Archives For hospital

The 18th of October. 

I think I am getting better? Very slowly. Like, I am definitely coughing less. I haven’t been quite as phlegmy today? Ohh progress is glacial. 

This morning I did a blog post, and did some more phoning to find out what’s going on with my Andrew appointment. Turns out Christine hasn’t had anything about me, but because I’ve made contact with her, she’s going to find me-related paperwork and wave it in his face so he tells her what he wants. 

After lunch, back on the crochet. Starting a Christmas present (eee!) – have to start thinking about that. Mommy and I have booked our train tickets for our annual London Christmas shopping trip. I hope I can wear more of my festive jumpers this year. 

My left eye has been protesting all day. So looking forward to going to bed and closing them. 

The 19th of October. 

I am just exhausted this evening. It’s not like I’ve been out much, or had a bad night, I’m just tired. Bleah. 

I spent my morning sewing beads to the thing I’m making for Heidi. Mommy had taken Alison to her physio appointment, and must have done something to the door, because when the veg man arrived, I couldn’t open it. It shouldn’t have been locked, but I got my keys and tried anyway. Couldn’t open it. I tried everything but it wouldn’t budge. He put the box in the porch and I yelled out the window “Sorry, I’m locked in!” When Mommy returned, she couldn’t open it from her side, so I ended up having to open the garage and let her in that way. I didn’t have to walk much, but I could barely breathe. I know I’m not well at the moment but still…I think the pneumonia has probably damaged them permanently. I suppose I’ll have to ask Dr. Thompson in November.

We had trip to St. Giles again today to try some more sleeves – not going for made-to-measure just yet. I’ve got two – one that stops at the wrist so I’ve got a glove to go with it, and one that’s the same style as my other one, both in different materials. I’m not enjoying the glove; it’s so squeezy on my fingers. 

And my eye is bad again today. Can I rest, please? Let me rest. 

The 16th of October. 

Started my day with a phone call from Shaki. She was outside, about to put some paperwork through my door, but didn’t want to come in because she has tonsillitis, bless her. Poor us. 

Once dressed, I got downstairs and promptly chucked my water over the table in the living room. This meant I had to take everything off it, including the heavy glass top so the embroidery underneath could dry. Well done me. 

I rang Emelda to discuss my next appointment with Andrew, but found out she’s on annual leave. Rats. I’ll try Christine, the appointments lady, again tomorrow. Then I wrote up a blog post, trying to ignore the apocalyptic light that’s been over us most of the day. 

Lunch, then sat here crocheting a cowl most of the afternoon. Suddenly it was half past four and we had to go to the chiro for my rescheduled appointment. I knew it was going to be painful, but necessary. The muscles that go up either side of the spine had contracted so no wonder I’ve been in more agony than usual. Plus lying on my front on that floor has been bad for my neck so it was a generally unenjoyable visit. 

I also spoke to a lymphoedema nurse because I’ve not been able to wear my compression garment today because it has made the skin on my elbow raw due to it being so tight. Going to try another brand. Why is nothing ever simple?

The 17th of October. 

This is exhausting. I think last night was better? The cough has been pretty similar today – I’m still bringing up phlegm the same colour as before so I emailed Dr. Thompson again. Today is the last day of the co-amoxiclav, and the last sputum sample I gave was essentially spit so obviously it hasn’t grown anything. Anyway, he wants to leave it a few days and we’ll see how I am. 

Spoke to St. Giles again and they want me to have a made-to-measure sleeve, so I’m being measured for that on Thursday. Also spoke to Mr. Titley’s secretary because I haven’t had my letter about Tuesday yet. She said one has been sent, but if it doesn’t arrive by Thursday I’ll be ringing her back. I do need to know what time to turn up etc. This cough better have fucked off by then too or we’ll be in trouble. 

I spent my afternoon watching stuff on Now TV and crocheting the cowl. It’s finished now. I watched the Nashville concert at the Royal Albert Hall and got emotional at Stand Up because it reminds me of Dean. I miss my friend. 

The 6th of September.

I am sleepy. Awake early for haematology clinic. We arrived at ten, and left at one. For once, I cannot complain about not getting enough of my book read, because that it all I did for nearly two hours. Charlie called me in, and to be honest, he hadn’t got much to do for me, just prescribe all the drugs, and he’s referred me to an immunology clinic to see how well my immune system is functioning, so that’ll be interesting. 

We got to pharmacy just after twelve, and then went to get coffee and sat around for 45 minutes, waiting for my prescription to be ready. Then a very quick trip into town; I needed another set of drawers, and Mommy decided she wanted some too, so she can put all her cross-stitching threads in them. I also needed toothpaste, and got some flat brew espresso chocolate spread. 

