Archives For ulcers

The 5th of January. 

I had a really good sleep, although some weirdly complicated dreams. One involved Victoria Beckham being a dog with glorious pink hair. As you do. 

Decided to ring the dental hospital again because the ulcer on top of my tongue is making it difficult to eat stuff. Chewing is hard. Unfortunately, the usual receptionist (the very obliging David) wasn’t there and the guy today didn’t understand that I am special and they always squeeze me in. Then it turned out Mrs. Richards wasn’t even there, but John Higham was in this afternoon and he could fit me in because he is an angel. 

I did a blog post, then continued with the crocheting of the blanket. I also went to say hi to the kittens after they all mewed at me while I was in the bathroom, and I ended up getting damp jeans because I sat on a bit of blanket that they like to knead and suck on simultaneously (I know, it’s disgusting, but they think it’s like their mum). 

After lunch, we went up to the dental hospital and saw John, who looked at my tongue, and didn’t really want to give me another injection because it is just uncontrolled steroid into the bloodstream, once it leaves the tongue, so instead he’s prescribed this steroid paste stuff that I have to put on. I’ve been warned that it is gritty and gross but I’m sure I’ll cope. It can’t be worse than the sensation of vomiting up chunks of your own dead stomach tissue into your mouth. 

The 6th of January. 

My arm is stupidly, uncomfortably big. I can only just get a jacket on now. I really hope this venogram happens PDQ because I want to be able to wear clothes other than huge jumpers. 

This morning, I went out with Shaki to meet a new fosterer. We spent about an hour and a half there with her, her husband, occasional cat-sitter (who will also be a registered fosterer) and current cats. One was not at all interested in investigating us, but the other one was in my jacket, scarf, bag and Shaki’s skirt. She was wanting much petting. 

Once we’d gone through all the relevant information, we then made trips to Lee’s, Lydon’s and Pets at Home in search of the gastro food to tide our kittens over until they go on Sunday. 

This afternoon, Daddy and I went to see Rogue One (finally). We were the only ones in there which is always fun, and it meant that I wasn’t annoyed by anyone else. The film was alright – I was almost irritated that it didn’t then go into episode IV with the destruction of the Death Star, but it was enjoyable enough. I liked the sassy robot. 

This evening I’m trying the steroid paste for my mouth. It’s not so bad.

 

The 26th of December. 

Changed our minds. Cancel the steroids – we have a new theory. We still think my mouth is GvHD, and so ring up the dental hospital first thing on Wednesday, but we’re less site about my feet – we now think it might be a condition called erythromelalgia, which can be caused by high platelets (I have bucketloads of them). We might go to the QE after the dental hospital and until then, carry on with cold water and elevation. 

I spent the whole morning in my pyjamas, then when I did finally get dressed, I put on my very soft new trousers and have had a very comfortable, cosy day. Except for all the pain. 

At lunch (Nigel Slater’s festive sausage roll), I just looked at it and thought I might cry. Just feeling so shit, and I really don’t know what the reason or solution is. If the pain team are required I am not hopeful, as I’m still waiting to hear from them about my back. I need an alternative to gabapentin, a drug for nerve pain that won’t impact upon my breathing. 

This afternoon has just meant sitting in front of the films on BBC1. Tonight is the last ever proper Bake Off and it think I will weep salty tears into my Christmas cake. 

The 27th of December. 

Changed our minds again. My feet have been so much better today and don’t know if that’s because the steroids are treating GvHD, or if it’s just the anti-inflammatory effect they have. Anyhow, I took the pred again today. I’m not sure about tomorrow, apart from definitely ringing up the dental hospital, because my tongue needs injecting. 

I spent all of my morning writing up my Christmas Day post, then after lunch, I went to the kitty room to watch an episode of The OA and see if I could work out which kitten is still doing dodgy poos. We have been taking shifts to watch them, but haven’t been able to work it out yet. 

I left when Daddy came in to watch The Grand Tour (I know, but I can’t stop him), and Mommy and I watched the Big Fat Quiz of the Year. Now we hear Richard Adams and Carrie Fisher have died. I wonder who is left for 2016 to take from us. Just finish, then everyone can stop dying and everything will be fine. 

The 1st of March. 

Bleah I feel rubbish. Barely slept because I was coughing and sneezing. The house had no heating because the boiler man was coming so it all had to be switched off. I’ve been in the knitted joggers and my extra warm thermal polo neck and they did the job of the radiators until the boiler was fixed. 

