Archives For Michaela

The 14th of June.

It feels like we are just lurching from one tragedy to the next at the moment. Every week there is another atrocity, and it seems every single one is political. There is no doubt that the fact that this is a deprived area with poor residents, and that things have been done on the cheap will have made it worse, and the fire service were unable to tackle the blaze as effectively as they might have because they’ve been decimated by the cuts that Boris Johnson made. Heaven forbid there was a fire anywhere else in London. Just last year the Tories voted down a bill to force landlords to make buildings suitable for human habitation (surprisingly, 72 of them are landlords themselves), and Theresa May’s new top aide has been sitting on a review of fire regulations for months. They kill people. Every day. 

I had haematology clinic this morning, which was not enormously productive. I saw Praveen and updated him on my current circumstances, and he emailed Andrew. The most important thing was that we get some drugs, because my prescription got completely messed up when I was in.

I spoke to Emelda, Andrew’s secretary, and she has assured me that the paperwork has been sent and I should get a date for my next venoplasty very soon. I really bloody hope so; it was super warm today and I want to be able to show my arms without feeling like a freak . 

This afternoon, I hid from the news. I put on a sheet mask, watched Pretty Little Liars and iZombie, crocheted. I am lucky that I am able to escape from it. I can’t imagine the terror felt by those on the upper floors; if I were in that situation, I would find a way to kill myself. Absolutely petrifying. 

The 15th of June. 

I’ve been awake on and off since just before six this morning. It was too hot. Not surprising when you consider I still had my winter duvet on – it has been changed now so hopefully tonight I won’t be so warm. 

Quiet morning. Breakfast, coffee, then out to Black Sheep to get my hair cut at half twelve. Michaela was delighted by my FucktheTories necklace and immediately called Danyl over to see, who was straight in for a high five. I have decided he is going to be my colour guy now. Booked in with him next week. My hair was getting pretty long, so we decided to chop off all the back and sides. There’s only so much that can be changed when it’s this short already but Michaela can always come up with something. 

As I was leaving, I went to get in my chair and there was a lady sat by it with a great little chihuahua called Dolores. She was also a fan of my necklace and we had a photo together. 

Got home shortly before two, and this afternoon I have been crocheting, then unravelling because I changed colour and the new thread was thinner, so it has made the whole doily curl inward. Redo with a thicker one. The fluid in my arm makes it ache. 

The 28th of March. 

I have felt a-fucking-trocious for most of my day. High levels of oxygen have been required, and even then I have not felt so good. 

This morning I was needing 1.5-2 litres of oxygen just to sit and eat my breakfast. I finished the monster doily, then there wasn’t much morning left before we had to go out to Black Sheep. 

Obviously I took a small cylinder of oxygen with me, and I was doing alright to begin with. However, after James had put the lightener in, I had to go to the bathroom and I knew I wouldn’t get there without help. Because of the fumes and the spray etc in the air, I had to put it up to 3 litres and I was still struggling, but I didn’t want to go any higher for fear of ploughing through the cylinder. I had to text Mommy to get her to bring me a new one mid-appointment because the small ones only last 1.5-2 hours on high volumes. 

I told James off for leaving, but I forgive him because his reasons are good and Saskia will take care of me. We have nailed it with the colour – I look like a load of pixie sticks have been tipped onto my head. In a good way. Michaela is having another baby so I congratulated her, and she gave me a trim. 

I got home at about half past four, so not much has happened since then, but I’ve got the oxygen down again, thank god. I felt absolutely awful. 

The 29th of March. 

Vast improvement. I had a crappy sleep which I am putting down to low sats – when I sat up, they were 88, despite me having been on oxygen all night. However, I have got better since then.

This morning, I wrote up the blog post I should have done yesterday, we had a delivery of oxygen, then I had my rescheduled chiro appointment from last week. I was considering postponing it again, but I did not feel too terrible and my back had started protesting. 

I took the small cylinder with me, so I was able to get into all the necessary positions, which was good because pretty much all of my back had tightened up. Surprisingly, my neck didn’t need any crunching, just massaging into submission. 

