Archives For gp

The 25th of April.

My back was a bit sad this morning but I can’t take that to mean anything yet. I’m going to give it a week, then make a decision.

I had to be up early because I had an appointment at the GP at ten to discuss my prescription. The hospital decided they should probably take over my regular drugs and because there are so many, it seemed to make sense to make an appointment to go in and go through it with them because enough mistakes have been made with them in the past for me to be wary. It turned out that some of my concern should have laid with Sridhar who wrote the letter to the GP because he got several of the drugs/doses wrong which is not helpful. Thankfully Dr. Bagchi is very sensible and knows to believe us about what we need vs. what might be written. Now we have all that planned, it should be fine when I next need to get some drugs. She called me “motivational”. That’s me, Little Miss Motivator.

This afternoon, we caught up on some of the tv missed last night, and then Mommy went to Grandma’s while I sat and crocheted my jumper sleeve while watching iZombie and Buffy. Tonight I am out again, this time for the My Dad Wrote A Porno Live show with Sadie! We are very excited. I’m having dinner with Mommy and Daddy first because they’re going to go to the cinema to see the Potato Peel Pie film, which is fine with me as I have no interest in that.

The 26th of April.

Oh, I fell straight to sleep last night. Porno Live was excellent, hilarious and harrowing, and I had just enough wine to not dream, but not so much that I felt the effect this morning. Perfect amount of wine.

Spent the morning in my pyjamas, finishing up the second sleeve of my jumper, then I went to get dressed for the gym, putting on one of the four pairs of leggings Sadie bestowed upon me last night.

I did more in the gym today than on Tuesday. Not everything I usually do downstairs, because there were people in the way of the equipment, but got along happily with everything upstairs because there it was almost eerily quiet. I stared at a girl for a bit too long because she was so strong and I wanted to be her. There was also an old man and I didn’t particularly want to be him but he was carrying a sweater that looked ever so soft that I kind of wanted to wear.

Back at home, I’ve watched some Buffy and Scandal, and I’m going to start assembling my jumper.

The 15th of November.

Oooh I am very tired this evening. I think it is a caffeine crash, after having two flat whites with Vicky this afternoon.

Quiet morning – wrote up a blog post, and used a different brand of dexamethasone eye drops (the ones that came from the GP instead of hospital) only to find that there is preservative in them and it was really bloody painful. This is why I don’t go to the GP about things.

After lunch, I met up with Vicky at 200 degrees in town for coffee, cake and chat. I pretty much had a massive moan about all the things wrong with my body – my eyes, my arm, my lungs, my gynaecological issues. Mostly minor things but they all add up. And she offloaded about shit she is dealing with, then we talked about nice things like hanging out with Joe last night and stuff we have been watching on Netflix (mainly Stranger Things). We also enjoyed a funny coincidence of a chap at the table next to us mentioning Joe, so I sort of interrupted (in a polite way) and it turned out he was Joe’s friend Paul who is fairly pivotal to the show! What a small world.

The 16th of November.

Assembly day.

This morning was quiet – finished crocheting the remaining parts of the current project while I watched the new episode of Riverdale. Washed my hair. I suppose that is all.

After lunch, I put together the first little fellow, then didn’t have time to do any more before Ann and Tom arrived to see the kittens again. We’ve been letting them out to run around so this time they scampered up and down the room, gamboling and fighting.

Once they’d left, I put some shoes on and we had to get going to Hallfield for an OHS committee meeting and the AGM. Roshan, the GP in the group, arrived at the same time as me, and we hovered outside, ringing the bell until we were let in. Then we hung around until the Richards and Aman came out of the Head’s office so we could start the meeting. Although, first Richard (the Head) wanted to show me how he’s redecorated – he has got some very comfortable Chesterfields! Probably not conducive to a meeting though.

Speaking of which, it was pretty short and sweet, and now I’m the vice-chairman. Yeah.

The 12th of October. 

I had my first reasonable sleep in weeks last night. As in, it didn’t take me hours to fall asleep. That might be because of how exhausted I was – I was too tired to eat even half of my tea. 

I woke up with a suddenly very tickly throat that wouldn’t abate unless I drank continuously. It cleared up once I brushed my teeth, but I couldn’t go back to bed. I had an appointment at the GP anyway – they wanted to talk to me about my latest letter from ophthalmology. Turns out they were confused about my prescription. He was actually very reasonable, and we did a bit of a prescription audit so it’s up to date now. 

This afternoon, I watched the new episode of Riverdale (yay!), and felt up to doing a bit more crochet. Another assembly job next. I never know how the cough is going to be the next day so we’ll see how I feel tomorrow. I’ve got a ticket to see Jayde at The Glee tomorrow night but I can’t see that happening with the way I am. It’s probably not a good idea even if I am feeling better. I’ve coughed enough today for my ribs to hurt and me to get paranoid that I’m going to pop my lung again. 