That’s all there is to say about today. I have been taking Day & Night Nurse, Carbocisteine, Strepsils, plus spraying my tongue with the strong steroid because an ulcer is trying to happen there. Going to clinic tomorrow to get some antibiotics because I’m bringing up yellow junk. Hopefully I can get some of it into a sample pot in the morning so they can test it. 

God, I hope this doesn’t last long. 

The 2nd of March. 

I don’t feel totally terrible. I could do with more sleep and I wish I weren’t coughing up junk but at least I’m not feeling completely wretched. I barely slept again, then got up at eight so we could go to clinic to get me some antibiotics. I put myself in the side room, because if I’d been anyone else in clinic, I’d want the person filled with germs isolated. When I had my bloods done, I got a sample pot which I managed to hawk from yellow stuff into and now that’s off being analysed and cultured. Ram listened to my chest and heard the ever-present crackles in my lower right lung, and he gave me some Co-amoxiclav and sent me for a chest x-ray. I forgot how big those tablets are. 

We got home just before half past one, avoiding all the swirling snow we’d seen earlier. I had scrambled eggs for lunch because my tongue is bothering me. Right now it just feels raw and sore, especially if I eat something acidic. Talking is also a little bit tricky. If it lasts longer than a few days, I’m going to have to get injected again. 

Obviously that is a boiled egg and soldiers which I had for lunch on Tuesday, I have not lost the plot completely. 

The 21st of April.

Another day of coping with my ulcers. Thankfully, I haven’t had to talk or eat much. I have my appointment at the dental hospital tomorrow, and they rang this morning to discuss clexane and I need to halve my dose tonight. Last night’s injection really stung for some reason.

I was on my own all morning, as Grandma’s polyp removal operation was today, so Mommy had to take her in for half seven, although she didn’t get taken down until lunchtime. She’s being discharged about seven, if everything’s gone to plan.

I have been crocheting the pig all day, so now all the pieces are finished, I just need to see him up tomorrow.

The 22nd of April.

A 7:15 start plus an adrenaline rush so early in the day means I’m quite weary now. I had my dental hospital appointment at 10:10, but we ended up getting there really early because there was very little traffic. This ended up being a good thing, because when we opened the boot, we realised the wheelchair wasn’t in it! We hadn’t got it out of the garage. Numpties. So we used the extra time we had for me to slowly walk the 200m from the car to the front door. I had to stop twice.

One of Mrs. Richards’ minions looked at my tongue, and he agreed that injections were probably the best plan, but he went to talk to Dr. Albuquerque who came to look too. Once more, he brought up the idea of tongue biopsies but I managed to dissuade him. A nurse came to hold my tongue, and I had local anaesthetic injected into each side, then the steroid injections. Then we left! Mommy brought the car to the front so I didn’t have to walk back.

We stopped at Boots and Tesco on the way home, for some cream for dry feet (actually for my hands – they are so dry it’s not even funny) and mascara, then I’ve cream for my lunch as there’s not much I can eat with a swollen tongue.

This afternoon, I sewed up the pig, I just need to get some ribbon to go round his neck. My tongue has slowly gone down over the course of the day, so I should be able to eat the chicken we’re having for dinner. I just hope it was worth it!

The 19th of April.

I started my day feeling pretty great, but this evening I am grumbly. Zopiclone finally did its job, so I had a full night of excellent sleep, waking up just an hour before I planned to get up so the Tramadol had time to kick in.

Sunday Brunch and blog post, then we had Grandma round for lunch, which was duck in port and orange sauce, then special chocolate mousse with Cointreau which is the best pudding ever.

When we were finished, I started working on the first part of my special crochet project (I can’t say what it is as it’s a secret surprise). James came round with the pressure washer and he and Mommy had rather a long chat about his new job and the university, but I wasn’t paying a great deal of attention because the pattern I was following was fairly complicated.

I completed that part, then I started on the pig that’s next on my list, and now here I am. The reasons I am grumbly are twofold – a) I think we need to ring the dental hospital in the morning as the ulcers on my tongue aren’t improving, so steroid injections are going to be the next step, and b) my right foot is still swollen, despite the furosemide. I think I had to take it for at least six days last time, so I’ll carry on and keep my fingers crossed, but if it continues or happens again, I’m going to have to start harassing doctors again, and I really don’t want to do that. I just want my body to behave completely, no extra problems, just for a little while. Is that so much to ask for?

