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Documenting not dying since October 2013.

The 31st & 1st; Happy Marrowversary to me!

The 31st of July. Happy Marrowversary to me! Six years ago today, I had my second stem cell/bone marrow transplant from an anonymous German chap, only a year older than me. I don't know how I feel about it now - yes, he gave me all the GvH that destroyed my liver, but without him, I may not have even got there. I do wonder sometimes if he remembers, if he thinks about me at all. This morning I worked out which felt great except at the end when the postman arrived and I had to answer the door all sweaty with my hair scraped back, such an attractive state. I did say "You could not have come at a worse time'! Mommy washed my hair, then we went out for lunch to celebrate my marrowversary! We went into Pandora to get the charm that is customary on these occasions. I got the passport, as we went to Paris right before my second transplant. We went out to The Balcony Brasserie in Selfridges, where we shared the charcuterie and seafood boards with some peas and broad beans, then Mommy had lemon meringue pie and I had Oreo cheesecake and a virgin apple mojito. Then I bought myself some nail varnish, masara, aloe vera gel (not such an exciting treat) and we came home! We watched some tv and ate a hot cross bun each, then went to pick up Daddy from work before going to see Wicked! It was fun, although it brought back loads of memories of when Lauren and I were supposed to be Elphaba and Glinda, just before I relapsed, and I may or may not have wept at For Good. I had such visions of us both singing that together and we never got the chance. Despite the family behind us have zero theatre etiquette skills whatsoever, I've had a wonderful day. The 1st of August. Well I am so tired, I tried to eat a chocolate mousse with a fork tonight. It would have worked, but taken an awfully long time. Also, one night of bad sleep and the trembles are back with a vengeance. Spent the morning waiting for Katie the nurse to come and flush my line and change my dressing, although she did it so dreadfully that we had to redo it after lunch. When she was gone, I worked out but not particularly efficiently. Not sure what was off with me today. I caught up with Utopia, Mommy and I finished the series of The Biggest Loser Australia, and I wrote up a blog post. Oh, I'm so tired. I don't like today and would like to go to bed please. Which is such a contrast to yesterday. My skin is so sore. photo 1 photo 5 photo 3 photo 2 photo 6 photo 7 photo 8 photo 11 photo 12 photo 13

The 2nd & 3rd; Today turned out rather more eventful than expected!

The 2nd & 3rd; Today turned out rather more eventful than expected!

The 29th & 30th; Well today went much better than expected!