The 13th of October. 

Bleugh. I had another decent night, but I’m still knackered this evening. I’ll have had this for three weeks on Sunday. 

The cough has changed again today – it was really dry overnight and first thing, and as the day has progressed, it’s been constant phlegm. Wish it had been like this on Wednesday and I could’ve given the hospital a better sputum sample. We have another pot so if I’m still going on Monday we can take that in. 

This morning, I put together the doll I’m making, although I had to reattach the right leg three times because I just couldn’t get the angle to match the left one. 

Then, after lunch, I started on the clothes. It’s pretty straightforward so far, just long. It needs details though, and they will be tricky.  

Oh god I am so tired. Obviously no Glee tonight. I just want to sleep until I am better. 

The 5th of May.

More trips out today. Busy busy.

When I woke up, I was struggling, because the oxygen cylinder upstairs had run out. However, things have improved since then. It is always worst in the mornings and evenings. After breakfast, I watched the new episode of Riverdale, and (no spoilers) SO. MANY. REVELATIONS. Also I am sick to death of Veronica Lodge always bringing it back to her and her dad. Do not care, shut up.

I had an appointment at the GP at quarter past one to discuss pain relief. The buprenorphine is making absolutely zero difference to my pain, and she seemed quite surprised to hear this. The next step is to try pregablin instead, so I’ll start that tonight. Fingers crossed it doesn’t affect my breathing.

We came home for about an hour, then we were back out to the dental hospital, just for a check up. They were running late, so I got a lot of The Burial Hour read while we waited. I got called by a young dentist called Joseph who looked about twelve, but was very competent. He looked at my mouth to see if there were any signs of GvHD while another dentist scribed, then we just had to wait for their senior colleague to check I was fine. He was with another patient, and while we sat, we got onto the subject of Netflix, and the girl who’d been writing watches Pretty Little Liars and Riverdale too, and they both watched 13 Reasons Why, so we were in no rush for him to arrive.

Dr. Khan finally came, and thinks my mouth looks the best he’s ever seen it, so they don’t want me back for four months.

As soon as we left, I reopened my book as I was at a critical point, and now it is finished. Oh, Jeffery. Clever, clever Jeffery.

The 6th of May.

Do not like this new pain drug, pregablin. So far it is not making my back feel any better, it has just made me really sleepy all day. Not exactly tired, but my eyes just want to close. It’s not ideal. I’m going to continue with it for a few days, see if the sleepiness wears off and the pain gets any better. I’m not optimistic but I have to give it a chance.

My day has been a really rather dull one, for the most part – I have been sitting with the laptop, typing up the blog entries that I have got behind on posting. There were six to do I got three done. They’re still not posted because I need to add photos and I do that on my iPad. It is very boring but it must be done.

I had a couple of breaks in which I went to sit with Sam and we were both sleepy. He is such a good boy that if nobody wants to adopt him, I will beg Daddy to let us keep him. He won’t live that long, won’t cost us a huge amount of money.

This evening I went out with Sadie to see Joel Dommett. She is a bit in love with him and asked if I’d go so I agreed – although I’ve already seen his show, I was interested to see how he would make the show work, going from a 90 seat room to an 1800 seat one. When we arrived, I saw JT, and we had a little catch up, then he had a look at our tickets and asked if we wanted to go in the wheelchair space instead. Considering they were better seats and I didn’t have to move, I was only too keen to say yes.

The show has definitely improved since October, and I think it actually works better in the larger space. I’d completely forgotten about Laser Dick, but by the second chorus I was singing along again. And he’s changed the ending, which I won’t spoil, but it’s definitely more suitable for the bigger venues he’s doing. He’s not coasting on the fame he’s got from I’m A Celebrity; he’s worked really hard and it’s paying off.

The 21st of September. 

Yeah everything hurts. Literally every muscle. I just got stuck in the middle of the living room because it hurt so much to move my legs. Mommy has found it all vastly amusing and has been laughing at me all day. 

This morning I did very little seeing as moving was so agonising, but this afternoon I had to extricate myself from the armchair because we had to go to the GP for our flu jabs. When we arrived, they weren’t actually open yet and people were queueing outside. Thankfully we didn’t have to wait too long before they opened the doors to let us in. We were told to have our left arms ready and Helen called our names. We both got jabbed and off we went!

When we got home, I looked into the whole blog-hosting thing, and it seems that SquareSpace don’t do domain transfers yet. Seeing as I just got a bunch of business cards made with my website address on, I kind of need to keep it. I still think I’m going to do an overhaul of the site but that can wait. 

When I came back downstairs, we watched the final episode of One of Us (I worked out the twist about two minutes before it was revealed) and I complained about being freezing. Thermal vest, jumper and cardigan. 

