Archives For eyes

The 17th of August.

I am really not into this weather. It is unacceptably cold for August.

This morning, I wrote up two blog posts, covering my crocheted dress, trip to Wales and anniversary yesterday. I’ve received so much positive feedback about the piece I posted, I’ve been really quite overwhelmed. I’m not going to start churning stuff out immediately, but if the words strike me then I might do some more.

After lunch, I braved the chilly wind to go to the gym. It was really quiet today, barely any youths or children so I was pleased. I got to listen to the new Death Cab album in its entirety and I love it. Thank you Ben Gibbard for continuing to be excellent.

The 18th of August.

This is going to be pretty short and pretty boring. I must have slept badly because I fell back to sleep after my alarm went off, and I’ve been tired all day.

Another thing that’s been going on all day is that my left eye has been acutely painful. It’s bloodshot, despite me liberally pouring Thealoz in like there’s no tomorrow. All I’ve been able to do is sit in relative darkness, listen to episodes of House and occasionally do some crochet. I’ve put some prednisolone drops in and I’m trying to believe they’ve helped so it won’t hurt all evening too.

That’s all. I really hope tomorrow it is fixed.

 

The 5th of August.

I am tired again. It’s like I run out of energy by the end of the week. Not every week, but often enough for me to have noticed.

This morning, I did my blog post during Sunday Brunch, then crocheted the dress. I have tried it on and it fits so far – the most important part was where the armholes are and that’s fine, so I can carry on. If I had tried to carry on with the 2mm hooked yoke it wouldn’t have fitted so I’m glad I binned that one off.

After lunch, I sat with Dolly, watching House and continuing to crochet. She actually stayed under the chair for the whole time, sleeping, no matter who was in the room. Louise, the lady who’s going to adopt her, brought a carrier and some stuff that smells like them so Dolly can learn their smell and hopefully acclimatise a bit more quickly when she moves. We’ve spread the blankets and jumpers about and now I’m just hoping they’re not the reason she’s staying hidden.

My sleeve is really pissing me off – it’s either falling down, or if I pull it up it digs into my hand between the thumb and my forefinger. Can’t wait to get my new one that will fit.

The 6th of August.

Ugh my sleeve is so irritating! Just the place on my hand is really sore – it has rubbed the top layer of skin off so any time I remove it, I am covering it in handcream, although it’s hard to rub in because the skin is so sensitive. Bah.

Quiet morning – just crocheting the dress. Unravelled a round, only to realise I hadn’t actually made a mistake so I was annoyed at myself. It’s coming along nicely, I just need to pay attention to my counting.

This afternoon, I have been to the gym. The hot weather must have put everyone else off going because it was really empty! Barely any youths, and only one whose body spray caught in my throat. Still, I will be glad when the holidays are over and the amount of children returns to a minimum. When I came out, it was so sunny, it hurt me to see. I had my sunglasses on and my hand-visor but it was awful. I can deal with it being hot but when it physically hurts my eyes, I struggle.

The 6th of June.

My right shoulder is the problem today. Honestly, my body just feels like a disaster zone lately.

This morning, I wrote up a blog post, then I listened to the new episode of The Naughty Step and gave the kittens a pet before a trip to Black Sheep for Michaela to cut my hair. She was away when I went for my colour, so I had to wait. It was getting far too long and tufty. Had a good chop and chat about life, gave kitten updates, and had barely finished my coffee by the time we were done. Daddy picked me up on his way back from that dump and we came home.

Had to eat some lunch very quickly, remove my eye make up, and go back out to the QE to see Mr. Kolli. Had a blast from the past while waiting for my name to appear on the screen when a girl called Rosie who I met at BCH came over. She works at a care home so was with a patient, but it was nice to see that she is fine. My eyelashes are behaving themselves for now, so I don’t need to have any more removed yet, my pressures have come down a bit (after several attempts to measure them), and my GvHD is inactive. Plan now is to do steroid drops every day for two months, then stop, and do the pressure drops every day until a week before my next appointment with him in three months. Let’s hope my eyes continue to cooperate.

The 7th of June.

