Archives For Jono Hennessy

The 31st of January.

Today has been fine, although I got a disappointing email this afternoon so now I feel quite gloomy.

I had a better sleep, thankfully, and got up when my alarm went off. I wrote up a blog post, then I got back to work on Woody. The leaves, for want of a better word, of the pine cone take ages, and I have to sit in a position that is really uncomfortable for my back while doing them which is not ideal.

After lunch, I finished the pine cone bit off, then I decided that I was going to do some exercise. It was one of my New Year’s Resolutions to start working out again, even if it was much less than before, because I can still regain some muscular strength, even if I can’t do things I’d do in the gym. So I got out my yoga mat and did some very basic stuff, mainly on the floor for about half an hour, which was enough.

Since then, I got an email from Anthony Nolan about the blog I wrote for them. They want to publish it on Friday, but have edited out a lot of the best and most important parts, because they are either “scary” or “don’t offer a shared experience” for patients reading it. I wasn’t writing it for potential patients, I wrote it to be published in the press somewhere and why will they pick it up now a massive chunk is missing? I’m aware my story isn’t very inclusive for other patients but my uniqueness is exactly why it’s so incredible. I can still put it on my blog but what’s the point when the audience is so small?

The 1st of February.

It is too cold, bleah. I had to have my extra blanket in bed last night, but I at least had a decent sleep.

This morning, I did much crochet. Simon the snowman now, and currently he has legs, a body and eyes. Very productive, but not very interesting.

After lunch, we had to go into town because it was time for my eye test. I had a long chat with the optician about what’s been going on since my last test two years ago, when I had the eye GvHD but hadn’t started any treatment. We went through all the drops in currently using, and I showed her my last letter from Dr. Barry on myhealth which was useful.

My eyes are a bit worse, as I suspected, so I’m having a new prescription and I decided to try on some new frames as well to see if there was anything I preferred to the ones I currently have. I tried on several pairs, and have chosen a green pair by Jono Hennessy, who did my previous pair, so they’ll arrive in 5-7 days. I’ll have to come up with a new logo for the blog!