The 22nd of September. 

Today has been marginally better. My movement is about 2% better. Seriously, I am broken. I have actually tried not to move because I can feel how stiff I am and I know when I do have to get out of my chair, it’s going to be excruciating. 

Our only trip out today was to the Women’s Hospital for my follow-up appointment with the specialist nurse to see how I’m getting on with the dilators. She is very punctual – 1.45 on the dot she called me in, I didn’t even have time to open my book! She asked how it was going and I said not well; I am still on the first one and feel like I’ve made no progress at all. She asked a couple of questions to make sure I’d been doing it right and I have, so we had to go to an examination room. Jeans and pants off (with difficulty), legs akimbo, and she had a feel (it was more professional than this sounds). She said it feels quite badly stenosed, which is something you can get from radiotherapy or chronic GvHD, but to determine as to whether it’s that or muscle spasm, I’m going to have to have a general anaesthetic to be examined. So that’s fun. I do like the magic liquid sleep. 

Since getting home, I have stayed in the armchair and crocheted. I really want to stretch out on the floor but I’m not sure I could get up again. 

The 4th of August.

I have been sat in front of the computer in the dining room all day. More tickets for Harry Potter and the Cursed Child went on sale at 11am. 

First there was some stress because Chrome didn’t seem to be downloaded on Mommy’s account on the PC, so we had to do that before anything else. We got in the pre-queue easily; it seemed from Twitter that some people were having a lot of trouble. It didn’t matter what time you joined the pre-queue between ten and eleven; your place in the ticket-buying queue was a total lottery. We got number 38515. Some people I know got a better place, some worse. We just had to wait. 

After a couple of hours, we were able to deduce that we were going to be waiting until about eleven pm. Mommy had to take Grandma for her ultrasound, so I had to watch the screen. The website that I’m not on sold out just after half past one, so I was really glad Christine told us to use Nimax. 

To pass the time, I have been binge-watching Fringe (I have nearly two seasons to watch before it expires on the 14th) and crocheting the cookie jar kitten. I have been taking the morphine and so far it isn’t making a huge difference. It’s only three doses so I’m not surprised; I think it’ll take a couple of days. I haven’t been sick though so that’s a plus. I’ve finished the kitten, and now there’s only 2414 people ahead of me. It’s speeding up! I just hope we actually get some bloody tickets or I will probably cry. 

The 5th of August. 

Last night was one of the most awful I can remember having in recent memory. 

We got the Harry Potter tickets by half past seven, thank the literary/theatre gods, then it was teatime. I’d had my third dose of oramorph, and I’d felt a bit sick throughout the day but it had generally gone away. The evening meal seemed to make it so much worse. I couldn’t face even taking my normal tablets at bedtime, let alone another shot of morphine. No more of that please. 

I had to get upstairs, but once there, I just couldn’t leave the commode bucket. I knew I wasn’t getting to sleep until I’d thrown up; it was that kind of gut-wrenching, painful nausea that you know can only end one way. I sat on the floor in my pyjamas with my dressing gown around me, switching between too hot and too cold while watching more episodes of Fringe, seeing as I needed something to distract me. Mommy stayed until about half twelve when I sent her to bed (there was no point doing it any earlier because she would just lie awake waiting to hear me), when I thought it might be getting better. I very slowly managed to take my tablets, but I didn’t get into bed until about quarter to two. I watched one more Fringe, then lay not quite all the way back in the dark, holding a pillow/my forehead/digging my nails into my palms, listening but not paying attention to podcasts. This went on until half past four, at which point I was in absolute agony, far worse than the pain I’d been taking it for in the first place. Then I suddenly had to scramble out of bed and promptly vomited into the commode bowl, onto my pyjama bottoms and all over the carpet. I called out but nobody heard, then I threw up again, and again. I couldn’t go and get someone because there was sick on the floor that I didn’t want to stand in, so I rang our landline on my phone, and when it was answered I just wailed loudly. Mommy came back in (I realise from this description that it sounds like I live in a mansion and she was miles away but I don’t and she was next door) and helped me clean myself and the floor up, thankfully having been asleep so at least one of us was. The throwing up did make my stomach feel better, and I was able to actually lie down comfortably. I think I fell asleep at about half six, then woke up at half eight and again at ten, when I thought I should get up. So, three and a half hours of sleep. I feel so rested. 

To the daytime! First thing was that we spoke to the clinical nurses again, who recommended Oxycontin and if the GP couldn’t give us any today, to let them know and they’d sort it. We’d obviously missed all the morning appointments, so our next option was to ring or go and get an appointment in person at 2, and we thought in person would be better. 

