Archives For qehb

The 9th of May.

Second catch up sleep completed. I reckon I probably have one left before I am back to normal, but that won’t be tonight because I have to get up at six for ridiculously early lung function tests tomorrow.

I wrote up a blog post this morning, but I haven’t sorted out the photos and stuff so it is yet to be published. I was upstairs getting dressed when I got a text from Mommy warning me of the imminent presence of the window cleaner (she had just gone out so saw him further down the road) so I dove behind the bed to protect my dignity. Turned out that wasn’t necessary because he didn’t appear for another forty five minutes.

After lunch, I went with Mommy to pick up Grandma from lunch club at church, then after dropping her off at home, we went to the QE for my follow up with Mr. Kolli. He had a look at my lashes which look good, although the right eye will need to be checked again in a couple of months. He also checked my pressures which had gone up to 25/26 which is bad. Have to start doing steroid drops once a day and in a month he’ll check them again. Hopefully I continue to be asymptomatic, I can stop the steroids and my pressures go down. If that doesn’t happen, I’m not sure what the plan will be. My eyes explode.

The 10th of May.

Well I definitely did not have a great sleep because just as I was dropping off, I heard a dripping sound. The rain was coming through my ceiling. I had to go and wake up my parents, who did what they could (at midnight) to stem the flow. Thankfully the rain stopped and has stayed away, but it’ll still need fixing because it’s very near my head.

Then I was up at six for my lung function tests. We arrived at hospital at eight, and I saw the same girl as I did in November, and I had to get in the box again. I think my lungs have got to a level of shitness that requires a specific test that can only be done in the box. I was in there for nearly an hour because I had to do two of the tests three or four times, plus she is nice so we were chatting.

I then sat and read my book for an hour and a half while Dr. Thompson saw the patient before me (for ages). When it was finally my turn, I was in there for about ten minutes? My results are the same as six months ago, so that’s fine. We talked about him putting the kibosh on my second liver transplant and everyone saying I would die, but five years later here I am, no second transplant, no more superbugs. He was glad I am not suing them for emotional distress. As if I care; I am just glad to be here. He couldn’t believe it was 2013. Here I am, still defying the odds. Having conversations about how long my 23% will keep going for. We don’t know.

The 27th of April.

Baby news! No, not royal baby news, couldn’t give a monkey’s about Prince Louis. No, John and Maddie (whose wedding we went to last summer) have had their baby! She is called Esmée and she is small and pink and angry-looking but I’m sure she’ll cheer up soon.

I’d just got a blog post written up when Denise arrived with a kitty for me! She (the cat) had been taken to the vet by someone wanting to put her to sleep, purely because she has a wound on her side, we think some kind of allergic reaction to a bite, and they couldn’t cope with it. But Brynn didn’t want to do that when she is so young (we think only about a year old) and otherwise healthy, so he called us. We have to clean the site with hibiscrub every day, but she’s very friendly and amenable so hopefully it shouldn’t be a problem.

I stayed with her for an hour until we had to go to the QE to have my right eye done. Thankfully, because there were only three lashes together, Mr. Kolli wanted to get me done first and quickly which I was only too happy to go along with. It was him doing the procedure today, and he did just the one injection. However, today’s was the most painful I think I’ve had. Still, it worked swiftly, he zapped the rogue lashes and whacked the patch on. I had my custard creams, then was discharged to spend the afternoon trying to ignore the itching and sitting with my new friend, who we can’t decide on a name for.

The 28th of April.

It has been a very good day!

I woke up a little bit early and watched Riverdale in bed (#JusticeForMidge) before getting up and dressed to see Adam this morning.

I got to Yorks just before him, swooping in on a table as two guys left it. Vulture skills. He popped up behind me as I was about to message him so we had a big hug then got coffee and cake. He told me some very exciting news which I will have to keep secret for a while but I look forward to it being shared. I got to give him the little cinnamon bun I crocheted and he is going to put it on his Dean shelf. He told me about how things are going at Oxford and I told him about Porno Live because he is a Belinker too.

Daddy came to pick me up because we had tickets to Infinity War at half two, so we had another massive hug and Adam went back to the station while we got in the car. I can’t say anything about the film but I have a lot of feelings. I nearly did a cry, but I also cheered a lot. It was very stressful.

Back at home, I got the new kitty (still can’t decide on a name) to fall asleep on my lap! Cat Whisperer is me.

 

The 23rd of April.

It has been a very boring day.

This morning, I wrote up a blog post, sewed up the seam of the first sleeve of my jumper, and got very bored of hearing about the new royal baby. So much baby news. Now he is born and home, one hopes it will die down once we know his name.

