Archives For sadie

The 20th of June. 

It has been slightly less hot today. It didn’t feel like it this morning – I had to get changed after going upstairs to put on minimal make up because I was so sweaty. It was very unpleasant. 

I was meeting Sadie for waffles at one, so Mommy dropped me off in the Bullring car park and I went up in the lift to Selfridges so I didn’t have to deal with any blinding sunlight. I was early, as always, so I got a table and waited for her while perusing the menu. We decided we would have just waffles, no room for milkshakes too. I went for the Seriously Cinnamon, but without all the whipped cream and stuff they normally put on top. Just cinnamon and syrup for me please. 

I got to hear all about the debacle of her stolen phone, her dealings with the book eater (Matthew Goodwin, her PhD supervisor), and she got to squeeze my fat fluidy arm. A fair trade. Still no venoplasty date, by the way. Once we’d eaten and paid (neither of us could finish our plates), we moved to Starbucks for cold beverages and comfier chairs. Amazingly, sofas became available just as we ordered our drinks! How fortuitous. While there, we saw two children riding around the toy section of Selfridges on these houses that move around like real ones. They’re incredible and I want one. 

Back home, I managed to get the kittens to play a little bit. They will play with me, as long as I don’t make any sudden movements. Sigh. 

The 21st of June. 

Today has been the hottest. And I had to go outside. Bleah. Oxygen clinic at ten, where we saw Ben, who was very happy to see me without tubing on my face and looking much brighter. He also wanted to know what was going on with my venoplasty/PICC, and when we told him that nothing has happened, he said he would email Andrew to try to speed things up. 

Had a slightly longer appointment with the oxygen nurse, just because I had to explain everything about the pneumonia and my stays in during the past six months. She stabbed me in the ear and my oxygen levels were a bit lower than last year but that is only to be expected and they weren’t terrible.

Went into town before going home, where I bought three books (Why I’m No Longer Talking to White People About Race by Reni Eddo-Lodge, The Power by Naomi Alderman and We Should All Be Feminists by Chimamanda Ngozi Adichie), an eyeliner and mascara from Boots, and a fan brush from The Body Shop. The lady who served me had to go and find one from the stock room, and came back with several which she put on the counter. I paid, and she brought my receipt and change round the counter to give to me, but not the brush. I assumed she had just forgotten to pick it up so asked for one and she thought she’d given it to me but I didn’t, so she handed it over. Then we went to Starbucks so I could get an espresso frappuccino. While I was waiting, I happened to look in my bag and saw a brush, which confused me because I was sure I’d put it in the Foyles bag with the books. I checked, and there was a brush in there too! I had no idea how the one in my handbag got there, so I got my drink and we went back to The Body Shop. I went up to the counter, where the lady was, and handed her the extra brush, apologising for my accidental thievery. She was very surprised me but congratulated me on my honesty. Sure I could have kept it, but what would I do with two? Seriously no clue what happened. 

This afternoon, I think I made some progress with Betsy and Brodie – we played games with my fingers. They don’t immediately run away from me now. 

I had an appointment with Trine at the chiro at half four, and it was much better than last time. No hospital bed makes such a difference!

The 5th of May.

More trips out today. Busy busy.

When I woke up, I was struggling, because the oxygen cylinder upstairs had run out. However, things have improved since then. It is always worst in the mornings and evenings. After breakfast, I watched the new episode of Riverdale, and (no spoilers) SO. MANY. REVELATIONS. Also I am sick to death of Veronica Lodge always bringing it back to her and her dad. Do not care, shut up.

I had an appointment at the GP at quarter past one to discuss pain relief. The buprenorphine is making absolutely zero difference to my pain, and she seemed quite surprised to hear this. The next step is to try pregablin instead, so I’ll start that tonight. Fingers crossed it doesn’t affect my breathing.

We came home for about an hour, then we were back out to the dental hospital, just for a check up. They were running late, so I got a lot of The Burial Hour read while we waited. I got called by a young dentist called Joseph who looked about twelve, but was very competent. He looked at my mouth to see if there were any signs of GvHD while another dentist scribed, then we just had to wait for their senior colleague to check I was fine. He was with another patient, and while we sat, we got onto the subject of Netflix, and the girl who’d been writing watches Pretty Little Liars and Riverdale too, and they both watched 13 Reasons Why, so we were in no rush for him to arrive.

