Archives For joe lycett

The 3rd of May.

I woke up at 5am. Like I’m not going to be sleep-deprived enough this weekend. I couldn’t even force myself to stay in bed as long as I normally can so I was up at half past seven.

Still, it meant things got done. Mommy made some bread, then we went into town where I got some lipstick from Selfridges and a box from Paperchase so I could send Esmée the fox to John and Maddie. We were home by half past eleven. Then Mommy went to vote (I already sent off my postal vote ages ago) and I watched Riverdale.

After lunch, I sorted out some clothes to take to Mach, then sat and watched more of Scandal. I’m nearing the end of season 5 so if I commit I think I will do this. I don’t think I’ve watched so much of anything so quickly before. I also put the luggage tags on the dogs, so all that’s left to do is pack in the morning! I’m so excited.

The 4th, 5th & 6th are pictured.

The 7th of May.

Oh boy, I am so tired. Beyond tired. I think I had about five hours of sleep and considering that’s on top of two short sleeps, I am wiped. We had to be out of the house by ten, so I got up as late as possible, but still spent most of the journey home with my eyes shut, cold from the air-conditioning and in agony from my back. When we got to the services, I had a second coffee and broke out the Pom Bears I bought yesterday which perked me up until we got home.

I curled up in my armchair as soon as we arrived, and we watched Professional Bake Off while having lunch. Then, while the rest of the country was basking in the sun, I went upstairs, shut my curtains and had a ninety minute nap. I am never tired enough to nap unless I am ill, so fingers crossed this is an anomaly.

I couldn’t stay up there all day, so I had an iced coffee to try to make sure I stay awake until bedtime. I’ve put up a bunch of photos and videos from the weekend. I don’t know how to write about it. Maybe just photos.

The 8th of May.

Sleep last night was so good. A solid ten and a half hours, oh it was beautiful. My bed is the best.

It’s been a quiet day – the start of a week of recovery. I have a couple of appointments and a gig on Friday, but the rest of my time is going to spent doing not a lot. I might go to the gym on Thursday, but that’s only if my early morning lung function tests haven’t worn me out.

So, I have been sat in front of Scandal, keeping my fingers busy crocheting nothing of note, resting my back. This evening I had a chiro appointment, and that was incredibly necessary – so much kneading of knots in my neck and stretching out my back as far as it would go. I’ve had the ice pack on my neck since I got home. Looking up for three days straight is really bad for one’s muscles. 

 

The 17th of December.

Much better night. I considered having a Zopiclone, but I thought I would probably get to sleep naturally and I’m glad to say I was correct.

It has been a rather festive day, by all accounts. It had a nice start because I saw Oscar in the garden! Haven’t seen him for ages. Did a blog post, then I was called into the dining room to ice cakes for a hamper. It only took about an hour, but that time sitting at the table killed my back by the end. This does not bode well for wrapping day, considering last year it took me about six hours.

This afternoon, we decorated the tree! Or to put it more accurately, Mommy put things on it in accordance with my directions. I no longer have the lung capacity to move around so much nor the ability to stand for that long because it means agony for my back. I will probably still make adjustments by moving things around but it finally feels Christmassy in our house.

The 18th of December.

Another very Christmassy day!

I had some very stressful dreams about the gig last night, that it was happening and we’d only sold 100 tickets and I couldn’t access the building and it was all terrible. I was so glad to wake up.

Mommy and I went into town this morning so I could get all my wrapping stuff and she could do more Christmas shopping. I started off in Tiger for the paper – I’d seen it online and I wanted to check that it looked the same in real life as it did on the internet. I went round the entire shop (which is not easy in the wheelchair) and found the paper I wanted by the tills. Then I went round again so I could get gift bags and boxes for a few of the things that would be impossible to wrap with just paper. Next was Paperchase for tags, but they didn’t have the ones I wanted, so I had to go to the one in Selfridges where thankfully they had stock, plus tissue paper. No ribbon though. Back to Grand Central, where I went to John Lewis to see if I could find ribbon or wool to tie around my presents. The haberdashery was my saviour, so I got my ribbon. Last year I didn’t get enough, so I may have bought too much, but I’d rather be safe than have to go back for more. No time for that now.

I met back up with Mommy in John Lewis, then we went to the German market so I could have a sausage because otherwise I won’t have one and it’s just not Christmas if I don’t. They are very mean with the napkins – obviously they didn’t order enough so it is one per person! Harsh.