I had an ultrasound with Andrew at one, to check if there were any strictures or thromboses in the lower arm. After checking all the veins, and looking at the visible tissue, it seems my veins are fine, there isn’t any fluid anymore, and now there are just fat deposits in my arm for no reason! So I’m going to get back in touch with Anne Dancey to explore my options. I can’t leave it like this.

Then we had two hours to kill, so we bought some crap sandwiches from WH Smith and read our books. Much book-reading today. I finally went in to the x-ray suite at quarter past four, where Dr. Blaney was waiting. I lay face down, trying to breathe comfortably. My lower back was exposed, and I then had an x-ray probably every twenty seconds while Dr. Blaney did lots of injections. I think he was doing some local anaesthetic, then putting in a bigger needle and using that for the steroid. It took maybe five to ten minutes and was slightly uncomfortable, but not enough to put me off having them again. If they work, that is – it’s hard to tell at the moment. They might work immediately, it could take a few days, or they might not work at all. If they don’t, I don’t know what I will do.

The 24th of April.

Well, I think I might very tentatively say that my back may be slightly improved?

This morning it was quite tricky to tell, because I didn’t do anything to really test it out. I got up, had breakfast and coffee, and listened to The Riverdale Register while getting dressed for the gym. Mommy and I printed out all our tickets for Mach so they are sorted in folders for when they’re required, then I did the first two rows of the second sleeve of my jumper.

After lunch, I went to the gym for a short session. Partially because I didn’t want to overdo things, and partially because Mommy had to be at Grandma’s for twenty to four, so I needed to finish earlier than I usually do. Basically, I skipped all the stuff I do downstairs, so I just did the circuit of machines upstairs. I didn’t have the pain I was experiencing last time, but that was a very bad day. The pain is definitely not gone, but I think it might be a tiny bit better.

Tonight I am out at the mac seeing Tez and the seats there are not the most comfortable, so that might give me a better assessment.


The 13th of April.

I am not sure how easy it will be, but I’m going to try to write this with only one eye. It’s tricky trying to work out when the pen is going to hit the paper because I have no depth perception.

It’s been a really boring day, I’ll warn you now. I got a blog post done this morning, then we had to be at the QE for half twelve for my eyelash appointment. I was seen by the nurse just after one, then when I saw Mr. Kolli for the bit where he draws on my face, he said that for infection control reasons, my position on the list was going to be much later, so I wasn’t going to be done until half three at the earliest.

As I hadn’t got my two o’clock tablets and I’d finished my book, we decided to come home. Had lunch and drugs, picked up a different book (The Power), went back!

Mr. Kolli was more supervisory today. I was congratulated once again on my stoicism while being stabbed in the face but it really isn’t that bad. I felt it much harder to keep my eye open this time, but the doctor seemed to cope. Three big lashes, three fine ones. Hopefully I have some left! Then my whole eye was slathered in ointment and I have a double pad on secured with tape, which I can take off at bed time. I got some free custard creams for being brave, and here we are.

The 14th of April.

I have not quite escaped the bruising this time. Slightly less experienced doctor means more injections so I have several tiny pink blobs under the eye. Getting the tape off last night was not fun at all. I am very glad we have the stickiness-dissolving wipes because otherwise we would have ripped off half my face.

I have spent my day in the house, despite the sunshine. Never mind the miniature black eye I am sporting, there’s also the thrice-daiky ointment which only adds to the shininess. Makes a gym trip not top of my priorities list.

Instead, I have crocheted the sleeves of my jumper and finished season three of Scandal. I haven’t got to the end of the second sleeve, but I should by the end of the day.

And of course Theresa May has decided to join in with starting World War 3, so I’m going to start looking for a bunker.

 

The 28th of March.

I have been outside!

This morning, I got up a bit earlier than usual, which meant I had time to write up my blog post before we had to go out. I had a chiro appointment at eleven, which was sorely needed after all the crocheting I’ve been doing. These jumpers have rather fucked up my neck – too much sitting here, looking down. Trine had to apply some rather intense pressure to some knots and ooh it was painful.

From there, I went to the gym. I met up with Karen, but there wasn’t much for her to show me today. I just need to do my thing for a few weeks, then come back to her with my progress to talk about any changes.

I worked out for about two hours, getting to do everything in my preferred order which was most pleasing. Even more so was that when Mommy picked me up, she’d been to M&S where they had a pretzel and a cinnamon swirl!

This afternoon, I have returned to the crochet (trying to look up more often) and watched thimgs that recorded last night. I did some screaming at How to Get Away with Murder because of Connor and Olly’s wedding and Scandal crossover! Going to be SO GOOD. I haven’t actually watched Scandal, but I feel very very excited about this.