Finally got home just after two, and fed the hungry kittens and ourselves. Then I got to sit and crochet, while Mommy ended up taking Alison into Sutton for some errands, because with a broken wrist, she can’t drive or carry things. Then she was off to Grandma’s! She does too much. I worry. 

The 7th of September. 

It’s a good thing I got a good sleep last night as I’m unexpectedly going to be up early again tomorrow. Rang up the dental hospital to sort out my next appointment, because no letter has come through, and after half an hour on hold, I was given half past nine tomorrow! Wasn’t going to say no, after all that. God knows when the next one might be. 

I’d ordered a memory foam cushion for my wheelchair which we needed to pick up from the sorting office, so we did that, then went to Tesco for some Stork and milk (have some baking to do). 

At home, we found that the cushion doesn’t fit the chair, which was always a possibility as we didn’t know the dimensions, so that’ll have to go back. I also received a coat from ASOS, which I am not keeping – I need something with large sleeves that isn’t the fur (too much shedding) and they’re just not big enough. 

This afternoon, I’ve done a bit more make up sorting with my new drawers, wrote up a blog post, and crocheted some more doily. 

Shaki is coming to see the cats at the weekend. We’ve made zero progress with Henrietta – she still hates me and continues to attack me, even when I am giving her treats. She is probably going to end up going to some stables and catching mice. 

The 21st of August. 

This summer has been such garbage. Last night I had to have my blanket on top of my duvet because it was so cold. I am wearing a polo neck jumper in the middle of August. Ridiculous. 

This morning I did a blog post which took forever to upload – I think I need to look at the app I use because I’m fairly certain that’s to blame. Spent a lot of time sitting with the kittens – still no joy from Hugo or Henrietta, they don’t want to talk to me. I think Hugo does want to explore, he’s just super timid about even leaving the cage. 

After lunch, I went to the QE to see Dean. When I arrived, a doctor was in with him, but Orlando was hanging around the nurses’ station so we went to the kitchen for a catch up. He was fascinated by my wheelchair, and I made him feel old because I told him about the decade anniversary. Dean wasn’t good – it is really hard to get his pain under control and until they do, he can’t have any chemo (if that’s what he decides he wants) or go home. He was making the small pain noise that I have made myself many a time. It’s involuntary and it means it’s really bad. I wish I could make it easier. I can’t bear to think of him like this. 

The 22nd of August. 

It would be so nice to wake up and not hear Donald Trump’s voice on the Today programme. It’s such a crappy way to start a day. Ugh. 

Morning was breakfast, bit of kitten petting and putting some crocheted goodies in the post for Peter and Sophie. We went out at half eleven because I was meeting Sadie for lunch at the Cereal Killer Café at twelve. Incredibly, she actually arrived before me. That never happens. It took us a long time to decide on what we wanted, despite us both having looked at the menu a lot online before going. I eventually went for the Chocopottomus, which is Coco Pops, Krave, and a Kinder Happy Hippo with chocolate milk, plus I had cinnamon bun cookie dough bites on top. Oh, the joys of being an adult. I am now hungry again so cereal for every meal is probably not a viable lifestyle choice. 

We had fun reviewing last night’s My Dad Wrote A Porno, her recent holiday, my new kittens and medical exploits. We also were very bemused by the twelve (ish) year old boy near us who looked like he’d been plucked from Saved by the Bell – white t-shirt tucked into some very dad jeans that were belted. He could only have looked more 90’s if he’d had curtains. 

Since getting home, I’ve had to get changed because I can’t seem to dress appropriately for the weather. It’s too inconsistent!

The 9th of August. 

Well, I had a terrible night. It took me hours to fall asleep, then I woke up multiple times, too cold, couldn’t get comfortable. It is ridiculous that in August I am having to use my electric blanket. 

This morning, after a breakfast of porridge (weather appropriate), I wrote up a blog post, then I made the last two squares of the blanket. I think twenty is enough, once it has a border as well. 

I managed to spend almost all of my afternoon looking at the squares, at books and magazines, then back at the squares, trying to figure out how to join them. Tried various ways and eventually chose one, so I’ve joined six of them so far. This part will be tedious. 

Hope I have a better sleep tonight – up early for hospital tomorrow. 

The 10th of August. 

Another weird night – ages to go to sleep, then I woke at six with a horrific headache on the right side of my head, but it seemed to abate when I lay on my left. I had to get up at seven anyway and I was still getting pangs of pain, very reminiscent of the pressure headaches I used to get when I had the arm/face swelling and high blood pressure. I’m taking some co-codamol upstairs tonight in case it strikes again. 