Returned home, and this afternoon I put together Daddy’s crocheted Christmas present while watching Miracle on 34th Street (fast-forwarding all the bits I don’t like) and now all my presents are finished! I can finally relax about things, and have my wrapping day when I am ready.

Out at The Glee tonight for Joe’s Crisis at Christmas gig! Great line-up; Joe Lycett, Joe Pasquale, Kiri Pritchard-McLean, Tom Ward, Guz Kahn and Harry Hill. Very excited.

The 15th of November.

Oooh I am very tired this evening. I think it is a caffeine crash, after having two flat whites with Vicky this afternoon.

Quiet morning – wrote up a blog post, and used a different brand of dexamethasone eye drops (the ones that came from the GP instead of hospital) only to find that there is preservative in them and it was really bloody painful. This is why I don’t go to the GP about things.

After lunch, I met up with Vicky at 200 degrees in town for coffee, cake and chat. I pretty much had a massive moan about all the things wrong with my body – my eyes, my arm, my lungs, my gynaecological issues. Mostly minor things but they all add up. And she offloaded about shit she is dealing with, then we talked about nice things like hanging out with Joe last night and stuff we have been watching on Netflix (mainly Stranger Things). We also enjoyed a funny coincidence of a chap at the table next to us mentioning Joe, so I sort of interrupted (in a polite way) and it turned out he was Joe’s friend Paul who is fairly pivotal to the show! What a small world.

The 16th of November.

Assembly day.

This morning was quiet – finished crocheting the remaining parts of the current project while I watched the new episode of Riverdale. Washed my hair. I suppose that is all.

After lunch, I put together the first little fellow, then didn’t have time to do any more before Ann and Tom arrived to see the kittens again. We’ve been letting them out to run around so this time they scampered up and down the room, gamboling and fighting.

Once they’d left, I put some shoes on and we had to get going to Hallfield for an OHS committee meeting and the AGM. Roshan, the GP in the group, arrived at the same time as me, and we hovered outside, ringing the bell until we were let in. Then we hung around until the Richards and Aman came out of the Head’s office so we could start the meeting. Although, first Richard (the Head) wanted to show me how he’s redecorated – he has got some very comfortable Chesterfields! Probably not conducive to a meeting though.

Speaking of which, it was pretty short and sweet, and now I’m the vice-chairman. Yeah.

The 13th of November.

Sleep was not actually that bad, although I did wake up so cold, I had to drag my blanket over myself. I have the double thickness duvet on my bed now for winter, so hopefully tonight I’ll be toasty.

This morning, I went out with Mommy to do some shopping errands. First, we went to Aldi, because they have some decent crackers (Christmas, not Jacob’s) and are selling a cheap version of wool I like. Next, M&S for a pretzel and chewing gum (this was really just a bonus rather than a necessary trip), then we went to Boots so I could get a body brush to try to help my skin, circulation and lymphatic system.

After lunch, I have been sat with the crochet. My back hurts more than usual today – it’s like I’m having a delayed reaction to all the driving on Saturday. Every time I get up, I groan, like I am ancient. So I’ve sat watching The Blacklist, and just had to undo and redo an entire section of crochet because I wasn’t paying enough attention.

The 14th of November.

I forgot how heavy the double duvet is. Took me ages to get comfortable underneath the weight. It’s super warm though.

Today has not involved a great deal of excitement. This morning I used my new body brush thing and all the unsupported sitting made my back unbearably painful, so much so that I couldn’t finish moisturising afterwards, and I had to get Mommy to help do my legs. I’m not sure it’s ever been so bad that I couldn’t do what I needed to. Found out today that Dr. Antrobus has actually left (not ideal), but he had written my letter before he did, so it can get sent on to Dr. Blaney who can do the bloody steroid injections!

Afternoon was more of the usual – Bones, The Blacklist, crochet. Made another irritating mistake by being distracted. Nearly finished this project now – might get the last bits done tomorrow, but I’m seeing Vicky for sick person chats so we’ll see.

I am seeing Joe at The Glee tonight, which is going to be much fun. Distraction from life garbage.

The 31st of May.

My own bed is a beautiful place. I had such a nice sleep.