Tomorrow I am finally going to find out exactly what is going on in my arm. Let’s hope, or I’ll have a breakdown in the middle of Andrew’s clinic.

The 29th of March.

Hm well not really proper answers. I love going to see Andrew because he’s very punctual and I never have to wait when I am called through.

Basically, we don’t know why my arm is fat. The pictures from the MRI show that the veins in my neck and chest are as good as they can be, and any further intervention using stents or whatever won’t really make any difference. So I asked if we can look at my actual arm to see there is a stricture anywhere, because the forearm is where I get pain, where it feels like things are being squeezed, and he’s going to do an ultrasound in it when I go in for my steroid injections. That’s all that’s left, really. I think I will email Anne Dancey and ask her if there is a scan she could do that would determine the exact composition of my arm – what the veins and lymphatic system look like, what is fat, what is fluid, and then what can be done with the results of that. This would be so much easier if I weren’t allergic to contrast.

We picked up Christine at New Street (eventually), and this afternoon I have been crocheting the second sleeve of the jumper and starting Scandal. I’m doing this one longer, so I’m going to have to unravel the first one and do it again. I have enough wool.

 

The 6th of March.

Back to the crochet habit. Might as well!

I woke up still tired, wanting to stay in bed but I forced myself up. Rosemary was coming round for lunch, so we had no trips out. I spent my morning writing up a blog post, then I started another sausage dog. This one is brown and cream, which is not a combination one sees often in them but it’s in the book and if it looks shit then I won’t give it to anyone. Rosemary did like the one I’ve already done, in black and brown, because he looks like her dog, Otto.

While she and Mommy had lunch, I watched the first episode of season five of Agents of S.H.I.E.L.D. Absolutely batshit insane – jumped forward seventy five years into the future in space. Obviously.

This afternoon, I made the head and ears of the dog, watched some Bones, and booked Mac into the vet for his secretary vaccinations tomorrow afternoon. Got a viewing on Thursday.

The 7th of March.

Tired. Up early for hospital. Not haematology, as was also previously in the diary for today, just ophthalmology. Mr. Kolli, not Dr. Barry. Today was about rogue eyelashes. The clinic was running very late – they were missing a registrar – so I didn’t get seen until an hour after my appointment time. That was fine – I got a lot of Eat Up! by Ruby Tandoh read. I wish I could give it to my thirteen year old self and keep her from developing an eating disorder to begin with. I wish I’d be able to read that instead of Wasted.

He checked my pressures and they haven’t gone down very much, but he wants me to try to get the prednisolone eye drops down to twice a day before trying anything new. He’s going to get me booked in to do the left eye again, then do the right eye a few weeks later. It would be tricky to drive my chair if they did both at the same time.

We’d been planning on going into town to do some shopping, but by the time we got out, there wasn’t time, so we just came home for lunch.

Mommy went to Grandma’s, then when she got back, we took Mac to the vet. He was a good boy, just very chatty on the way! If only all trips there were so easy.

The 26th of February.

I found the birthday card! I had hidden it (too well, it turns out) in a Christmas bag by my window. Very pleased because it is a great card.

First thing, I gave Mommy her card and presents – a pair of embroidery scissors she’d asked for, and some afternoon tea Biscuiteers biscuits. Then, once I’d had my coffee, I went back upstairs to the computer. I put together Suzi’s sausage dog while scanning for duplicates, then marking and deleting them. The program I got to help with iCloud is no good, so I’m going to have to do it the tedious way.

I got sick to the back teeth of marking individual photos, especially when there were over 40,000 groups, and then the program crashed, so I thought fuck it. I created some rules, auto-marked and trashed them. And seeing as I’m doing the iCloud photos on a browser, I can do it downstairs on the laptop and not be in agony. I’m going to ring the GP tomorrow to find out if they’ve had this letter about steroid injections. I ought to be able to sit in a normal chair without excruciating pain.

The 27th of February.

No computer today! Well, a tiny bit, but using the laptop, not at my desk.

I had a big sleep, and this morning I did very little bar having a hairwash, petting the kitten and doing a bit of gym research. I simply don’t have the impetus to work out at home, so I need to find somewhere that I can go which is more accessible to me i.e. no stairs.

After lunch, I started working on Sara’s King Charles spaniel while catching up on some tv. I’ve made the head and body, and seen the new iZombie (how I have missed it) and last week’s How to Get Away with Murder. I am unhappy that Connor proposed to Oliver because I love them and I think this means that Connor will probably die.

I also spoke to the GP to see if they’d received the letter from Dr. Blaney’s secretary. They had not, so I rang her, but she wasn’t the. Someone from her office rang me back, and it turns out she never fucking sent it. It has been done now but fuck, she is incompetent.