Archives For eyelashes

The 6th of June.

My right shoulder is the problem today. Honestly, my body just feels like a disaster zone lately.

This morning, I wrote up a blog post, then I listened to the new episode of The Naughty Step and gave the kittens a pet before a trip to Black Sheep for Michaela to cut my hair. She was away when I went for my colour, so I had to wait. It was getting far too long and tufty. Had a good chop and chat about life, gave kitten updates, and had barely finished my coffee by the time we were done. Daddy picked me up on his way back from that dump and we came home.

Had to eat some lunch very quickly, remove my eye make up, and go back out to the QE to see Mr. Kolli. Had a blast from the past while waiting for my name to appear on the screen when a girl called Rosie who I met at BCH came over. She works at a care home so was with a patient, but it was nice to see that she is fine. My eyelashes are behaving themselves for now, so I don’t need to have any more removed yet, my pressures have come down a bit (after several attempts to measure them), and my GvHD is inactive. Plan now is to do steroid drops every day for two months, then stop, and do the pressure drops every day until a week before my next appointment with him in three months. Let’s hope my eyes continue to cooperate.

The 7th of June.

Well, Dolly has been a right old pretender. Not in her disdain for us, but the kittens. All this time she has acted like she doesn’t care about them, completely ignoring them, but we had to separate them last night so they wouldn’t feed from her while they were meant to be nil by mouth, and she has made the most forlorn sounds all day. Constantly mournful yowls, so I spent my morning replying to every mew and giving her Dreamies. She only really quietened down when she fell asleep. I don’t know how she’s going to cope tomorrow night when they’re gone and not coming back.

I stayed with her until lunchtime, came out to eat, then I went back in until it was time for us to go and collect the kittens. I really don’t know if me sitting with her helped at all, but I couldn’t bear to be out of the room and hear the sadness.

Had the bonus of meeting some good dogs at the vet, and the kittens had all been fine, they just screamed all the way home. Must warn the people tomorrow.

The 9th of May.

Second catch up sleep completed. I reckon I probably have one left before I am back to normal, but that won’t be tonight because I have to get up at six for ridiculously early lung function tests tomorrow.

I wrote up a blog post this morning, but I haven’t sorted out the photos and stuff so it is yet to be published. I was upstairs getting dressed when I got a text from Mommy warning me of the imminent presence of the window cleaner (she had just gone out so saw him further down the road) so I dove behind the bed to protect my dignity. Turned out that wasn’t necessary because he didn’t appear for another forty five minutes.

After lunch, I went with Mommy to pick up Grandma from lunch club at church, then after dropping her off at home, we went to the QE for my follow up with Mr. Kolli. He had a look at my lashes which look good, although the right eye will need to be checked again in a couple of months. He also checked my pressures which had gone up to 25/26 which is bad. Have to start doing steroid drops once a day and in a month he’ll check them again. Hopefully I continue to be asymptomatic, I can stop the steroids and my pressures go down. If that doesn’t happen, I’m not sure what the plan will be. My eyes explode.

The 10th of May.

Well I definitely did not have a great sleep because just as I was dropping off, I heard a dripping sound. The rain was coming through my ceiling. I had to go and wake up my parents, who did what they could (at midnight) to stem the flow. Thankfully the rain stopped and has stayed away, but it’ll still need fixing because it’s very near my head.

Then I was up at six for my lung function tests. We arrived at hospital at eight, and I saw the same girl as I did in November, and I had to get in the box again. I think my lungs have got to a level of shitness that requires a specific test that can only be done in the box. I was in there for nearly an hour because I had to do two of the tests three or four times, plus she is nice so we were chatting.

I then sat and read my book for an hour and a half while Dr. Thompson saw the patient before me (for ages). When it was finally my turn, I was in there for about ten minutes? My results are the same as six months ago, so that’s fine. We talked about him putting the kibosh on my second liver transplant and everyone saying I would die, but five years later here I am, no second transplant, no more superbugs. He was glad I am not suing them for emotional distress. As if I care; I am just glad to be here. He couldn’t believe it was 2013. Here I am, still defying the odds. Having conversations about how long my 23% will keep going for. We don’t know.

The 13th of April.

I am not sure how easy it will be, but I’m going to try to write this with only one eye. It’s tricky trying to work out when the pen is going to hit the paper because I have no depth perception.

It’s been a really boring day, I’ll warn you now. I got a blog post done this morning, then we had to be at the QE for half twelve for my eyelash appointment. I was seen by the nurse just after one, then when I saw Mr. Kolli for the bit where he draws on my face, he said that for infection control reasons, my position on the list was going to be much later, so I wasn’t going to be done until half three at the earliest.

As I hadn’t got my two o’clock tablets and I’d finished my book, we decided to come home. Had lunch and drugs, picked up a different book (The Power), went back!

Mr. Kolli was more supervisory today. I was congratulated once again on my stoicism while being stabbed in the face but it really isn’t that bad. I felt it much harder to keep my eye open this time, but the doctor seemed to cope. Three big lashes, three fine ones. Hopefully I have some left! Then my whole eye was slathered in ointment and I have a double pad on secured with tape, which I can take off at bed time. I got some free custard creams for being brave, and here we are.

The 14th of April.

I have not quite escaped the bruising this time. Slightly less experienced doctor means more injections so I have several tiny pink blobs under the eye. Getting the tape off last night was not fun at all. I am very glad we have the stickiness-dissolving wipes because otherwise we would have ripped off half my face.

I have spent my day in the house, despite the sunshine. Never mind the miniature black eye I am sporting, there’s also the thrice-daiky ointment which only adds to the shininess. Makes a gym trip not top of my priorities list.

Instead, I have crocheted the sleeves of my jumper and finished season three of Scandal. I haven’t got to the end of the second sleeve, but I should by the end of the day.

And of course Theresa May has decided to join in with starting World War 3, so I’m going to start looking for a bunker.