It has been a busy first day back in the real world! This morning we had to take Sam to the vet for his first set of vaccinations, then they were running so late that we only just had time to take him home before going back out to the chiro. Trine was not impressed to hear I’d been back in hospital for essentially the entire time since I saw her last. Today parts of my back that I didn’t even know were hurting needed working on. Such a mess.

We came home, had lunch, then I had to get information off Catalog to fill in a form about Sam because I didn’t have an ID sheet for him. His adopter was coming about half past two, so when I finished at two, I went to sit with Sam to say goodbye. He just wanted to sit on me, as always, and we watched the new Pretty Little Liars until the doorbell rang.

Well, they were instantly smitten. I was not surprised because he is lovely and there was no reason for them to not want him. He even stuck his tongue out, just to be extra cute. They were gone within the hour. I’m expecting a photo of him on one of their laps this evening.

Once they had left, I returned to the living room and watched new iZombie while doing Cats Protection admin. So exciting. Then this evening, Mommy and I (and my oxygen cylinder) are off to The REP to see some comedy to raise money for refugees. Nish, Joe and Tez are all on but I will not be hanging out because I am still a bit wrecked. Hoping they are all on in the first half because then I can go home.

The 1st of June. 

How is it June so soon? I have written off this year already. For the whole of it, I have been sick and swollen and in pain. I need the next seven months to be better.

Lots of little jobs to do today. Sorted out all the chargers and power packs to take on holiday, and put my iPod and old iPhone on to charge so I will have all the things to listen to in the car tomorrow. I spent my morning having a mini Agents of S.H.I.E.L.D marathon and putting all the posts I have written over the past three weeks up on my blog. Glad to finally be back up to date, although I need to write them all down in my hand written diary so they match. I still haven’t done the ones from March.

During our lunch, we watched the Bake Off Creme de la Creme final, and the military men won! We were very pleased as they were our favourites. Then we went upstairs to wash my hair and sort out my clothes that I’m taking away. It is not going to be particularly warm, so it will be a week of jeans and jumpers/cardigans.

Back downstairs, I painted my nails, but had to get Mommy to do my toes because I cannot see the outline of them clearly. I don’t understand why my eyes are getting worse again when the treatment seemed to be working. It’s not just that stuff is blurry, I’m really photosensitive and it hurts 90% of the time. At least my breathing is improving a bit – I’m only in 0.5 litres of oxygen now so I might be able to do most of the wedding without a tank at my feet.

The 20th of December. 

I am home! Ohh so happy to be back where I belong. 

Last night I wore earplugs which helped me sleep a little longer this morning, although any remaining tiredness was very quickly shaken off when the woman next to me shat the bed. The stench. 

Different consultant but same junior doctor today, and I said I was pretty much losing the will to live waiting for this scan. I also explained that regardless of the outcome, I would be discharging myself today because I could not spend a fourth Christmas in hospital (and I did a small cry). The consultant was very sympathetic and instructed the junior to hassle ultrasound about getting me scanned asap, and having all my drugs and paperwork ready to go. 

A haematologist came to see me with the thought that I might have a fungal infection, and he wanted me to have another kind of scan, but the consultant above him felt that was not necessary, thank god. 

So then all we had to do was wait for ultrasound. A woman turned up shortly after two, and proceeded to scan me right there in my bed! Once again it was commented upon that I am lovely to scan, and having covered my right side in gel, she found no evidence of a clot. Obviously we informed the doctor of this immediately and by three we were out of the door. Just a tiny visit to Pandora on the way home to get the charm for yesterday’s anniversary, and now I am at home in our living room. I have petted the kitties and tonight I am out at The Glee for Joe’s Crisis at Christmas gig. 

I’m just SO HAPPY. 

The 21st of December. 

Sleeping in one’s own bed does not get old, let me tell you. 

I had lots of fun last night – Joe’s friend Ben who I met the other day was sat in front of me, with Jess Phillips (MP), and they were both amazed by my mug of sausages. I pointed out that they too could order one, they are always available. 

I went into the dressing room at the interval and at the end, and got to spread the Anthony Nolan word some more. We also had some chats about which was the best gay Christmas pun, and wondered whether Sara would make it. They were all lovely and really funny; will definitely make an effort to see them again. (On the bill we had Joe and Sara, Guz Khan, Fin Taylor, Andrew McBurney and Mo Amer.)

