The 16th of September. 

I have to keep reminding myself that today is not Saturday for some reason. It just hasn’t felt Saturday-like to me. 

It should have been obvious to me from the start, because I spent the morning in front of Saturday Kitchen. For a lot of it, I was consulting with Emma on her suspected skin GvHD, then writing up a blog post. Couldn’t remember if I had to do that or not until I checked. Brain wasn’t at home today. 

Then again, it kicked in as we watched Only Connect over lunch, because we got several points outside of our normal remit (missing vowels). Then this afternoon, I did a bit of podcast listening, made a couple of visits to the kittens, and finished off the scarf I started yesterday while catching up on Celebrity Masterchef. Finally, I am free of Lesley Garrett. Quite glad to be rid of the Reverend Kate too, because she was becoming rather infuriating. 

Last night, Hugo remained sat on my lap without being constantly fed treats. This is a major win. Henrietta, however, made me bleed again. 

The 17th of September. 

Right, today is Sunday. Definitely. Woke up mid-Sunday Brunch because it started early, and had just got downstairs when Mommy and Daddy were came back from taking Grandma to church. I had my breakfast, then went back upstairs to make myself presentable for going out, as we were going to Birmingham Independent Festival at Aston Hall. 

They waited for Grandma to call once she was done with coffee, then I was to be ready to go out upon their return. I petted the kittens (got some actual audible purrs from Hugo, yes!), put my boots on and off we went. 

We’d almost arrived, when Mommy realised she’d forgotten the tickets. Thankfully, she was able to forward me the email and we could just show the attachment to get in. Phew!

It was pretty much all outside, and the weather was nice, so we looked around at all the different food stalls, trying to decide what to eat. I played it safe and went for a margherita pizza which was a good choice because it had a really soft, doughy crust, just how I like. I found a place to sit and eat while I waited for my parents to join me, but first I was checked out by a wasp. It decided to fly really close to my face and land on my glasses, then come round and land on my ear, right on the tragus and I started to get genuinely worried that it might sting my face or crawl in my ear. My tactic is usually to stay really still, because if one flails about while in a wheelchair then people think you are having some kind of episode. It eventually flew off, and I was texting Christine about it when it came back and landed on my finger. Fuck’s sake. Thankfully, Daddy came along then and it went away for good. 

We ate our lunches, got some coffee from Faculty, then I got a beaver tail from Cake Doctor, which is dough, deep-fried and rolled in cinnamon sugar. So good. There were then craft stalls inside to look at, but they ended up not being really anything we wanted. In fact, there was more food, so I bought a chocolate custard doughnut for later. I am full of sugar. 

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The 14th of September.

Much less productive day. Big sleep, slow morning involving pain au chocolat and writing up a blog post. Mommy was out all morning at Grandma’s for a residents and relatives meeting, so I had only the kittens to chat to. Hugo is now expecting treats from me which is excellent – now I just have to get him to interact with me without the need for reward. 

She came home just before lunchtime, and we had food while watching TOWIE, quite transfixed by Georgia’s underboob. 

This afternoon, I had a hairwash, then sat at my computer for a couple of hours. I was talking to someone about The Sims 4 yesterday and got the urge to play, reminding me just how easy it would be to forget about the world and get lost in a game. Ignore all the shit going on in the world and concentrate on the little people I can control. Nothing horrific in there. 

I did make myself leave it at half past three, and came back downstairs where I finished the scarf I’ve been making, planning what I’ll do next. 

The 15th of September. 

Bleah I feel rather tired and shit this evening. Maybe I’m just weary at the garbage of the world. More terrorism today, more people (Trump) wading in with their takes before we know anything. 

Most of my day has been spent crocheting another scarf, this as a Christmas present for someone. I got on to my third ball of wool, by which time, the repetition had started to get to me. 

Sadie and I were texting for a lot of the day. In a funny coincidence, her new housemate is a comedian I’ve seen at The Glee, Mark Simmons. He was supporting Seann Walsh. I would accuse her of trying to infiltrate my comedy gang, but to be fair, he isn’t in it. 

Ugh I just want to go to bed but it is not time yet. I hope I feel better next week because Wednesday to Saturday are really busy. All stuff I want/need to do, but I am going to be knackered at the end. 

The 12th of September.

Today has been fairly acceptable, pain-wise. I had to bend over this morning which my back didn’t like, and I’ve had the occasional twinge, but moving has been much easier. I had a longer sleep, which I think helped too. 

Quiet day for me; this morning, I wrote up a blog post, and tried on two dresses that I had ordered. Keeping one, sending the other back. Chatted with the kittens. I think bribery is working on Hugo, as he’s not running away from me quite so much. 

