Archives For hospital

The 9th of August. 

Well, I had a terrible night. It took me hours to fall asleep, then I woke up multiple times, too cold, couldn’t get comfortable. It is ridiculous that in August I am having to use my electric blanket. 

This morning, after a breakfast of porridge (weather appropriate), I wrote up a blog post, then I made the last two squares of the blanket. I think twenty is enough, once it has a border as well. 

I managed to spend almost all of my afternoon looking at the squares, at books and magazines, then back at the squares, trying to figure out how to join them. Tried various ways and eventually chose one, so I’ve joined six of them so far. This part will be tedious. 

Hope I have a better sleep tonight – up early for hospital tomorrow. 

The 10th of August. 

Another weird night – ages to go to sleep, then I woke at six with a horrific headache on the right side of my head, but it seemed to abate when I lay on my left. I had to get up at seven anyway and I was still getting pangs of pain, very reminiscent of the pressure headaches I used to get when I had the arm/face swelling and high blood pressure. I’m taking some co-codamol upstairs tonight in case it strikes again. 

Dr. Thompson was running pretty much to time this morning, so I didn’t have much chance to read my book. I really must try harder, because whenever I do pick it up, I want to advance the story. I really ought to just try reading it when I know I’ll have time. Anyway, I let him know how things had been since the venoplasty (arm the same, breathing slightly better) and he thinks next time I come I should do some tests so I’ll look forward to that. 

Nothing to do but come home, so I got busy assembling the blanket. I have sat in the armchair all afternoon, sewing squares together, then columns, then across the rows, then one border, and finally a second border. Now I just have to close up the gaps between the corners and weave in some ends and it’ll be done!

Oh and I have an appointment at the lymphoedema clinic, a week after I see the liposuction lady. I have to fill in a survey about my “quality of life”. Ha. 

The 30th of July. 

Not quite one’s average Sunday. The morning was fairly standard – Sunday Brunch, blog post. This week’s comedian pal appearing on the show was Joel, who ate some chips in order to make Nish lose a wager. 

After taking Grandma home from church, Mommy and I went into Sutton to get Pandora charms for today and August. I also got a chocolate dreamcake Krispy Kreme because it’s a day to celebrate. In the end, I went for the anchor charm at Pandora, because they describe it as the “symbol of hope” and hope was all we had at that point. My chances were 20% of 20%, which works out at 4%, and yet somehow, nine years since my second stem cell transplant, I am still here. 

When we got back, we had lunch, and I spoke to a girl who is interested in adopting Betty. She actually happened to be very near my house when we talked, so she came round straight away. Betty was her usual charming self, coming straight up and purring away like a champion. It seemed to go well; she’s gone away to think about it and fingers crossed she wants her. 

The 31st of July. 

My brain was very busy in the night, dreaming about all sorts of things. 

This morning, I worked on the panda head while communicating with Philippa to find out if James had sent my referral to the lymphoedema clinic. She said it had definitely gone, so then I rang the clinic who confirmed that they’d received it, but I won’t get an appointment until October! SIGH. I’m going to have to find someone else to see because I can’t do nothing for another two months. 

After lunch, I went up to the QE to see Dean. He was starting his chemo today so it was a good day to go before he starts feeling too ghastly. Although he wasn’t feeling wonderful today, bless him. Issues with chemo timing hadn’t helped, and pharmacy were being dreadful – his chemo was meant to be at one, but it still hadn’t appeared on the ward when I left at twenty to five. He is taking his mum to see Miss Saigon tonight and I really hope they got there because he’s been looking forward to this for ages. It was nice to meet his mum and younger brother; I have heard much about them so it was nice to have faces to put to names. 

Tonight I’m off to Denise’s for a Cats Protection meeting to try to work out what we’re going to do about homing. 

The 28th of July. 

I actually had a thing today – endocrine clinic, but I’d forgotten to put it in my diary. Thankfully, Mommy had it in hers, so we didn’t miss it. 