The 20th of April.

My mouth is becoming a real problem, which seems to ring bells from a year ago. I have three ulcers on the right side of my tongue, and one on the top/left. Up until today, they’ve not really been sore, but today it is much worse. We rang the dental hospital and I have an appointment for Wednesday, and we did hope they might ring with a cancellation, but unfortunately no such luck, so I’ll have top keep quiet, spraying difflam and flixonase and drinking lots.

I had a chiro appointment at 12:15 which I was slightly concerned about, but my back’s been okay today. So much so, that I actually haven’t had any Tramadol yet. Trine felt around, and it seems that my lower left back/bumcheek just went into spasm on Sunday night for no particular reason. She did a lot of massaging which I had to grit my teeth and deal with, but afterwards, I did feel better. I popped into Black Sheep as there seems to be a weird hiccup about my next appointment.

This afternoon, I have been crocheting the pig snout and ears, and some of the special project too. Little tricky bits! I’m just trying not to move my tongue too much. Grandma has an operation tomorrow, so if the dental hospital ring, I have to just hope it doesn’t clash with her in any way.

The 24th of March.

I’m already super-antsy to get off steroids again. My face isn’t swelling yet (I don’t think) and I want to be steroid-free again without going through much moon-face hell. I am desperate to get all my hair chopped off again and that does not look good with hamster cheeks.

I was up early to be at the dental hospital for 9.15. I saw Neil who is good, and he observed the small ulcer under my tongue, but I’m doing all the right things to deal with that. A dermatologist was also there, I’m not entirely sure why but he was perfectly nice. Mrs. Richards also came to have a look and she was quite happy. Back in three months. When we were done, we went to House of Fraser to get a 1mm crochet hook for me to practise micro-crochet with, then to Waterstones for Them by Jon Ronson and Reasons To Stay Alive by Matt Haig, but also ended up with Her by Harriet Lane and Forensics by Val McDermid. I have a problem with book-buying.

This afternoon, we had cheese on toast and Fiona Cairns Easter cupcakes for lunch, and I had a go at the micro-crochet. Then my wool arrived in the post, so I’ve made two bunny legs since then. I will get through my orders!

The 25th of March.

Well, the big news of today is that Zayn has left One Direction. I was in the gym when I found out. Frankly, I am not all that bothered. I am curious to see what happens.

Anyway, I was able to have some form of a lie-in today which was lovely, and this morning I made a bunny leg. After lunch, Mommy took me to the gym, but as we arrived, I realised I’d forgotten my heart rate monitor watch, so we went all the way home to get it, then back to the gym and this time I did actually get out and go exercise. Today, the boy who likes to smile at himself decided to read the paper out loud,and there was a lady walking around in hand who does not work there. If you are wearing jeans at the gym, you are doing something wrong.

I had a text from Igor and he has contacted Andrew again in regards to getting me into his clinic, and Ram will call him tomorrow if he hasn’t responded. For God’s sake, is it so hard to get this fixed?

The 28th of May.

I feel a bit battered tonight. I was up at half past seven to be at the dental hospital at ten. I saw another new person who had a look, wrote some notes and went to get Mrs. Richards and Jon who saw me last time. They  asked me how I felt about having the injections again just to really kick the ulcers out. Deeper this time. So I lay there again and let him do four more injections, deep in the right side and right in the tip of the left side, then he had to hold it really tightly with some gauze. I think my body went into slight shock afterwards – trembling, and now I’m still cold. I hope sleep cures this. The local wore off ages ago, but because the needle went in so deep this time, it’s really bruised and still swollen tonight, whereas last time it was fine by mid-afternoon, really.

This afternoon, I watched the last two episodes of Hannibal and now we’re watching BGT and I’m shattered. I’m hoping I feel better tomorrow for training with Danny.

The 29th of May.

I am a bit knackered tonight – my tongue is not 100% yet and I had training with Danny today.

This morning I wrote up a couple of blog posts and gave the cat a good brush because he has been a howly monster.

Danny came at one and worked me really hard for just over an hour, doing kettlebell snatches, cleans, clean and presses and chest presses with my feet off the floor. Burned over 600 calories and now I am pooped.

This afternoon, I watched Nashville and looked at a couple of properties we’re thinking of going to on holiday. We also proof-read some reports for Becky,

I want a big sleep and a puffy dog to play with and a hug.