Archives For hospital

The 26th of June.

Oh god it is too hot for existing. No gym this week – it’s hard enough to breathe doing normal activity in this heat, really don’t think exerting myself is wise.

This morning, I typed up a blog post, although I have just realised that I didn’t actually post it, so I’ll do that once I’ve finished this.

Daddy took me to The Spire for twelve, for my appointment with the lymphoedema nurse. She measured my arm for my sleeve, and apparently I will be wearing it for quite a bit longer than six to eight weeks. I will see her six weeks after the surgery, which is when all the swelling will have calmed down a bit.

On the way home, we went to Tesco to buy ice lollies. Ended up with Calippos, Mini Milks and Fruit Splits, so we have loads of choice. Calippos give me flashbacks to Ward 8 after my liver transplant, became I could gnaw on them and not throw up, because flavoured ice was one of the only things I could actually digest. Eating them now, in the sunshine, is highly preferable.

This afternoon, I have been making my extra hexagons. Three colours left to do.

The 27th of June.

Pre-op day! Had to be there at ten thirty, and Daddy had to go to work but thankfully Alison was able to take us. It was pretty straightforward – we went through my history, albeit briefly, because they don’t need to know everything, talked through what I’m having done, had some bloods done, blood pressure, urine sample. That was entertaining because they gave me a she-wee-like device to get the pee into the bottle. I’m not sure how helpful it was. I’ll need to pick up a prescription for some pre/post-op antibiotics, and I might have to go back the day before for a group and save if they think I might need blood. Unlikely.

This afternoon, I have finished all of the hexagons, for definite this time, and been vaguely aware of the Germany/South Korea match. I also had a somewhat infuriating chat with the mechanic who’s fixing Mommy’s car. I told him multiple times that I wasn’t her, but he refused to hear it and just kept talking so I had to pretend it was my car and tell him I’d get back to him about picking it up. Thankfully not long after that, Daddy got home so he went down there to deal with it. I now understand Mommy’s reaction to that guy.

The 20th of June.

I stayed up a bit late for me last night to watch the live stream of Death Cab from Scala. I couldn’t go, and they’re not coming here on their tour, so that was my only opportunity. I’m quite glad I wasn’t there, because it was apparently disgustingly hot. I just love to watch Ben Gibbard dance. It makes me a bit sad too, because the thing I miss most about being able-bodied is being to sing and dance at the same time. So much.

Today, I was up early for oxygen clinic, which is usually very straightforward. We didn’t get off to a great start, because someone annoyed Mommy in the car park, so she decided to follow them, then we were about to park in a space when a woman decided she was going to try and swing into it, going against the one way system. We were not having this, so honked the horn at her loads and shouted at her through the window that this was not allowed and she had to reverse. Really don’t know where this burst of rage came from, but it was very funny.

Clinic itself was fine! Apart from the machine not working the first time so the nurse had to stab my ear twice. But my blood gas was better than last year! Not really surprising when at my last appointment I was still recovering from pneumonia/fungal infection but still, it’s pleasing.

This afternoon, I have made hexagons. I have completed the first set of nineteen! And I got Dolly to come out for a treat stick and she stayed out. Progress!

The 21st of June.

Well I had every intention of going to the gym when I got up this morning, but unfortunately we’ve had no cars so that idea was quickly shelved. Mommy’s car was going into the garage to be fixed after she scraped it along the wall, but then Daddy’s had to go in as well for some valve/charcoal problem that arose yesterday. Therefore, no cars, no gym.

This morning, I spoke to the train assistance people because I accidentally booked it twice for the same journey, so I cancelled the one in which they’d put me in coach A because I hate that space. Then I rang the Reservations Team at The Spire, so I’m seeing the lymphoedema nurse of Tuesday to fit me for my post-op sleeve, then having my pre-op assessment on Wednesday. I can’t believe it’s going to happen soon. I know it might seem trivial, but I have lived with an arm that is 37% bigger than the other for a year and a half, just as I’d actually developed a pretty healthy relationship with my body. There’s so much about myself that I can’t change and don’t have a choice about learning to live with, but I can fix this, and I’m going to.

After lunch: hexagons. Attempted to touch Dolly which made her jump and she’s spent that afternoon on top of the china cabinet, way out of reach. Maybe I was being optimistic.

The 6th of June.

My right shoulder is the problem today. Honestly, my body just feels like a disaster zone lately.

This morning, I wrote up a blog post, then I listened to the new episode of The Naughty Step and gave the kittens a pet before a trip to Black Sheep for Michaela to cut my hair. She was away when I went for my colour, so I had to wait. It was getting far too long and tufty. Had a good chop and chat about life, gave kitten updates, and had barely finished my coffee by the time we were done. Daddy picked me up on his way back from that dump and we came home.