Well, Dolly has been a right old pretender. Not in her disdain for us, but the kittens. All this time she has acted like she doesn’t care about them, completely ignoring them, but we had to separate them last night so they wouldn’t feed from her while they were meant to be nil by mouth, and she has made the most forlorn sounds all day. Constantly mournful yowls, so I spent my morning replying to every mew and giving her Dreamies. She only really quietened down when she fell asleep. I don’t know how she’s going to cope tomorrow night when they’re gone and not coming back.

I stayed with her until lunchtime, came out to eat, then I went back in until it was time for us to go and collect the kittens. I really don’t know if me sitting with her helped at all, but I couldn’t bear to be out of the room and hear the sadness.

Had the bonus of meeting some good dogs at the vet, and the kittens had all been fine, they just screamed all the way home. Must warn the people tomorrow.

The 9th of May.

Second catch up sleep completed. I reckon I probably have one left before I am back to normal, but that won’t be tonight because I have to get up at six for ridiculously early lung function tests tomorrow.

I wrote up a blog post this morning, but I haven’t sorted out the photos and stuff so it is yet to be published. I was upstairs getting dressed when I got a text from Mommy warning me of the imminent presence of the window cleaner (she had just gone out so saw him further down the road) so I dove behind the bed to protect my dignity. Turned out that wasn’t necessary because he didn’t appear for another forty five minutes.

After lunch, I went with Mommy to pick up Grandma from lunch club at church, then after dropping her off at home, we went to the QE for my follow up with Mr. Kolli. He had a look at my lashes which look good, although the right eye will need to be checked again in a couple of months. He also checked my pressures which had gone up to 25/26 which is bad. Have to start doing steroid drops once a day and in a month he’ll check them again. Hopefully I continue to be asymptomatic, I can stop the steroids and my pressures go down. If that doesn’t happen, I’m not sure what the plan will be. My eyes explode.

The 10th of May.

Well I definitely did not have a great sleep because just as I was dropping off, I heard a dripping sound. The rain was coming through my ceiling. I had to go and wake up my parents, who did what they could (at midnight) to stem the flow. Thankfully the rain stopped and has stayed away, but it’ll still need fixing because it’s very near my head.

Then I was up at six for my lung function tests. We arrived at hospital at eight, and I saw the same girl as I did in November, and I had to get in the box again. I think my lungs have got to a level of shitness that requires a specific test that can only be done in the box. I was in there for nearly an hour because I had to do two of the tests three or four times, plus she is nice so we were chatting.

I then sat and read my book for an hour and a half while Dr. Thompson saw the patient before me (for ages). When it was finally my turn, I was in there for about ten minutes? My results are the same as six months ago, so that’s fine. We talked about him putting the kibosh on my second liver transplant and everyone saying I would die, but five years later here I am, no second transplant, no more superbugs. He was glad I am not suing them for emotional distress. As if I care; I am just glad to be here. He couldn’t believe it was 2013. Here I am, still defying the odds. Having conversations about how long my 23% will keep going for. We don’t know.

The 27th of April.

Baby news! No, not royal baby news, couldn’t give a monkey’s about Prince Louis. No, John and Maddie (whose wedding we went to last summer) have had their baby! She is called Esmée and she is small and pink and angry-looking but I’m sure she’ll cheer up soon.

I’d just got a blog post written up when Denise arrived with a kitty for me! She (the cat) had been taken to the vet by someone wanting to put her to sleep, purely because she has a wound on her side, we think some kind of allergic reaction to a bite, and they couldn’t cope with it. But Brynn didn’t want to do that when she is so young (we think only about a year old) and otherwise healthy, so he called us. We have to clean the site with hibiscrub every day, but she’s very friendly and amenable so hopefully it shouldn’t be a problem.

I stayed with her for an hour until we had to go to the QE to have my right eye done. Thankfully, because there were only three lashes together, Mr. Kolli wanted to get me done first and quickly which I was only too happy to go along with. It was him doing the procedure today, and he did just the one injection. However, today’s was the most painful I think I’ve had. Still, it worked swiftly, he zapped the rogue lashes and whacked the patch on. I had my custard creams, then was discharged to spend the afternoon trying to ignore the itching and sitting with my new friend, who we can’t decide on a name for.

The 28th of April.

It has been a very good day!

I woke up a little bit early and watched Riverdale in bed (#JusticeForMidge) before getting up and dressed to see Adam this morning.

