Archives For piccadilly

The 31st of January.

Today has been fine, although I got a disappointing email this afternoon so now I feel quite gloomy.

I had a better sleep, thankfully, and got up when my alarm went off. I wrote up a blog post, then I got back to work on Woody. The leaves, for want of a better word, of the pine cone take ages, and I have to sit in a position that is really uncomfortable for my back while doing them which is not ideal.

After lunch, I finished the pine cone bit off, then I decided that I was going to do some exercise. It was one of my New Year’s Resolutions to start working out again, even if it was much less than before, because I can still regain some muscular strength, even if I can’t do things I’d do in the gym. So I got out my yoga mat and did some very basic stuff, mainly on the floor for about half an hour, which was enough.

Since then, I got an email from Anthony Nolan about the blog I wrote for them. They want to publish it on Friday, but have edited out a lot of the best and most important parts, because they are either “scary” or “don’t offer a shared experience” for patients reading it. I wasn’t writing it for potential patients, I wrote it to be published in the press somewhere and why will they pick it up now a massive chunk is missing? I’m aware my story isn’t very inclusive for other patients but my uniqueness is exactly why it’s so incredible. I can still put it on my blog but what’s the point when the audience is so small?

The 1st of February.

It is too cold, bleah. I had to have my extra blanket in bed last night, but I at least had a decent sleep.

This morning, I did much crochet. Simon the snowman now, and currently he has legs, a body and eyes. Very productive, but not very interesting.

After lunch, we had to go into town because it was time for my eye test. I had a long chat with the optician about what’s been going on since my last test two years ago, when I had the eye GvHD but hadn’t started any treatment. We went through all the drops in currently using, and I showed her my last letter from Dr. Barry on myhealth which was useful.

My eyes are a bit worse, as I suspected, so I’m having a new prescription and I decided to try on some new frames as well to see if there was anything I preferred to the ones I currently have. I tried on several pairs, and have chosen a green pair by Jono Hennessy, who did my previous pair, so they’ll arrive in 5-7 days. I’ll have to come up with a new logo for the blog!

The 27th of January. 

I have a headache. Don’t know where that’s come from – I’m not dehydrated, my blood pressure isn’t high, so I’m just ignoring it. 

Today has been rather productive. This morning was a blog post and holding myself back from ringing up This Morning. They were having a discussion about people wanting to take their dogs into shops and restaurants, and nobody was making the point that those places are hard enough to get around in a wheelchair, I can only imagine the hell they would become when filed with dogs too. I mean, I love them, but I love them outside and in people’s homes. 

This afternoon: crochet and Netflix. All the giraffe legs are done now, just tail, ears and “ossicones” (horns) left, then assembly! Soon Elle, Luna, Ellie, Esmé and I will have our baby day (thankfully, having one’s own baby is not mandatory).

I got a great book from the Easts for my birthday called My Crochet Doll and it’s full of patterns for doll, then loads of outfits and accessories, even pants and socks! That is definitely going to be my next project. 

The 28th of January.

I think the headache I had last night might have been from a lot of squinting I’ve been doing. I shall elaborate later. 

I finished almost all of the pieces of the giraffe last night, I just had one ossicone left to do this morning, then I finished stuffing the feet and I put her together. Looking at her from across the room now, I might add another patch – there’s a gap that is a little large for my liking. 

After lunch, we went into town for my eye test, and to buy thank you cards. I had a lot of discussion with the optician lady about what’s been going on stuff with my eyes, with the dryness, the Lacrilube/Vitapos problem, the sudden apparent decline in my vision. She checked the health of my eyes and the old scar from the GvHD, and that all looks fine, there’s no infection, but they did seem to be really quite dry. Then, when checking my actual vision, it became clear that I’ve got real problems focusing (hence the aforementioned squinting) because the fluid levels on the front of the eye are fluctuating, which is causing issues with my ability to see shapes clearly sometimes. She’s going to write to my GP recommending some eye drops for them to prescribe, and Miss Rauz at the Eye Hospital to ask her to see me. I’ve got to try to stabilise the moisture levels, then get my eyes tested again in a few months. Oh, the issues that cancer has left me with. It’s never quite over. 

The 30th of April.

Woke at quarter past nine and spent the majority of my morning refreshing my inbox until I heard from one of the X Factor producers about Sunday. When the email came, she wanted my phone number which I gave and she rang.

We had a very nice chat; I am to turn up at 12 when I will sing for two producers within about half an hour, then if they like me I’ll go to see an executive producer to sing again and talk a bit. That is the bit I really need to get to as that will get me through, I think. And that means I have to knock the socks off of the first people.

So I spent my afternoon practising lots and lots and I think I have decided on my songs. I really need it to go well. It is all I have ever wanted.

 

The 1st of May.

May! Back in October, I would never have thought that I’d get this far without another hospital admission. Frankly, I wasn’t sure I’d see the first of May at all.

This morning, I went to Piccadilly Optician’s to get my eyes tested and pick some new frames. My eyes have changed very slightly – the astigmatism is a point worse in each eye but generally all is fine. I tried on several frames, mainly purple? Discovered that I can’t do pale colours. I’ve chosen some L’Wren Scott ones and now I have to wait about a week before they are ready! This is terrible because I am the least patient person in the world.

This afternoon, we had lunch and watched last night’s Great British Menu (we are not fans of Aktar), then Mommy went to Grandma’s while I practised some more, then worked out. This evening, I wrote up a blog post and gave Oscar a hug because he’s been out and got wet a lot today.

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