Had to eat some lunch very quickly, remove my eye make up, and go back out to the QE to see Mr. Kolli. Had a blast from the past while waiting for my name to appear on the screen when a girl called Rosie who I met at BCH came over. She works at a care home so was with a patient, but it was nice to see that she is fine. My eyelashes are behaving themselves for now, so I don’t need to have any more removed yet, my pressures have come down a bit (after several attempts to measure them), and my GvHD is inactive. Plan now is to do steroid drops every day for two months, then stop, and do the pressure drops every day until a week before my next appointment with him in three months. Let’s hope my eyes continue to cooperate.

The 7th of June.

Well, Dolly has been a right old pretender. Not in her disdain for us, but the kittens. All this time she has acted like she doesn’t care about them, completely ignoring them, but we had to separate them last night so they wouldn’t feed from her while they were meant to be nil by mouth, and she has made the most forlorn sounds all day. Constantly mournful yowls, so I spent my morning replying to every mew and giving her Dreamies. She only really quietened down when she fell asleep. I don’t know how she’s going to cope tomorrow night when they’re gone and not coming back.

I stayed with her until lunchtime, came out to eat, then I went back in until it was time for us to go and collect the kittens. I really don’t know if me sitting with her helped at all, but I couldn’t bear to be out of the room and hear the sadness.

Had the bonus of meeting some good dogs at the vet, and the kittens had all been fine, they just screamed all the way home. Must warn the people tomorrow.

The 27th of April.

Baby news! No, not royal baby news, couldn’t give a monkey’s about Prince Louis. No, John and Maddie (whose wedding we went to last summer) have had their baby! She is called Esmée and she is small and pink and angry-looking but I’m sure she’ll cheer up soon.

I’d just got a blog post written up when Denise arrived with a kitty for me! She (the cat) had been taken to the vet by someone wanting to put her to sleep, purely because she has a wound on her side, we think some kind of allergic reaction to a bite, and they couldn’t cope with it. But Brynn didn’t want to do that when she is so young (we think only about a year old) and otherwise healthy, so he called us. We have to clean the site with hibiscrub every day, but she’s very friendly and amenable so hopefully it shouldn’t be a problem.

I stayed with her for an hour until we had to go to the QE to have my right eye done. Thankfully, because there were only three lashes together, Mr. Kolli wanted to get me done first and quickly which I was only too happy to go along with. It was him doing the procedure today, and he did just the one injection. However, today’s was the most painful I think I’ve had. Still, it worked swiftly, he zapped the rogue lashes and whacked the patch on. I had my custard creams, then was discharged to spend the afternoon trying to ignore the itching and sitting with my new friend, who we can’t decide on a name for.

The 28th of April.

It has been a very good day!

I woke up a little bit early and watched Riverdale in bed (#JusticeForMidge) before getting up and dressed to see Adam this morning.

I got to Yorks just before him, swooping in on a table as two guys left it. Vulture skills. He popped up behind me as I was about to message him so we had a big hug then got coffee and cake. He told me some very exciting news which I will have to keep secret for a while but I look forward to it being shared. I got to give him the little cinnamon bun I crocheted and he is going to put it on his Dean shelf. He told me about how things are going at Oxford and I told him about Porno Live because he is a Belinker too.

Daddy came to pick me up because we had tickets to Infinity War at half two, so we had another massive hug and Adam went back to the station while we got in the car. I can’t say anything about the film but I have a lot of feelings. I nearly did a cry, but I also cheered a lot. It was very stressful.

Back at home, I got the new kitty (still can’t decide on a name) to fall asleep on my lap! Cat Whisperer is me.

 

The 23rd of April.

It has been a very boring day.

This morning, I wrote up a blog post, sewed up the seam of the first sleeve of my jumper, and got very bored of hearing about the new royal baby. So much baby news. Now he is born and home, one hopes it will die down once we know his name.

I had an ultrasound with Andrew at one, to check if there were any strictures or thromboses in the lower arm. After checking all the veins, and looking at the visible tissue, it seems my veins are fine, there isn’t any fluid anymore, and now there are just fat deposits in my arm for no reason! So I’m going to get back in touch with Anne Dancey to explore my options. I can’t leave it like this.

Then we had two hours to kill, so we bought some crap sandwiches from WH Smith and read our books. Much book-reading today. I finally went in to the x-ray suite at quarter past four, where Dr. Blaney was waiting. I lay face down, trying to breathe comfortably. My lower back was exposed, and I then had an x-ray probably every twenty seconds while Dr. Blaney did lots of injections. I think he was doing some local anaesthetic, then putting in a bigger needle and using that for the steroid. It took maybe five to ten minutes and was slightly uncomfortable, but not enough to put me off having them again. If they work, that is – it’s hard to tell at the moment. They might work immediately, it could take a few days, or they might not work at all. If they don’t, I don’t know what I will do.