Dr. Khan finally came, and thinks my mouth looks the best he’s ever seen it, so they don’t want me back for four months.

As soon as we left, I reopened my book as I was at a critical point, and now it is finished. Oh, Jeffery. Clever, clever Jeffery.

The 6th of May.

Do not like this new pain drug, pregablin. So far it is not making my back feel any better, it has just made me really sleepy all day. Not exactly tired, but my eyes just want to close. It’s not ideal. I’m going to continue with it for a few days, see if the sleepiness wears off and the pain gets any better. I’m not optimistic but I have to give it a chance.

My day has been a really rather dull one, for the most part – I have been sitting with the laptop, typing up the blog entries that I have got behind on posting. There were six to do I got three done. They’re still not posted because I need to add photos and I do that on my iPad. It is very boring but it must be done.

I had a couple of breaks in which I went to sit with Sam and we were both sleepy. He is such a good boy that if nobody wants to adopt him, I will beg Daddy to let us keep him. He won’t live that long, won’t cost us a huge amount of money.

This evening I went out with Sadie to see Joel Dommett. She is a bit in love with him and asked if I’d go so I agreed – although I’ve already seen his show, I was interested to see how he would make the show work, going from a 90 seat room to an 1800 seat one. When we arrived, I saw JT, and we had a little catch up, then he had a look at our tickets and asked if we wanted to go in the wheelchair space instead. Considering they were better seats and I didn’t have to move, I was only too keen to say yes.

The show has definitely improved since October, and I think it actually works better in the larger space. I’d completely forgotten about Laser Dick, but by the second chorus I was singing along again. And he’s changed the ending, which I won’t spoil, but it’s definitely more suitable for the bigger venues he’s doing. He’s not coasting on the fame he’s got from I’m A Celebrity; he’s worked really hard and it’s paying off.

The 16th of December.

It lifted, thank god. The wrapping day was not ruined. I woke up in time to say bye to Mommy and Daddy before they set off for Wales, then had my breakfast and wrote up a blog post. After fighting for a long time with the lock on the front door (I was being inept), I went round the corner to get some double sided tape and cotton wool pads (not for wrapping, I had just run out). 

After lunch, I set myself up at the dining table with my peppermint drinking fudge, The Polar Express, and all my wrapping paraphernalia. I spent the subsequent three hours indulging in festive spirit, and I have nearly finished, I just need to get some gift bags for a few things that even I am incapable of wrapping. Will pop into Paperchase after The Muppets tomorrow. 

Just after half four, I jumped in a taxi to go back to Black Sheep to have the toner cleansed our of my hair – washing did not give the desired effect. James was lovely and has fixed it, and I’m much happier now. 

I have just finished my dinner of a Domino’s personal pizza and two of four cookies, awaiting the arrival of my parents back home. They are mere moments away. 

The 17th of December. 

Today would have been 100% excellent if not for one (hopefully) minor inconvenience. But I will get to that. 

Woke up stupidly early for a Saturday, but for a good reason – Becky and I were going to watch The Muppets Christmas Carol at The Electric! She came to pick me up at quarter to nine, and off we went. We parked round the back of the cinema, then got some tea before taking our seats. I actually ordered a coffee, but it tasted awful so I went back and got a tea as well. The screening was not as busy as I expected, but some people still managed to be irritating by having brought their poorly-behaved, germ-riddled children. Not acceptable. Still, they could not ruin the magic for me. After all, it is the summer of the soul in December. 

Afterwards, we went to the Cereal Killer Café because I wanted to try one of their “cocktails”. I had a bowloccino, which is Nesquik, Coco Pops, a chocolate curl and espresso milk. So tasty! I would never go there for something like Special K, but combinations or ridiculous cereals, I am all for. 

Before coming home, we went into Paperchase so I could get some gift bags and more ribbon and tissue paper. Now I can finish my wrapping. 

Now to the inconvenience: I happened to push up my sleeves and thought “Ooh, my right arm looks a bit fat. Let’s give it a squish. Ooh, that’s a bit boggy for my liking. Actually, my right foot has felt puffier than usual for the past couple of days. And my breathing has been terrible of late.”

So I don’t know what’s going on, because I don’t have a line anymore, so that can’t be causing it, and it’s only one side, so I’m confused and unhappy. I have started diuretics to try to get rid of some of the fluid, but on Monday morning I might be ringing Gill Lowe to freak out. I don’t want to spend Christmas looking like the Stay Puft marshmallow man. 

