The 3rd & 4th; I think I just need to get off steroids.

The 3rd of October.  9mg of steroid! We are getting there. I might not be off them completely by the end of October like I planned, but hopefully it won't be far off that.

I'm pretty knackered today, so I have just lived in the armchair. The nurse came to flush my line and clean the site which was all fine, I crocheted a snood using triple crochet so it was really quick, and I replied to emails from Julie and Leukaemia Care.

My hands are really trembly and it's really hard to write so I'm going to stop.

The 4th of October.

Everything has been a huge effort today. I think my muscles are getting even weaker - I'm out of breath going from the living room to the kitchen, my heart rate is through the roof and I'm almost constantly trembling. I think the last time I was this weak was when I came home in 2009 after my liver transplant.

This morning I read the paper and watched Saturday Kitchen, and this afternoon, Daddy and I went to see Gone Girl. On the way, we stopped at B&Q for him to buy some light fittings, and I listened to music on my phone on shuffle in the car.

Gone Girl is really quite exceptional. Everyone in it is so good, and I think I'm glad I haven't read the book.

Tonight I feel out of sorts. I don't know. I think I just need to get off steroids.