Andy Toogood usually runs pretty well to time, and today was no exception, so I got very little of my book read. He called me in shortly after half eleven, and I updated him on my current state. There’s nothing he can do about any of it but he needs to know these things. He did want some bloods to check my thyroid function, so I did that, then we had a quick trip into town. I needed to stock up on facewipes, and Mommy wanted to get her glasses tightened up a bit. We went our separate ways, and I searched all the aisles of Superdrug, but it think they’ve stopped stocking the range I use. Curses. So I bought some other ones and some toothpaste, and had a very entertaining time in the queue – a child in front was being a dick, doing fake crying because he couldn’t have some mint imperials. Then, when I had to pay, he was blocking my way, and refused to move. The woman with him (grandmother?) couldn’t get him to move until she physically moved him, and she apologised to me a lot. As I left, I heard her say “That’s it, I’m not taking you to McDonald’s now.” Bwahahaha. 

This afternoon, I have been assembling the minion. I got the arms and legs on, but when it came to attaching the eye, it was too big, so I’ve had to make it again with a smaller hook and it looks a lot more promising. 

The 29th of July. 

Finished the minion and season 2 of Zoo. What a productive person I am. 

Started my day with a phone call from Black Sheep to rearrange my hair cut appointment because Danyl has left! Don’t know why, he’s just gone. So June is going to cut it instead. Mysterious. Then I finished the minion’s face and took some photos to send to Robyn and Stu, who were greatly appreciative. Then I wrote up the blog post I forgot to do yesterday, and sorted out what I need for the panda. 

Lunch (pretzel and cinnamon swirl, thank you M&S), then this afternoon has been spent on the last three episodes of Zoo (had a tiny cry) and began work on the panda. He does not contain an immense amount of black and is less tricky than the minion so won’t be as hard as I thought.

I have also been trying to find a Pandora charm that is appropriate for tomorrow. I found a toy soldier, because I am a brave soldier? These links are getting very tenuous now but there is not much I haven’t thought of in ten years. 

The 16th of July. 

I’m not feeling quite so terrible today. I slept until half past nine which is a lie-in to me, and spent my morning enjoying Joe on Sunday Brunch and writing up a blog post. Back on schedule for at least one entry. 

After lunch, I had a hairwash, then tried on a bunch of clothes. I cannot find something in my wardrobe that goes with the shirt I got – if I put it with a skirt, I look like a teacher (and not in a good way), and the only item that it worked with was some pink shorts. If I were going to be able to stand up while I talk to people on Tuesday that would be fine, but I can’t do that and breathe. However, when I sit down in the shorts, they become really too short to be appropriate. So tomorrow after liver clinic, shopping we will go. 

I have been to pet the kitties, and I made Bree purr! The only times she has purred have been when she is feeding from Betty, but this afternoon, Betty was not near her, and I stroked her into submission. I am the best at cats. 

The 17th of July. 

Last early start for a few days. This morning we had to leave the house at 8 to get to liver clinic at 9. Got there only just in time, but still before the doctors! Still, James didn’t exactly have chance to start running late, and there was only one chap ahead of me. We had a chat about my recent stays in, and he was delighted to say that while I was incapable of breathing, my liver coped extremely well! Good work, liver. He was also happy to do my referral to the lymphoedema clinic, and he is good at doing things, so hopefully they contact me relatively soon. 

When we were finished, we went to town to find some trousers to go with my shirt for tomorrow. Incredibly, the first pair I tried on were right! I tried on a few more, just to make sure, but they weren’t as good, so we were done pretty quickly and were home by lunchtime!

This afternoon, I watched two episodes of Nashville, only crying in one, then I went to sit with the kitties and watch Orphan Black. There was a fly in the room which they found greatly interesting, so much so that Bree chased it into the window. Stupid kitty. 

The 14th of July. 

I have not really felt up to participating in life today. Not quite under the heavy cloud, but definitely not feeling myself. 