I got to Yorks just before him, swooping in on a table as two guys left it. Vulture skills. He popped up behind me as I was about to message him so we had a big hug then got coffee and cake. He told me some very exciting news which I will have to keep secret for a while but I look forward to it being shared. I got to give him the little cinnamon bun I crocheted and he is going to put it on his Dean shelf. He told me about how things are going at Oxford and I told him about Porno Live because he is a Belinker too.

Daddy came to pick me up because we had tickets to Infinity War at half two, so we had another massive hug and Adam went back to the station while we got in the car. I can’t say anything about the film but I have a lot of feelings. I nearly did a cry, but I also cheered a lot. It was very stressful.

Back at home, I got the new kitty (still can’t decide on a name) to fall asleep on my lap! Cat Whisperer is me.

 

The 17th of April.

I was supposed to be out tonight but I decided against it; felt like more trouble than it was worth.

This morning, I put up a blog post, then went back upstairs to put gym clothes on and try on the jumper I finished yesterday. Doing it with a smaller hook has made it fit me just right – I’m glad I didn’t go half a millimetre less or I’d be in trouble.

After lunch, I went to the gym. Had a very productive session, and all the youths are back at school so not getting in my way. I had to keep giving people looks that conveyed “No, I haven’t been punched in the face, please don’t ask me any questions”. It ranges between purple and yellow at the moment.

Got home at about half four, and I was going to get changed, have dinner and we were going to go back out. However, from looking at Twitter, the recording tonight is massively oversubscribed so there’s no guarantee I’d get in, Steve isn’t working, then there’s the palaver of picking up Daddy from the airport before me. It all just felt like much hassle and I can’t be arsed so I am staying home and I’ll hear it when it goes out.

The 18th of April.

One day of sunshine and all the men take their shirts off. Seriously, it warms up even a little bit and we are forced to view all the torsos in the land.

I did not much fancy sunbathing. I had an appointment with Trine at eleven this morning, so I had to deal with all the necessary pain that comes with that. The right side of my lower back has been really bad so I could’ve let her work on that for the whole time, but my neck has its own troubles. Love the squeezy painful pressure and ice.

After lunch, I have binged on Scandal and crocheted. The other jumper again, but longer and hopefully not so itchy. I also rang the QE’s eye department, because someone there had got confused and cancelled my appointment with Dr. Barry in May and rescheduled it for July with Mr. Kolli. I can understand why, but I had to explain to them that I see two different doctors for different reasons within the same clinic. It’s complicated.

The 15th of April.

I had planned on getting some things done this morning, but it didn’t quite go the way I’d hoped.

Had breakfast and did my blog post, then I completed the last few rounds of the second sleeve of my jumper. By then it was about eleven, and the handover of the Commonwealth Games to Birmingham was due to begin. However, nothing started happening until about half past, but that was when Mommy had to take Daddy to the airport because he’s gone to Disneyland for a work conference (yes, really). I kept watching, waiting for the closing ceremony to get good/relevant, but by the time Mommy got back (an hour later), the terrible speeches had only just finished. Finally, our Mr. Blue Sky bit was really well done; I was very proud of us! However, Brum the car was missing. He needs to be the mascot for 2022.

After lunch, I went upstairs to sort out my new business cards and update my blog logo so now my new glasses feature. And eventually I got back to the jumper, attaching the sleeves to the body and starting the yoke decreases.

Slightly purple shadow under the eye today. Lovely.

The 16th of April.

I have finished my jumper! Well, I have to sew up the armpits and weave in the ends, but that’s all. I think if I do another one with this pattern, I’ll have to come up with a different way to do the neckline, because I don’t like the way it ends up sort of cobbled together. Next, I’ll have another go at the other one.

Been a pretty quiet day for me. Just much crocheting. I had an appointment with the hygienist at two, otherwise I would have gone to the gym. She was very pleased with the state of my mouth – bleeding score of zero! Don’t let anyone tell you that you have to have an electric toothbrush to take good care of your teeth. I use a manual one and brush and floss twice a day, and I am doing pretty well. We ended up having an interesting conversation about the pros and cons of various methods of hair removal, mainly eyebrow threading. Conclusion being I am curious but more about my pain threshold than anything else. Speaking of which, she asked about my black eye and I’d completely forgotten about it. It looks much worse than it is.