although I got a disappointing email this afternoon so now I feel quite gloomy.

I had a better sleep, thankfully, and got up when my alarm went off. I wrote up a blog post, then I got back to work on Woody. The leaves, for want of a better word, of the pine cone take ages, and I have to sit in a position that is really uncomfortable for my back while doing them which is not ideal.

After lunch, I finished the pine cone bit off, then I decided that I was going to do some exercise. It was one of my New Year’s Resolutions to start working out again, even if it was much less than before, because I can still regain some muscular strength, even if I can’t do things I’d do in the gym. So I got out my yoga mat and did some very basic stuff, mainly on the floor for about half an hour, which was enough.

Since then, I got an email from Anthony Nolan about the blog I wrote for them. They want to publish it on Friday, but have edited out a lot of the best and most important parts, because they are either “scary” or “don’t offer a shared experience” for patients reading it. I wasn’t writing it for potential patients, I wrote it to be published in the press somewhere and why will they pick it up now a massive chunk is missing? I’m aware my story isn’t very inclusive for other patients but my uniqueness is exactly why it’s so incredible. I can still put it on my blog but what’s the point when the audience is so small?

The 1st of February.

It is too cold, bleah. I had to have my extra blanket in bed last night, but I at least had a decent sleep.

This morning, I did much crochet. Simon the snowman now, and currently he has legs, a body and eyes. Very productive, but not very interesting.

After lunch, we had to go into town because it was time for my eye test. I had a long chat with the optician about what’s been going on since my last test two years ago, when I had the eye GvHD but hadn’t started any treatment. We went through all the drops in currently using, and I showed her my last letter from Dr. Barry on myhealth which was useful.

My eyes are a bit worse, as I suspected, so I’m having a new prescription and I decided to try on some new frames as well to see if there was anything I preferred to the ones I currently have. I tried on several pairs, and have chosen a green pair by Jono Hennessy, who did my previous pair, so they’ll arrive in 5-7 days. I’ll have to come up with a new logo for the blog!

The 4th of December. 

It is really easy to forget about how shitty the world is when you have got a pile of sleepy kittens to look at. 

A very weird start to the day, when trying to find out why Tim Lovejoy wasn’t on Sunday Brunch, I discovered that he has blocked me on Twitter. I’m not entirely sure what I have done to merit that, considering I don’t think I’ve ever tweeted him or even about him. Strange. 

Had both Becky and Alison round to see the kittens. One of Becky’s cats has eaten almost an entire two week supply of Penicillin, which is not ideal. High shelves are not a safe enough place to hide things. Our house is a haven of tiny kitties and Christmas spirit – I think Becky and I are probably the most festive people in the world. 

This afternoon, I finally made it back to the gym. I only did a ninety minute session, not too taxing because I haven’t been for at least two weeks so I’m definitely going to hurt tomorrow. Still, only place I have to go is to the hygienist, so it’ll be fine. 

I am now back home, having petted the kittens some more, and now Miracle on 34th Street is on. Normally I would consider it too early to be watching Christmas films but the world and his wife have got their tree up so it can’t hurt. 

The 5th of December. 

I don’t hurt as much as I expected to, which is a nice surprise. 

The kittens were absolutely ravenous this morning, but have subsequently done some tiny sicks. Well, two of them have. I have spoken to Jen to check on what they were eating and it’s the same, so obviously the move has just upskittled their stomachs. Still, that hasn’t made them any less cute; I put Pretty Kitty in my Christmas hat like a sleeping bag (I wanted to put one in a mitten but they won’t fit, ugh) and I took some super adorable photos. 

I did a couple of Cats Protection calls, trying to speak to one woman who has so far evaded me and got a call back from someone else. Right now there is only one fosterer with any cats that are available so I have to send all the forms to her. 

I only ventured out to the hygienist today. She was very taken with my festive scarf, jumper, earrings and necklace (I’m unbearable) and was very impressed with my dental health – gum score of zero again, well done me!