Archives For qehb

The 15th of August.

Such a long day of travelling and oh my back hurts so much.

Off to Wales to see Taid! Set off just after nine, and I spent the whole journey listening to the Hidden Figures soundtrack and reading The Beautiful Cure. When we arrived, Taid was wearing a very jazzy orange shirt. Apparently he has two more in the same pattern! He is full of surprises. Anyway, we let him finish getting ready, then we went to a pub for lunch (not the one in Conwy so no dogs).

It was quite a nice place, and I ordered a “light bite” of fishcakes which ended up being incredibly filling, so what a full meal might have been I dread to think. It was good though! No complaints from me. That might have been different if I’d had a coffee like the others – they came with squirty cream instead of milk and was apparently disgusting.

When we got back to his house, Mommy and Daddy did his washing up, and I made a space in the living room amongst the piles of post so I could sit and do the puzzles in the Telegraph.

We were on our way back in good time for once, so we got home about seven. I love my comfortable chair.

The 16th of August.

Today is the 11th anniversary of my cancer diagnosis. It’s been a good day.

I was up early again because I had clinic with Andrew. I wasn’t sure how he was going to react to my arm because last time I saw him, he said he didn’t think I should have lipo. Thankfully, he was delighted! I think he is just happy that I am fixed. He’s still confused, but he said I made his day so I’ll take that.

Went into town for anniversary treats. I got a new lipstick from Huda Beauty, a cruller from Krispy Kreme, and The One Who Wrote Destiny by Nikesh Shukla from Waterstones. While we were in there, we saw Mr. Tobin from Hallfield! That was a lovely surprise. He doesn’t age, I swear.

This afternoon, I have had a lovely time starting a baby blanket and watching House. I even got some early strokes in with Dolly! She doesn’t usually allow that until the evening. I’ve also been getting lots of nice comments on a poem I have written about this day. I can’t remember the last time I wrote anything vaguely resembling poetry so I wasn’t sure how it would be received by it seems that people like it!

We are having venison for tea. Happy.

The 16th of July.

Early start for liver clinic. A very straightforward one – we got an excellent parking space, I had my blood pressure done, watched about ten minutes of tv, then I got called through. James wasn’t there today, so I saw a different lady. I don’t really have any concerns, and I answered all her questions in a satisfactory fashion, so I was in and out in no time. Had to have some bloods done, and remarkably, they got a vein the first time! I was very impressed.

This afternoon, I had to put my feet up against the wall again (I don’t know why this is so bad at the moment; maybe it’s the heat?) for an hour, then I had appointments at the dentist and hygienist. I do feel slightly smug after going because my gum score is always zero and they congratulate me on my brushing and flossing technique. Gotta have that good oral hygiene.

I got the information of the potential adopter of Dolly. However, I tried both the phone numbers provided, and one was out of service, and the other went through to a man who didn’t know what I was talking about. Not promising! I have emailed the woman, and we’ll see if she gets back to me.

The 17th of July.

Ugh, bureaucracy. I spent my morning ringing various phone numbers of government agencies, trying to sort out the renewal of my blue badge. I sent off the application yesterday when I got the reminder, but I knew they’d request extra documents because the website format doesn’t allow you to send enough. However, they want a letter that does exist – one dated in the last year that days how many points I get for PIP. I don’t have that because I haven’t been reassessed in that time as I’m entitled to it indefinitely.

First, I spoke to the Blue Badge people, who just won’t accept any other letters no matter how well I argued my case. So I had to ring the DWP to get an up to date proof of eligibility letter, and there are SO MANY PHONE NUMBERS. The number the Blue Badge people put in the email is wrong, the one on the last letter from the DWP is wrong, then I think I tried two more numbers and sat on hold for ten minutes before I spoke to someone. Thankfully, they were helpful, and my letter should be with me in 3-5 working days!

This afternoon, Daddy and I sent to see The Incredibles 2. That was good fun. I thought the twist was pretty obvious, but that didn’t dampen my enjoyment. The scene with Jack-Jack and the raccoon is very good, and Edna Mold is still the best. I highly recommend it.

Happily, the lady I emailed last night got back to me with a correct phone number, so I’m going to call her this evening.

The 6th of June.

My right shoulder is the problem today. Honestly, my body just feels like a disaster zone lately.

This morning, I wrote up a blog post, then I listened to the new episode of The Naughty Step and gave the kittens a pet before a trip to Black Sheep for Michaela to cut my hair. She was away when I went for my colour, so I had to wait. It was getting far too long and tufty. Had a good chop and chat about life, gave kitten updates, and had barely finished my coffee by the time we were done. Daddy picked me up on his way back from that dump and we came home.