Today I finally finished my wrapping, watched Elf and decorated our tree. Daddy came home with Christine while I was mid-tree, so she helped me finish. My right arm is still huge and I’m coughing but I’m trying not to care. I’m okay and I’m home which is all that matters. 

Today is eight years since my liver transplant. Back then, nobody thought I’d even see Christmas, yet now I’ve had eight more. At what should be the best time of the year, my donor’s family went through the hardest thing I think there is: the loss of a child. But they were selfless enough to know that they could stop another family feeling that pain, and they gave us that. A Christmas miracle. 

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The 12th of December. 

I feel alright today, but it hasn’t been a great day as it was Keith’s funeral. 

This morning, I did another blog post so now I’m up to date, and rang the vet to get the kittens booked in for their first of of vaccinations. Hopefully when we have to take them, they don’t hide under the chair. 

We got to the church early and met Rosemary outside before going in to sit down. It was good timing on our part, as it filled up pretty quickly. Dr. Haydn from the liver team was sat behind us, and we smiled at each other in the awkward acknowledging way that one does at funerals. 

Funerals always make me think about my own. There was a lot of talk about heaven and the afterlife, as you’d expect. I don’t think I want the afterlife discussed – I don’t really believe in it. I don’t want there to be a place I go where I can see all my friends and family but not be with them. It sounds like utter torment. 

What got to me was what Gareth said will be playing at the crem, which is All I Ask by Adele, the last song they cried at together. Listening to it with the lyrics from Gareth’s point of view is heartbreaking. It we were going to the service on Wednesday, I’d be a wreck. 

We got home to find one of the kittens had done a wee in a place they weren’t supposed to. Nice. 

I will leave my heart at the door
I won’t say a word
They’ve all been said before, you know
So why don’t we just play pretend
Like we’re not scared of what is coming next
Or scared of having nothing left

Look, don’t get me wrong
I know there is no tomorrow
All I ask is

If this is my last night with you
Hold me like I’m more than just a friend
Give me a memory I can use
Take me by the hand while we do what lovers do
It matters how this ends
‘Cause what if I never love again?

I don’t need your honesty
It’s already in your eyes
And I’m sure my eyes, they speak for me
No one knows me like you do
And since you’re the only one that matters
Tell me who do I run to?

Look, don’t get me wrong
I know there is no tomorrow
All I ask is

If this is my last night with you
Hold me like I’m more than just a friend
Give me a memory I can use
Take me by the hand while we do what lovers do
It matters how this ends
‘Cause what if I never love again?

Let this be our lesson in love
Let this be the way we remember us
I don’t wanna be cruel or vicious
And I ain’t asking for forgiveness
All I ask is

If this is my last night with you
Hold me like I’m more than just a friend
Give me a memory I can use
Take me by the hand while we do what lovers do
It matters how this ends
‘Cause what if I never love again?

The 13th of December. 

Oh, today has been so much better. Apart from the start – I had the last of my post-transplant jabs (the ones I’ve been having approximately seven years late), the pneumonia one. I’ve had it once before, and I forgot how painful it is. I have a very sore arm tonight. Thankfully, it’s not the arm I sleep on. Also a woman came and sat next to me and she had a snotty tissue so I moved away because I didn’t want to catch her germs. I looked like a horrible person, but I don’t care, I really don’t want to get sick. 

Came home to have coffee and give the kittens second breakfast before going to the chiro. Trine gave my lower back a big stretch out, and found that I was really tense at the base of my neck. I’m not going to help myself either because on Friday I’m going to do my wrapping – sitting at a table for that long always causes me a lot of pain. 

From there, we had a trip into town to finish Christmas shopping and for me to get my wrapping stuff. I started off in Selfridges, then Superdrug (for things that were not presents), Foyles, Whittard’s and John Lewis. I met up with Mommy and we went up the German market so I could get a red sausage. A must, every year. 

On the way back through Grand Central to get my wrapping, I noticed Joe waiting for some food with a friend of his, so I went over and we had a lovely little catch up! Plus his friend Ben said I could get gold glitter wrapping paper in Tiger for less than Paperchase which was excellent! We did have to go to Paperchase anyway for tags and ribbon, where we bumped into Vicky and Laura, another delightful surprise! I have invited them round for kitten cuddles at some point over the next couple of weeks. 

At home, I fed the very hungry kittens, and have spent the rest of my afternoon writing my Christmas cards. I am getting very much into the festive spirit.