I didn’t have a great start to the day; up early again for the dentist this time. I saw the dentist first, and that was fine, but then I saw the hygienist and it wasn’t my normal one. I did not like her. She was very against me using a manual toothbrush or floss picks, and she was adamant that the kids’ Sensodyne Pronamel toothpaste isn’t minty (it definitely fucking is) and wouldn’t listen to me when I protested. She said I had loads of plaque, then cleaned my teeth really aggressively and painfully – there was blood all over my face and bib which has never happened before. She really didn’t seem to care about my history, or the fact that in all the time I’ve been at this practice and seeing Mrs. Richards, nobody has felt that I had any problems. I was very glad to get out of there. When I had to rebook, I made a point of making sure it was with my normal hygienist. Not seeing that woman again. 

Got home where I could finally have my coffee (no time before I went out), and I rang the lymphoedema clinic that has been recommended to me. They said I needed a referral, so on Monday I’ll get a consultant to write a letter. 

The rest of my day has been spent looking for something to wear on Tuesday. Fuck my arm. If I weren’t right-handed, I’d have chopped it off. 

The 15th of July. 

I am so tired. Another bloody early start for another morning appointment. This time it was to see the eye man at the QE. They were not running so on time today, so my 9.50 appointment ended up being more like half ten. Still, it was good news – said they were the best he’d seen them, which would certainly tally with how I feel. I can cut out one eye drop, so it won’t take so long to go to bed, and he’s prescribed something that might be better than Hyabak. 

Got home about twenty to twelve, and the stuff I’d ordered from ASOS yesterday had arrived. I’d sent for a couple of shirts and a dress. I’m definitely keeping at least one shirt, not sure about the other, and the dress is going back. It’s too dark for me. Shame. 

This afternoon, I listened to the tennis while writing up the venoplasty blog post, and I’ve been to pet the kitties a few times. There is interest in Bree but I really need Betty to go first, or she’ll freak out of she’s alone for the first time in a new place. Bah. 

Finally finished that doily I have been working on. I think next I will do some things for the new babies that are coming soon – Peter and Sophie’s, Michaela’s, and Robyn and Stu’s. All the babies!

The 20th of June. 

It has been slightly less hot today. It didn’t feel like it this morning – I had to get changed after going upstairs to put on minimal make up because I was so sweaty. It was very unpleasant. 

I was meeting Sadie for waffles at one, so Mommy dropped me off in the Bullring car park and I went up in the lift to Selfridges so I didn’t have to deal with any blinding sunlight. I was early, as always, so I got a table and waited for her while perusing the menu. We decided we would have just waffles, no room for milkshakes too. I went for the Seriously Cinnamon, but without all the whipped cream and stuff they normally put on top. Just cinnamon and syrup for me please. 

I got to hear all about the debacle of her stolen phone, her dealings with the book eater (Matthew Goodwin, her PhD supervisor), and she got to squeeze my fat fluidy arm. A fair trade. Still no venoplasty date, by the way. Once we’d eaten and paid (neither of us could finish our plates), we moved to Starbucks for cold beverages and comfier chairs. Amazingly, sofas became available just as we ordered our drinks! How fortuitous. While there, we saw two children riding around the toy section of Selfridges on these houses that move around like real ones. They’re incredible and I want one. 

Back home, I managed to get the kittens to play a little bit. They will play with me, as long as I don’t make any sudden movements. Sigh. 

The 21st of June. 

Today has been the hottest. And I had to go outside. Bleah. Oxygen clinic at ten, where we saw Ben, who was very happy to see me without tubing on my face and looking much brighter. He also wanted to know what was going on with my venoplasty/PICC, and when we told him that nothing has happened, he said he would email Andrew to try to speed things up. 

Had a slightly longer appointment with the oxygen nurse, just because I had to explain everything about the pneumonia and my stays in during the past six months. She stabbed me in the ear and my oxygen levels were a bit lower than last year but that is only to be expected and they weren’t terrible.