Had to eat some lunch very quickly, remove my eye make up, and go back out to the QE to see Mr. Kolli. Had a blast from the past while waiting for my name to appear on the screen when a girl called Rosie who I met at BCH came over. She works at a care home so was with a patient, but it was nice to see that she is fine. My eyelashes are behaving themselves for now, so I don’t need to have any more removed yet, my pressures have come down a bit (after several attempts to measure them), and my GvHD is inactive. Plan now is to do steroid drops every day for two months, then stop, and do the pressure drops every day until a week before my next appointment with him in three months. Let’s hope my eyes continue to cooperate.

The 7th of June.

Well, Dolly has been a right old pretender. Not in her disdain for us, but the kittens. All this time she has acted like she doesn’t care about them, completely ignoring them, but we had to separate them last night so they wouldn’t feed from her while they were meant to be nil by mouth, and she has made the most forlorn sounds all day. Constantly mournful yowls, so I spent my morning replying to every mew and giving her Dreamies. She only really quietened down when she fell asleep. I don’t know how she’s going to cope tomorrow night when they’re gone and not coming back.

I stayed with her until lunchtime, came out to eat, then I went back in until it was time for us to go and collect the kittens. I really don’t know if me sitting with her helped at all, but I couldn’t bear to be out of the room and hear the sadness.

Had the bonus of meeting some good dogs at the vet, and the kittens had all been fine, they just screamed all the way home. Must warn the people tomorrow.

The 9th of May.

Second catch up sleep completed. I reckon I probably have one left before I am back to normal, but that won’t be tonight because I have to get up at six for ridiculously early lung function tests tomorrow.

I wrote up a blog post this morning, but I haven’t sorted out the photos and stuff so it is yet to be published. I was upstairs getting dressed when I got a text from Mommy warning me of the imminent presence of the window cleaner (she had just gone out so saw him further down the road) so I dove behind the bed to protect my dignity. Turned out that wasn’t necessary because he didn’t appear for another forty five minutes.

After lunch, I went with Mommy to pick up Grandma from lunch club at church, then after dropping her off at home, we went to the QE for my follow up with Mr. Kolli. He had a look at my lashes which look good, although the right eye will need to be checked again in a couple of months. He also checked my pressures which had gone up to 25/26 which is bad. Have to start doing steroid drops once a day and in a month he’ll check them again. Hopefully I continue to be asymptomatic, I can stop the steroids and my pressures go down. If that doesn’t happen, I’m not sure what the plan will be. My eyes explode.

The 10th of May.

Well I definitely did not have a great sleep because just as I was dropping off, I heard a dripping sound. The rain was coming through my ceiling. I had to go and wake up my parents, who did what they could (at midnight) to stem the flow. Thankfully the rain stopped and has stayed away, but it’ll still need fixing because it’s very near my head.

Then I was up at six for my lung function tests. We arrived at hospital at eight, and I saw the same girl as I did in November, and I had to get in the box again. I think my lungs have got to a level of shitness that requires a specific test that can only be done in the box. I was in there for nearly an hour because I had to do two of the tests three or four times, plus she is nice so we were chatting.

I then sat and read my book for an hour and a half while Dr. Thompson saw the patient before me (for ages). When it was finally my turn, I was in there for about ten minutes? My results are the same as six months ago, so that’s fine. We talked about him putting the kibosh on my second liver transplant and everyone saying I would die, but five years later here I am, no second transplant, no more superbugs. He was glad I am not suing them for emotional distress. As if I care; I am just glad to be here. He couldn’t believe it was 2013. Here I am, still defying the odds. Having conversations about how long my 23% will keep going for. We don’t know.

The 27th of April.

Baby news! No, not royal baby news, couldn’t give a monkey’s about Prince Louis. No, John and Maddie (whose wedding we went to last summer) have had their baby! She is called Esmée and she is small and pink and angry-looking but I’m sure she’ll cheer up soon.

I’d just got a blog post written up when Denise arrived with a kitty for me! She (the cat) had been taken to the vet by someone wanting to put her to sleep, purely because she has a wound on her side, we think some kind of allergic reaction to a bite, and they couldn’t cope with it. But Brynn didn’t want to do that when she is so young (we think only about a year old) and otherwise healthy, so he called us. We have to clean the site with hibiscrub every day, but she’s very friendly and amenable so hopefully it shouldn’t be a problem.

I stayed with her for an hour until we had to go to the QE to have my right eye done. Thankfully, because there were only three lashes together, Mr. Kolli wanted to get me done first and quickly which I was only too happy to go along with. It was him doing the procedure today, and he did just the one injection. However, today’s was the most painful I think I’ve had. Still, it worked swiftly, he zapped the rogue lashes and whacked the patch on. I had my custard creams, then was discharged to spend the afternoon trying to ignore the itching and sitting with my new friend, who we can’t decide on a name for.

The 28th of April.

It has been a very good day!