The 24th of April.

Well, I think I might very tentatively say that my back may be slightly improved?

This morning it was quite tricky to tell, because I didn’t do anything to really test it out. I got up, had breakfast and coffee, and listened to The Riverdale Register while getting dressed for the gym. Mommy and I printed out all our tickets for Mach so they are sorted in folders for when they’re required, then I did the first two rows of the second sleeve of my jumper.

After lunch, I went to the gym for a short session. Partially because I didn’t want to overdo things, and partially because Mommy had to be at Grandma’s for twenty to four, so I needed to finish earlier than I usually do. Basically, I skipped all the stuff I do downstairs, so I just did the circuit of machines upstairs. I didn’t have the pain I was experiencing last time, but that was a very bad day. The pain is definitely not gone, but I think it might be a tiny bit better.

Tonight I am out at the mac seeing Tez and the seats there are not the most comfortable, so that might give me a better assessment.


The 13th of April.

I am not sure how easy it will be, but I’m going to try to write this with only one eye. It’s tricky trying to work out when the pen is going to hit the paper because I have no depth perception.

It’s been a really boring day, I’ll warn you now. I got a blog post done this morning, then we had to be at the QE for half twelve for my eyelash appointment. I was seen by the nurse just after one, then when I saw Mr. Kolli for the bit where he draws on my face, he said that for infection control reasons, my position on the list was going to be much later, so I wasn’t going to be done until half three at the earliest.

As I hadn’t got my two o’clock tablets and I’d finished my book, we decided to come home. Had lunch and drugs, picked up a different book (The Power), went back!

Mr. Kolli was more supervisory today. I was congratulated once again on my stoicism while being stabbed in the face but it really isn’t that bad. I felt it much harder to keep my eye open this time, but the doctor seemed to cope. Three big lashes, three fine ones. Hopefully I have some left! Then my whole eye was slathered in ointment and I have a double pad on secured with tape, which I can take off at bed time. I got some free custard creams for being brave, and here we are.

The 14th of April.

I have not quite escaped the bruising this time. Slightly less experienced doctor means more injections so I have several tiny pink blobs under the eye. Getting the tape off last night was not fun at all. I am very glad we have the stickiness-dissolving wipes because otherwise we would have ripped off half my face.

I have spent my day in the house, despite the sunshine. Never mind the miniature black eye I am sporting, there’s also the thrice-daiky ointment which only adds to the shininess. Makes a gym trip not top of my priorities list.

Instead, I have crocheted the sleeves of my jumper and finished season three of Scandal. I haven’t got to the end of the second sleeve, but I should by the end of the day.

And of course Theresa May has decided to join in with starting World War 3, so I’m going to start looking for a bunker.

 

The 6th of March.

Back to the crochet habit. Might as well!

I woke up still tired, wanting to stay in bed but I forced myself up. Rosemary was coming round for lunch, so we had no trips out. I spent my morning writing up a blog post, then I started another sausage dog. This one is brown and cream, which is not a combination one sees often in them but it’s in the book and if it looks shit then I won’t give it to anyone. Rosemary did like the one I’ve already done, in black and brown, because he looks like her dog, Otto.

While she and Mommy had lunch, I watched the first episode of season five of Agents of S.H.I.E.L.D. Absolutely batshit insane – jumped forward seventy five years into the future in space. Obviously.

This afternoon, I made the head and ears of the dog, watched some Bones, and booked Mac into the vet for his secretary vaccinations tomorrow afternoon. Got a viewing on Thursday.

The 7th of March.

Tired. Up early for hospital. Not haematology, as was also previously in the diary for today, just ophthalmology. Mr. Kolli, not Dr. Barry. Today was about rogue eyelashes. The clinic was running very late – they were missing a registrar – so I didn’t get seen until an hour after my appointment time. That was fine – I got a lot of Eat Up! by Ruby Tandoh read. I wish I could give it to my thirteen year old self and keep her from developing an eating disorder to begin with. I wish I’d be able to read that instead of Wasted.

He checked my pressures and they haven’t gone down very much, but he wants me to try to get the prednisolone eye drops down to twice a day before trying anything new. He’s going to get me booked in to do the left eye again, then do the right eye a few weeks later. It would be tricky to drive my chair if they did both at the same time.

We’d been planning on going into town to do some shopping, but by the time we got out, there wasn’t time, so we just came home for lunch.

Mommy went to Grandma’s, then when she got back, we took Mac to the vet. He was a good boy, just very chatty on the way! If only all trips there were so easy.