The 2nd of December.
I would say today has been a mild improvement? I was awake at half past six which was irksome but I went back to sleep until half past eight. This morning we went into town where I bought one Christmas present, then we went to the German markets on the way for Mommy to give blood. I got two new little glass chaps for under the tree in my room so when that goes up, they can meet the rest and all become friends for the festive period. I was going to get poffertjes but trying to get Nutella off my teeth did not seem like fun. There were lots of men giving platelets at the blood place which made me very happy. We went to M&S afterwards to buy me some thermal socks, some food and Christmas cards, before I got a vanilla hot chocolate and we went home. I also got a children's toothbrush in the hopes it'll be easier on my mouth.
This afternoon, I painted my nails using the ciaté polish of the day which was boudoir and much preferable to yesterday's. I updated my blog and realised just how bland and repetitive my entries have been of late, but when all I can think about is how terrible my mouth feels, it's all I can write about.
Finding lunch on Wednesday will be a challenge. We're going to London to visit the Elle offices and sandwiches are not really an option.
The 3rd of December.
We have had a setback. My skin has erupted. My only theory is that we brought down the steroids too quickly, the GvH didn't like it, and decided to flare. So my neck and hands are all rashy, I've had 20mg of pred today (up from 10 the past two days) and am slathering the affected areas in cream. I'm going to get the moon face back and that fucking sucks, frankly, but there isn't really any other option.
I had a better sleep than I have done the past couple of nights, which was restorative and useful. My new soft toothbrush has meant that my teeth feel properly clean today as well which is just gorgeous.
My mouth is definitely improving. I don't think it's quite so raw anymore, which is always pleasing. For some reason, it gets quite dry in the afternoons, even though I'm still drinking loads of water. Possibly my saliva glands are being affected this time? I'll need to inform Ram of these developments.
So my day has been spent slightly panicking about my skin, mouth and face, then what nail varnish to put on and what I'll wear tomorrow, plus the impossibility of what I'll eat tomorrow. Yet I feel quite good still? I think it might be adrenalin. I'm a bit excited.
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