After lunch, I perused some crochet patterns and did some experimenting with different sized hooks, eventually deciding to just make a scarf/snood with some wool I bought to get free delivery on an order. I watched some Bones, then went to sit and give Hugo treats while I stroked him. He’s getting better at it. Even Harvey wanted to come and join us watching Buffy, although he doesn’t care about Dreamies. 

The 13th of September. 

Well it’s been a rather productive day. I saw Anne Dancey this morning about my arm. I explained my situation, and my history, and she examined me. She was pleased to hear that Andrew is organising this nuclear medicine test, as she would do something similar, and would like to see the results when they come through. Let’s hope the appointment materialises soon. She thinks it is probably vascular, but that a proper compression garment and seeing specialist nurses will help me, so it’s handy that I’ve got St. Giles (who are the same team she uses anyway) next week. If I do need lipo, she will provide it, but I have several other avenues to try first. 

We popped into town before going home, to take back two of the three coats I’d ordered from Zara, then had to get straight back home so Mommy could get to Grandma’s for 12. 

This afternoon is used up a second ball of wool on the scarf, so that’ll be done by the weekend, and I had a bit more Hugo petting time while listening to PM. I think we’re making progress. Henrietta, not so much. 

The 10th of September. 

Today has not been so terrible, in terms of pain, but I have still felt pretty shit all day. 

I’m still tired, from not sleeping properly due to pain, so I got up just before the start of Sunday Brunch and got dressed in a cosy jumper and leggings, because the weather demanded it. 

I have, again, not moved a great deal, but also have not crocheted at all because I just can’t concentrate. I thought, after lunch, that I might need a nap, so I went upstairs to lie down. I put on a podcast, curled up and closed my eyes, but I did not fall asleep. This is good; it means I am not ill! Just feel shit because I’m tired and in pain. Preferable. 

After coming downstairs from my rest, I watched three episodes of Bones that had appeared overnight, and tried some Hugo petting. I forced him on to my lap and stroked until my arm was tired. He must learn to enjoy it. 

The 11th of September. 

Another early start, but for a good reason. I met up with Adam this morning, because he’d come up to the QE to talk to some of the nurses about stuff Dean wanted to do. It was really good to see him and give him a big hug in person, as opposed to verbally via direct messages on Twitter. We talked about how it had been in the last couple of weeks, and at the end, and his incredible appearance on Victoria Derbyshire. How he’s coping, how I am. There are things that are being planned in his name that I am looking forward to seeing. His legacy will live on. 

He had to get going up to YPU, and I had to go home for lunch before my chiro appointment. Trine has managed to make me feel some relief – it appears one of the muscles on the right side of my back had gone into spasm and travelled all the way up (or down, I’m not sure which end it started) which meant all of that side was contracting. No wonder I was in pain. She managed to work some of it out, while I gritted my teeth. Thankfully it hadn’t transferred into my neck, so I just needed some ice pack treatment when I got home. 

Since then, I have crocheted some mice for the kittens to play with. Henrietta has appropriated an old one which is incredibly tatty, so now they have some more that aren’t falling apart. 

The 8th & 9th; So much pain.

September 11, 2017 — 9 Comments

The 8th of September. 

Ooh it has been a long day! I was up super early to be at the dental hospital for my half nine appointment, which I was called in for only half an hour late, so I got a bit of book read. It was a student clinic, so I was examined by one girl, while one typed and the other one observed. There’s not much to see in my mouth at the moment, so it was a pretty quick examination, then the longest part of the appointment was waiting for the consultant to come. To pass the time, we talked about what we’ve all been binge-watching on Netflix. He eventually appeared, had a look and agreed that my mouth is in excellent shape (take that, Amy the hygienist) so don’t need to go back for six months! Let’s hope I actually get a letter. 

We got home about eleven, and I had time to write up a blog post before it was lunchtime. I was in the middle of eating my grapes when the doorbell rang, and it was Carol! We were expecting her, she was just a little early. No matter! We then had a lovely afternoon catching up, eating cake and discussing our various crafty projects. We hadn’t even noticed when it got to six o’clock, but she really had to make her way home then, so that is all that has happened! Much, much chat. Exhausted now. 

The 9th of September. 

Oh god today has been horrific. So much pain. No reason. At some point in the night, something happened, and I became unable to turn over or lie flat on my back. Well, I could turn over, but it was agony. I couldn’t get my back flat without bending my knees. So it wasn’t a good night. 

I’ve spent most of the day unable to move, so I’ve been able to finish the doily I’ve been making. Only left my chair to go to the bathroom, to eat dinner, and when Shaki came to impart kitten wisdom. When I have got up, I made such an awful cacophony of noises. Absolutely dreadful. I am so grateful I have a chiro appointment on Monday. Trine will have things to crunch. 