Dr. Thompson was running pretty much to time this morning, so I didn’t have much chance to read my book. I really must try harder, because whenever I do pick it up, I want to advance the story. I really ought to just try reading it when I know I’ll have time. Anyway, I let him know how things had been since the venoplasty (arm the same, breathing slightly better) and he thinks next time I come I should do some tests so I’ll look forward to that. 

Nothing to do but come home, so I got busy assembling the blanket. I have sat in the armchair all afternoon, sewing squares together, then columns, then across the rows, then one border, and finally a second border. Now I just have to close up the gaps between the corners and weave in some ends and it’ll be done!

Oh and I have an appointment at the lymphoedema clinic, a week after I see the liposuction lady. I have to fill in a survey about my “quality of life”. Ha. 

The 30th of July. 

Not quite one’s average Sunday. The morning was fairly standard – Sunday Brunch, blog post. This week’s comedian pal appearing on the show was Joel, who ate some chips in order to make Nish lose a wager. 

After taking Grandma home from church, Mommy and I went into Sutton to get Pandora charms for today and August. I also got a chocolate dreamcake Krispy Kreme because it’s a day to celebrate. In the end, I went for the anchor charm at Pandora, because they describe it as the “symbol of hope” and hope was all we had at that point. My chances were 20% of 20%, which works out at 4%, and yet somehow, nine years since my second stem cell transplant, I am still here. 

When we got back, we had lunch, and I spoke to a girl who is interested in adopting Betty. She actually happened to be very near my house when we talked, so she came round straight away. Betty was her usual charming self, coming straight up and purring away like a champion. It seemed to go well; she’s gone away to think about it and fingers crossed she wants her. 

The 31st of July. 

My brain was very busy in the night, dreaming about all sorts of things. 

This morning, I worked on the panda head while communicating with Philippa to find out if James had sent my referral to the lymphoedema clinic. She said it had definitely gone, so then I rang the clinic who confirmed that they’d received it, but I won’t get an appointment until October! SIGH. I’m going to have to find someone else to see because I can’t do nothing for another two months. 

After lunch, I went up to the QE to see Dean. He was starting his chemo today so it was a good day to go before he starts feeling too ghastly. Although he wasn’t feeling wonderful today, bless him. Issues with chemo timing hadn’t helped, and pharmacy were being dreadful – his chemo was meant to be at one, but it still hadn’t appeared on the ward when I left at twenty to five. He is taking his mum to see Miss Saigon tonight and I really hope they got there because he’s been looking forward to this for ages. It was nice to meet his mum and younger brother; I have heard much about them so it was nice to have faces to put to names. 

Tonight I’m off to Denise’s for a Cats Protection meeting to try to work out what we’re going to do about homing. 

The 28th of July. 

I actually had a thing today – endocrine clinic, but I’d forgotten to put it in my diary. Thankfully, Mommy had it in hers, so we didn’t miss it. 

Andy Toogood usually runs pretty well to time, and today was no exception, so I got very little of my book read. He called me in shortly after half eleven, and I updated him on my current state. There’s nothing he can do about any of it but he needs to know these things. He did want some bloods to check my thyroid function, so I did that, then we had a quick trip into town. I needed to stock up on facewipes, and Mommy wanted to get her glasses tightened up a bit. We went our separate ways, and I searched all the aisles of Superdrug, but it think they’ve stopped stocking the range I use. Curses. So I bought some other ones and some toothpaste, and had a very entertaining time in the queue – a child in front was being a dick, doing fake crying because he couldn’t have some mint imperials. Then, when I had to pay, he was blocking my way, and refused to move. The woman with him (grandmother?) couldn’t get him to move until she physically moved him, and she apologised to me a lot. As I left, I heard her say “That’s it, I’m not taking you to McDonald’s now.” Bwahahaha. 

This afternoon, I have been assembling the minion. I got the arms and legs on, but when it came to attaching the eye, it was too big, so I’ve had to make it again with a smaller hook and it looks a lot more promising. 

The 29th of July. 

Finished the minion and season 2 of Zoo. What a productive person I am. 

Started my day with a phone call from Black Sheep to rearrange my hair cut appointment because Danyl has left! Don’t know why, he’s just gone. So June is going to cut it instead. Mysterious. Then I finished the minion’s face and took some photos to send to Robyn and Stu, who were greatly appreciative. Then I wrote up the blog post I forgot to do yesterday, and sorted out what I need for the panda. 

Lunch (pretzel and cinnamon swirl, thank you M&S), then this afternoon has been spent on the last three episodes of Zoo (had a tiny cry) and began work on the panda. He does not contain an immense amount of black and is less tricky than the minion so won’t be as hard as I thought.

I have also been trying to find a Pandora charm that is appropriate for tomorrow. I found a toy soldier, because I am a brave soldier? These links are getting very tenuous now but there is not much I haven’t thought of in ten years.