We went out just after lunch, and got in to see Dr. Sangha at 4.20pm. He is my actual named GP so it’s nice to see him once in a while. I needed to go into town for some bits for a care package I am sending, so we had a trip there to kill time. I got all the pieces I wanted from Tiger, coffee (desperately needed), some make up from Superdrug that I couldn’t find in the one in Sutton, and a card and some tissue paper from Paperchase before we went back to the doctor’s.

He was running late, so I finally got Animal finished! So at least being so sick has got things done. When I got called in, he had a reg with him (I’m sure they had a fascinating chat afterwards), and we discussed what I needed. We went through what I’ve had so far, and now I’m written up for oxycontin, oxynorm and ondansetron just in case I feel sick again at all. Hopefully I don’t. 

Boots didn’t have the oxynorm so we need to get that tomorrow, and maybe things will start to get better?

The 2nd of August.

The one day I’m actually able to sleep past eight o’clock, I got woken up by Mommy at ten past because she’d got me an appointment with a different GP at twenty past nine. We decided to go back because of the gabapentin causing me breathing trouble, so it needed changing. Because it was for this reason, I didn’t mind being woken. I got up and dressed as quickly as I possibly could, and had time to eat my cereal but not have coffee before we had to go out. 

Dr. Carter was a very sensible and reasonable person, and she actually listened to what I had to say. After some chat, she just asked what I wanted. I said morphine or oxycontin, so we decided on oramorph. I have to taper off the gabapentin first, so I’ll start it four-hourly on Thursday. Hooray!

Came home to have coffee and give the kittens breakfast. I spent the rest of my morning writing, and anxiously checking my inbox for replies from some people I sent my piece about second transplants to. 

After lunch, I watched the third episode of Mr. Robot, so I’m caught up on what’s been shown, and had just started one of Fringe when Sheila rang to tell me about a potential adopter for Nola. We went through all the information, and had got to the end when she was recanting a conversation she’d had with the woman, said the name of the kitten she’s interested in, and it isn’t one of mine at all! Whoops. At least she realised before I phoned the woman; that would have been very confusing. 

After we hung up, I have started on the cookie jar cat, and I’ve had responses to both the emails I sent which I am 90% happy with so it has been a positive day!

The 3rd of August.

It was not a good night, and the day has not been much better. I was really cold in bed, having to pull up my blanket over the duvet to be warm enough. In August. I despair. 

I woke up ten minutes before my alarm, which was set for half past seven because I needed to be at the (new) dental hospital for 10.35, but we had to leave the house earlier than we normally would because the cricket was on today and Edgbaston Cricket Ground is right by the dental hospital, so we thought parking opportunities would be scant. This turned out not to be the case; there was plenty on-site, so we were really early!

I checked in and we went to sit in the assigned area to wait for my name to be called. We both got decent chunks of our books read, and not too long after my appointment time, I was called in. Through the doors and down the corridor to the booth on the end, where I met a new dentist called Dev. We ran through my drugs and talked about how I’ve been, then he had a look in my mouth. There is an ulcer on my tongue at the back on the right, but we didn’t think it was massively problematic. He went to get Mrs. Richards to check, and she actually thought a steroid injection was necessary, just to give the ulcer a hand in moving on. This was a surprise to us but I wasn’t opposed to the idea. Dev got another dentist, a chap I have met before, to help him. He put some local anaesthetic into my tongue, but the first lot didn’t seem to have any effect, so he had a second go, and that one I felt. My tongue then went numb and swelled up as it should have, and then the steroid was injected into the ulcer. I am to go back in six weeks. 

As we drove home, I had to ring Grandma with my huge tongue and explain to her that we had left and Mommy would be with her as soon as possible, because they were supposed to be going to a funeral and time was being squeezed. 

We decided to actually pick her up and go straight to the church, where I would go home from in my wheelchair. However, when we arrived, it emerged that Grandma had a very enlarged leg and a potential DVT, so she was not going to this funeral. We went home, Mommy sorted out her stuff and went back to Boldmere Court to take Grandma to A&E, as the GP was going to take too long. 

I had to wait a good couple of hours before my tongue had gone down enough for me to be able to eat lunch, which I managed to make but my back did not make it easy as I had to go down to one gabapentin today. Like being constantly poked in the back with a cattle prod. 

The post arrived, and there was a letter for me from Andrew Mitchell, my MP, in response to my email regarding Anthony Nolan’s campaign to not withdraw funding for second transplants. He was not interested. He feels that they’re not cost-effective, not good value for money for the taxpayer. I was a waste of money. He also wanted to let me know just how much the government has done for the donor registers, which is all well and good but pointless if we’re not able to use those donors for their matches. So then I spent the rest of my day trying to write something about it. It was hard. 

Mommy got home about teatime. Grandma’s blood test didn’t show a DVT but that’s not 100% reliable so she has to go back for an ultrasound tomorrow. 

Morphine in the morning. Hopefully I don’t throw up.