This afternoon, Sadie came round! Mainly to see the kittens. She did not steal any (I checked). She was greatly amused by their interest in her feet. They love feet. We stayed with them until they fell asleep, then we watched the end of Mr. Magorium and ate the two remaining Domino’s cookies. 

She had to go about four to make sure her dad had done the pile of sorting she’d left him. Sometimes I wonder who the parent is in that relationship. 

Hoping to god my body deflates with peeing. Don’t make me have another venoplasty. 

The 26th of August. 

Today did not begin brilliantly but has greatly improved. I woke up super early for no discernible reason, so I put on the Today programme which usually sends me back to sleep, but then more NHS cuts was the main story and it just made me so mad that then I was awake. 

I watched Zoo on Netflix until it was a socially acceptable time to get up, then I spent my morning writing a blog post and avoiding the news. I cannot listen to it because it just enrages me so. 

Sadie is home for the bank holiday, so I met up with her at Yorks for the afternoon. We had a great time discussing her housemate’s very-swiftly-moving relationship, the saga of getting Nadia in the cat carrier, Bake Off and The Chronicles of Nadiya. She is like a Nadiya in her family, as since she has been backpacking on her own, now some of the other women in her family have been able to go travelling (but only to places she’s been). She loved the Cookie Jar Cat and can’t show her dad because he’ll be jealous and annoyed that it’s not for him. When he specifies what he wants, I’ll make him something!

Mommy picked me up, and on the way home we stopped at Tesco so she could get some orange jelly because she’s making Jaffa Cakes, and I bought ice cream because reasons. 

The 27th of August. 

Woke up today to the sound of Daddy throwing up a lot. That went on pretty much all morning, until Mommy went to see the pharmacist who gave her some travel sickness tablets which seem to have worked. He has this thing called Ménière’s disease which is a disorder of the inner ear. Usually he just feels a bit off-balance and it affects his hearing – he’s felt a bit sick before but never had the kind of severe vertigo and vomiting he was having this morning. He’s downstairs now, has had some toast and is now going to have an egg because he’s wild. Good thing we had no cinema trip planned!

I have had a quiet day of mainly crocheting; I’m making a sheep for one of the daughters of Philippa, who is the Youth Worker for the liver team. Then I’m doing a cat for her other daughter. I’m also supposed to make Oo Oo the monkey from Raa Raa the noisy lion for the son of James, my liver consultant, but there are literally zero crochet patterns for that on the internet so I don’t know what I’m going to do instead. 

I also had a phone call from Sheila about a potential adopter for Nola. I’ve rung her and she’s coming round tomorrow!

The 16th of September. 

Woke up to a text from Sadie checking that the Hallfield thing was tonight, and requesting either a seal or a penguin pal for Pablo the Polar Bear who I made for her previously. I had planned on going to the gym this afternoon, but that went out of the window. 

This morning I did a blog update, then hung out with the kittens. I think we’re proper friends now. Hal just doesn’t like it when a hand comes towards his face, but he’ll allow stroking. 

After lunch, I made a penguin for Sadie, which took a couple of hours but I got it done in time. It’s very cute. I had an hour before I needed to go out, so I had a little bit more kitty-petting fun time and took lots of photos of them. This could be bad for my phone memory. 

Said texted again to say she was going to be early so we sped out of the house to get to The Highfield so she wasn’t on her own for too long. When I arrived, she was very pleased to see me and her little penguin pal. We talked Bake Off and I showed her pictures of the kittens which she captioned excellently and I will be using them. We decided to be sociable with all the older men, which then resulted in an evening of Sadie having to explain that her PhD in politics has nothing to do with Jeremy Corbyn, and me telling people over and over about how my body doesn’t work. My favourite. 

I got home just in time for Bake Off, and had scrambled eggs on toast while we watched Tamal become Star Baker. 

The 17th of September. 

Finally back in the gym after about a week since my last rather unsuccessful session. 

I got up and dressed this morning in gymwear, but decided I will need to purchase some full-length gym leggings because it is going to get too cold for my knee-length ones. I had breakfast and did a little bit of writing before morning kitty time. They trust me now, but Harvey is definitely the needier of the two. He will always come up to me first and rub his face all over my hand. He also keeps smelling my nose which is very cute but a little bit unnerving. 