Once home, we had lunch, then I updated my phone software (I know) and took a lot of selfies to document my new pretty hair. I started crocheting a new doily, and I’ve got my oxygen down to 1 litre. I wish we could work out what causes me to need it more some days and not others. Knowing me, there is probably no reason.  

The 28th of November. 

I think I’m just about okay today. I was still a bit wibbly when I got up, so my potential gym trip was off. Not lifting heavy weights when I might fall over. 

This morning I did a blog post and painted my nails a festive green while snuggled up in my pyjamas and fur-lined hoodie. I did get dressed, just later than might be considered socially acceptable. Well, I’m kind of poorly. It’s allowed. 

After lunch, I sorted out some of the crap in my bedroom so now it has either been put away or is in piles to get put somewhere else or in the bin. Then I had a try at making a coffee using a drip filter, as my Pact advent calendar coffee is ground for that particular brewing method, and I usually use my espresso machine. 

It was okay but next time I will use more coffee – I started off with just 16g. Not strong enough. My next job was to have another trawl of the internet for potential Christmas presents, but I am severely lacking in inspiration. Everything I see, I just think is a terrible gift. I’ve bought four things I like and made two crocheted things but that is all and I am struggling. I am really hoping some ideas come to me in a dream. Mommy and I have our annual London Christmas shopping trip next week, so maybe I will see things then.

The 29th of November. 

I’ve only had the one wobbly moment today, so I think whatever it was has passed. Hooray!

I had a quiet morning. Mommy was out at the chiro, and I spent my time doing another filter coffee and crocheting a leg of the unicorn I’m making. I used some of Daddy’s coffee for today’s practise and it was not nice at all. I do not like that blend. I’m glad I have my own. 

I had an appointment to get my hair cut after lunch, and we had quite the palaver with the hair washing. Just as my first shampoo was being done, the pressure on the boiler went, and the shower heads weren’t producing any hot water. Not ideal. They tried various things, but ended up having to use hot water from the coffee machine to rinse my hair, which was fine but I was just glad I got in when I did and wasn’t having any colour done! The chap couldn’t come until five, so I hope it’s fixed now. 

So I was there somewhat longer than expected, but that was fine with me, I just felt bad for Michaela and the knock-on effect it was having. All nice and short now, and re-whitening in two weeks. 

When I got home, I had to ring a potential adopter because I didn’t think she fully understood how Cats Protection works, then I made another unicorn leg and ordered all my Christmas cards. At least I have that sorted. Glee Club tonight! Seann Walsh and the best fish finger sandwich. 

The 11th of October. 

This is probably going to be a pretty short entry because I spent the majority of my day in Black Sheep. I woke up at nine after a crappy night’s sleep, had breakfast and wrote up a blog post before going to see James and Michaela at quarter to twelve. 

I sat in the chair and we had chats, but in the end we came to the conclusion that we didn’t know how it would come out at the end, we’d just try to lighten it as much as possible. I told him about Christine’s birthday and the new kittens. Then I did lots of waiting for the bleach to do its job (trying not to scratch where it itched), then the toner and the rinsing. Eventually I got to Michaela and she evened out my length so it’s nice and short again and I don’t have to add masses of product anymore. 

By the time I got home it was nearly half past three so I just had a tiny lunch. I went to say hi to the kittens and Amira actually came over to look at me, she even smelled me and didn’t run away so that’s progress!

I even fitted in some crocheting, enough to make my eyes start to hurt. Bloody tiny hook.

The 12th of October. 

God I hate this stupid back pain. The entirety of my lower back is just full of this kind of buzzing ache, I don’t know how else to describe it. I was at the chiro this morning and we talked about it and she thinks because of my history, hopefully I might get a more senior physio. Right now I’d just like an appointment! Maybe I’ll ask Dr. Thompson next week if he can see anything in the system. I can but hope!

After lunch, I went to the gym. I had plans to see someone tomorrow but now she has to work, but I didn’t expect another chance to go this week. Anyway, there I was. I got through all my machines, then did some passive-aggressive staring until a mat became free. Then some girls tried it on me but I am immovable. 

I am very pleased to be home for Bake Off tonight. I’m missing it again next week because I’m out at The Glee (and then again on the Friday). There are so few episodes left! I think I will actually cry when it finishes.