Nicole and Richard came round to drop off some cat paperwork, and they met the floofs. Shaki came at about five and spent nearly two hours coaxing Hugo into being petted. It involves lots of playing, treats, and basically stroking him until he relaxes. We also have to feed him inside the cage again. And we have to try stroking Henrietta when she’s eating but I’m going to leave that to Mommy because I’m pretty sure I’ll get shredded. 

By teatime, I was ready to cry. Fuck this body. 

The 6th of September.

I am sleepy. Awake early for haematology clinic. We arrived at ten, and left at one. For once, I cannot complain about not getting enough of my book read, because that it all I did for nearly two hours. Charlie called me in, and to be honest, he hadn’t got much to do for me, just prescribe all the drugs, and he’s referred me to an immunology clinic to see how well my immune system is functioning, so that’ll be interesting. 

We got to pharmacy just after twelve, and then went to get coffee and sat around for 45 minutes, waiting for my prescription to be ready. Then a very quick trip into town; I needed another set of drawers, and Mommy decided she wanted some too, so she can put all her cross-stitching threads in them. I also needed toothpaste, and got some flat brew espresso chocolate spread. 

Finally got home just after two, and fed the hungry kittens and ourselves. Then I got to sit and crochet, while Mommy ended up taking Alison into Sutton for some errands, because with a broken wrist, she can’t drive or carry things. Then she was off to Grandma’s! She does too much. I worry. 

The 7th of September. 

It’s a good thing I got a good sleep last night as I’m unexpectedly going to be up early again tomorrow. Rang up the dental hospital to sort out my next appointment, because no letter has come through, and after half an hour on hold, I was given half past nine tomorrow! Wasn’t going to say no, after all that. God knows when the next one might be. 

I’d ordered a memory foam cushion for my wheelchair which we needed to pick up from the sorting office, so we did that, then went to Tesco for some Stork and milk (have some baking to do). 

At home, we found that the cushion doesn’t fit the chair, which was always a possibility as we didn’t know the dimensions, so that’ll have to go back. I also received a coat from ASOS, which I am not keeping – I need something with large sleeves that isn’t the fur (too much shedding) and they’re just not big enough. 

This afternoon, I’ve done a bit more make up sorting with my new drawers, wrote up a blog post, and crocheted some more doily. 

Shaki is coming to see the cats at the weekend. We’ve made zero progress with Henrietta – she still hates me and continues to attack me, even when I am giving her treats. She is probably going to end up going to some stables and catching mice. 

The 4th of September. 

Keeping busy. I had a reasonable sleep, thank god, and today I’ve just been trying to keep my mind concentrating on different things. 

This morning, I wrote up a blog post, and rang up Lydon’s to book the kittens in for their first vaccs. Mommy stood on Harvey’s foot last night and was worried that she’d hurt him, but he was running around and putting weight on it soon after, so I wasn’t massively concerned. And of course, I’ve started up another doily. 

After lunch, it was time to go to the vet. We weren’t going to try to take Henrietta, seeing as I can’t touch her and Mommy is only vaguely tolerated. Packed the two kittens into a carrier and off we went. They were more stressed by the experience than I expected, not even wanting treats when they were on the table. They both are pretty much heavy enough to be neutered, but their balls are too small so we’ll leave that a while. Got some decongestant powder for Henrietta and tablets for the kittens so that’ll be joyous to try to administer. 

Since we got back, I’ve booked a trip to London. An installation has been put up in Paternoster Square of the names of blood cancer patients to make blood cancer visible as part of blood cancer awareness month. It’s only on until the 30th so I’ve had to book a special trip!

The 5th of September. 

I got a message from Adam this morning, telling me to put Victoria Derbyshire on. I assumed there was just going to be a piece about Dean, as I knew she had spoken to him via Twitter. I was beautifully surprised to see Adam, Drew (Dean’s brother) and Josh (Dean’s friend and the co-founder of HISKIND) sitting on the sofa, ready to tell the viewing population about him. And they were so brilliant. Adam spoke so movingly, and was able to not fall apart. And people sent in really lovely comments about him – even in a short segment, it was obvious what an incredible guy he was. He will be loved forever. 

This afternoon, I’ve been crocheting and catching up on Nashville. Also we tried giving the kittens the worming tablets which didn’t really work, so we smushed them up and put them in their food, and put the decongestant powder in Henrietta’s, which she gobbled up. Hopefully she’ll start breathing a bit more quietly. Bless her. 

Haematology clinic in the morning. Good. I need more eye drops. My left eye has been bad for a week, and doing the dexamethasone drops twice a day isn’t enough. Back up to three, need more drops.