After lunch, I went to the gym. It was lovely and quiet so I could do exactly as I wished. Smiley boy not there again, which is very unusual, but the other odd one came in. It’s like he thinks he’s totally alone – I noticed him pulling up his shirt and squeezing the flab on his belly. Not something one expects to see in public. My favourite thing that happened was that four boys came in in their school uniform and I just thought it was adorable. 

 

The 29th of January. 

Finally! Things have happened. But I’ll get to that. I had a decent night, waking up just after nine and no horrible dreams like Monday night.

Mommy was out from about ten until three at Grandma’s pre-op for next week, so I was a bit stuck during that time. I made the tail and ears of Bridget the Elephant and now she’s finished, so I’ve got to finish Alexandre the Russian Blue Cat now. He needs ears, a tail and two more legs. And a face. I wrote my thank you letters and a blog post, and when Mommy finally returned, I was able to have some lunch (my lungs are not up to that level of activity yet). Oh, I tweeted into This Morning after an organ donation story and Philip read it out, although he kind of fumbled what I said for some reason. 

So we spoke to Becky the clinical nurse specialist about when my venoplasty might be, and she emailed Igor and Ram. Ram got back to her and said he had spoken to Andrew Willis yesterday regarding this, and I am booked in for Wednesday the 4th so I’m happy now. 

I am looking forward to seeing Sadie tomorrow, as long a there isn’t too much snow! We had some flurries today but not a vast amount. 

The 30th of January. 

I went out today, hooray! I spent my morning in the usual way, watching tv and crocheting the ears of Alexandre the Russian Blue Cat who I finished this evening. 

I met up with Sadie at Yorks Espresso Bar for lunch at twelve. I gave her the polar bear she’d requested and she’s named him Pablo. We both had ham and Swiss cheese croissants, then I also had a chocolate brownie which was excellent. We had a nice time because we always do, including the admiration of my friend Andy’s baby who was wearing exceptional stripy socks. 

When I got home, I finish Alexandre’s ears and tail, then I sewed him together and gave him a face. I think he is the best size – I’ve used different hooks for each one, Emma with a 4mm, Bridget with a 3mm and Alexandre with a 3.5mm. 

Tonight I am chilly and would like to go to bed soon. It’s only twenty past six. 

The 2nd of December.

Oh I had the most tedious morning. We arrived at the Women’s Hospital on time for my menopause clinic appointment at 10:15. We then sat for an hour and forty five minutes with no one saying what was going on, or apologising for the lateness of the clinic. By the time I finally saw Dr. Robinson, I was really very angry, and we politely let her know, but it wasn’t her fault, and we moved on. I can’t have the coil while I’m still on blood thinners, but my bleeding is much more regular and stable now, so I’ll cope for another six months. 

When we left just after twelve, we had to go and get hamster food because we don’t have enough for tomorrow. I was then able to have lunch, nut Mommy had to go straight back out to Grandma’s! When I’d finished, I let Becky know I was back and she came over to show me what will be her wedding make up. It was subtle, but enough to be special. We approve. The M&S dresses are going back but we’ve got plenty of time so there’s no worry. 

Back to hospital again tomorrow!

The 3rd of December. 

I decided to knock myself out early last night with a Zopiclone at nine because I wanted to get to haematology clinic for nine, considering I wanted to go into town afterwards and you can be waiting for hours if you don’t get in early. So I saw Igor, and apparently my echocardiogram didn’t show the thing that would mean I’ve definitely got/had a PE, but it did show the valve between my right atrium and ventricle isn’t closing all the way so I have some backflow which is indicative of there having been a clot. So I need the CT! So that is getting booked and I’ll get a letter. I have also been having these horrendous, debilitating headaches that we think are related to my high blood pressure, and I’d been having one since ten to eight and paracetamol hadn’t worked, so I thought it a good opportunity to bring them up. He’s now changed my lisinopril to amlodapine, and has prescribed me some co-codamol which I had two of at ten to twelve and within half an hour, there was some relief from the constant pounding. 

We went to The White Company and I have got my wrapping! Hopefully I’ve bought enough but I’ll get started soon so if need more, I’ve got time to get it. Got home and had lunch, spent the afternoon watching TOWIE and Intruders, and this evening I met up with Sadie for an Old Hallfieldian reunion at The Highfield. We had fun, drinking and commandeering a corner of the food table, and she showed me her photos from America. 

Back to school tomorrow! It’s going to be very weird.