I woke up a little bit early and watched Riverdale in bed (#JusticeForMidge) before getting up and dressed to see Adam this morning.

I got to Yorks just before him, swooping in on a table as two guys left it. Vulture skills. He popped up behind me as I was about to message him so we had a big hug then got coffee and cake. He told me some very exciting news which I will have to keep secret for a while but I look forward to it being shared. I got to give him the little cinnamon bun I crocheted and he is going to put it on his Dean shelf. He told me about how things are going at Oxford and I told him about Porno Live because he is a Belinker too.

Daddy came to pick me up because we had tickets to Infinity War at half two, so we had another massive hug and Adam went back to the station while we got in the car. I can’t say anything about the film but I have a lot of feelings. I nearly did a cry, but I also cheered a lot. It was very stressful.

Back at home, I got the new kitty (still can’t decide on a name) to fall asleep on my lap! Cat Whisperer is me.

 

The 23rd of April.

It has been a very boring day.

This morning, I wrote up a blog post, sewed up the seam of the first sleeve of my jumper, and got very bored of hearing about the new royal baby. So much baby news. Now he is born and home, one hopes it will die down once we know his name.

I had an ultrasound with Andrew at one, to check if there were any strictures or thromboses in the lower arm. After checking all the veins, and looking at the visible tissue, it seems my veins are fine, there isn’t any fluid anymore, and now there are just fat deposits in my arm for no reason! So I’m going to get back in touch with Anne Dancey to explore my options. I can’t leave it like this.

Then we had two hours to kill, so we bought some crap sandwiches from WH Smith and read our books. Much book-reading today. I finally went in to the x-ray suite at quarter past four, where Dr. Blaney was waiting. I lay face down, trying to breathe comfortably. My lower back was exposed, and I then had an x-ray probably every twenty seconds while Dr. Blaney did lots of injections. I think he was doing some local anaesthetic, then putting in a bigger needle and using that for the steroid. It took maybe five to ten minutes and was slightly uncomfortable, but not enough to put me off having them again. If they work, that is – it’s hard to tell at the moment. They might work immediately, it could take a few days, or they might not work at all. If they don’t, I don’t know what I will do.

The 24th of April.

Well, I think I might very tentatively say that my back may be slightly improved?

This morning it was quite tricky to tell, because I didn’t do anything to really test it out. I got up, had breakfast and coffee, and listened to The Riverdale Register while getting dressed for the gym. Mommy and I printed out all our tickets for Mach so they are sorted in folders for when they’re required, then I did the first two rows of the second sleeve of my jumper.

After lunch, I went to the gym for a short session. Partially because I didn’t want to overdo things, and partially because Mommy had to be at Grandma’s for twenty to four, so I needed to finish earlier than I usually do. Basically, I skipped all the stuff I do downstairs, so I just did the circuit of machines upstairs. I didn’t have the pain I was experiencing last time, but that was a very bad day. The pain is definitely not gone, but I think it might be a tiny bit better.

Tonight I am out at the mac seeing Tez and the seats there are not the most comfortable, so that might give me a better assessment.


The 13th of April.

I am not sure how easy it will be, but I’m going to try to write this with only one eye. It’s tricky trying to work out when the pen is going to hit the paper because I have no depth perception.

It’s been a really boring day, I’ll warn you now. I got a blog post done this morning, then we had to be at the QE for half twelve for my eyelash appointment. I was seen by the nurse just after one, then when I saw Mr. Kolli for the bit where he draws on my face, he said that for infection control reasons, my position on the list was going to be much later, so I wasn’t going to be done until half three at the earliest.

As I hadn’t got my two o’clock tablets and I’d finished my book, we decided to come home. Had lunch and drugs, picked up a different book (The Power), went back!

Mr. Kolli was more supervisory today. I was congratulated once again on my stoicism while being stabbed in the face but it really isn’t that bad. I felt it much harder to keep my eye open this time, but the doctor seemed to cope. Three big lashes, three fine ones. Hopefully I have some left! Then my whole eye was slathered in ointment and I have a double pad on secured with tape, which I can take off at bed time. I got some free custard creams for being brave, and here we are.

The 14th of April.

I have not quite escaped the bruising this time. Slightly less experienced doctor means more injections so I have several tiny pink blobs under the eye. Getting the tape off last night was not fun at all. I am very glad we have the stickiness-dissolving wipes because otherwise we would have ripped off half my face.

I have spent my day in the house, despite the sunshine. Never mind the miniature black eye I am sporting, there’s also the thrice-daiky ointment which only adds to the shininess. Makes a gym trip not top of my priorities list.

Instead, I have crocheted the sleeves of my jumper and finished season three of Scandal. I haven’t got to the end of the second sleeve, but I should by the end of the day.

And of course Theresa May has decided to join in with starting World War 3, so I’m going to start looking for a bunker.