Went into town before going home, where I bought three books (Why I’m No Longer Talking to White People About Race by Reni Eddo-Lodge, The Power by Naomi Alderman and We Should All Be Feminists by Chimamanda Ngozi Adichie), an eyeliner and mascara from Boots, and a fan brush from The Body Shop. The lady who served me had to go and find one from the stock room, and came back with several which she put on the counter. I paid, and she brought my receipt and change round the counter to give to me, but not the brush. I assumed she had just forgotten to pick it up so asked for one and she thought she’d given it to me but I didn’t, so she handed it over. Then we went to Starbucks so I could get an espresso frappuccino. While I was waiting, I happened to look in my bag and saw a brush, which confused me because I was sure I’d put it in the Foyles bag with the books. I checked, and there was a brush in there too! I had no idea how the one in my handbag got there, so I got my drink and we went back to The Body Shop. I went up to the counter, where the lady was, and handed her the extra brush, apologising for my accidental thievery. She was very surprised me but congratulated me on my honesty. Sure I could have kept it, but what would I do with two? Seriously no clue what happened. 

This afternoon, I think I made some progress with Betsy and Brodie – we played games with my fingers. They don’t immediately run away from me now. 

I had an appointment with Trine at the chiro at half four, and it was much better than last time. No hospital bed makes such a difference!

The 29th of May. 

Very little to report. Except that the vancomycin and ciprofloxacin appear to have finished! Well, tonight they are not prescribed so presumably they only had it written up until this morning. Which is fine, it means I need literally nothing from the nurses tonight and I can go to bed whenever I want.

When Mommy arrived at 11, we left straight away because the nurse said I didn’t need to see any doctors and I didn’t need any bloods doing (I thought I did, but she said not). We got home before This Morning had even finished! Amazing. The weather demanded I have beans on toast for lunch, so I ate that while we watched the finale of Project Runway which had been on since I was admitted.

My legs needed shaving if I am to wear a dress on Saturday at the wedding, so this afternoon I had that task to undertake. It wasn’t fun, strong smells make my breathing more difficult so I was on three litres of oxygen by the time I was done. Everything is so hard.

We came back to hospital for six o’clock, and it emerged that the phlebotomist had been because I was supposed to have bloods done, so then a doctor had to come and stab me. He had to stab me seven times. For one syringe of blood. My veins just didn’t want to play, I was cold, and he had to seriously dig around. I am going to be quite bruised.

Nothing else to say. I can’t wait to see the doctors in the morning. I need a plan. I need to go home.

The 30th of May. 

I write this AT HOME. And I don’t have to return to hospital tonight, I am going to sleep in my bed and no one is going to take my blood pressure or shout at me about toast and it will be beautiful.

Mostly my day has involved waiting. The doctors turned up just after half ten, just a junior and a medical student (after my notes were found as it seemed they’d gone AWOL) and she was pretty happy to discharge me, considering I’m not on any IVs anymore and my CRP has gone down to 18. However, she needed to talk to Ben about my blood pressure drugs and the rest of my discharge plan before I could actually go home.

He was in coroner’s court all morning, so we didn’t see him until about two. He is happy to restart my Irbesartan which will be good for my blood pressure, and I’ll stay on the voriconazole for a couple of weeks. The PICC will stay in until after I have been deflated because a) it will give them good access for the fun drugs and b) it will be useful if I relapse, so we will have to flush it for a couple of weeks. The only other thing left to sort out was my drugs to take home, and the junior said she’d come back to get a list of what we needed.

She then didn’t come back until after four, so we had a very boring afternoon, trying to pass the time. Thankfully Philippa also came to see me, so we had fun, and we finally got to leave just after half past six!

Got a really busy day tomorrow so an early night tonight, but considering I don’t have to wait for anything, I think I’ll manage. That worst part will be climbing the stairs.