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Documenting not dying since October 2013.

The 20th & 21st; I can fix this.

The 20th & 21st; I can fix this.

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The 20th of June. I stayed up a bit late for me last night to watch the live stream of Death Cab from Scala. I couldn't go, and they're not coming here on their tour, so that was my only opportunity. I'm quite glad I wasn't there, because it was apparently disgustingly hot. I just love to watch Ben Gibbard dance. It makes me a bit sad too, because the thing I miss most about being able-bodied is being to sing and dance at the same time. So much.

Today, I was up early for oxygen clinic, which is usually very straightforward. We didn't get off to a great start, because someone annoyed Mommy in the car park, so she decided to follow them, then we were about to park in a space when a woman decided she was going to try and swing into it, going against the one way system. We were not having this, so honked the horn at her loads and shouted at her through the window that this was not allowed and she had to reverse. Really don't know where this burst of rage came from, but it was very funny.

Clinic itself was fine! Apart from the machine not working the first time so the nurse had to stab my ear twice. But my blood gas was better than last year! Not really surprising when at my last appointment I was still recovering from pneumonia/fungal infection but still, it's pleasing.

This afternoon, I have made hexagons. I have completed the first set of nineteen! And I got Dolly to come out for a treat stick and she stayed out. Progress!

The 21st of June.

Well I had every intention of going to the gym when I got up this morning, but unfortunately we've had no cars so that idea was quickly shelved. Mommy's car was going into the garage to be fixed after she scraped it along the wall, but then Daddy's had to go in as well for some valve/charcoal problem that arose yesterday. Therefore, no cars, no gym.

This morning, I spoke to the train assistance people because I accidentally booked it twice for the same journey, so I cancelled the one in which they'd put me in coach A because I hate that space. Then I rang the Reservations Team at The Spire, so I'm seeing the lymphoedema nurse of Tuesday to fit me for my post-op sleeve, then having my pre-op assessment on Wednesday. I can't believe it's going to happen soon. I know it might seem trivial, but I have lived with an arm that is 37% bigger than the other for a year and a half, just as I'd actually developed a pretty healthy relationship with my body. There's so much about myself that I can't change and don't have a choice about learning to live with, but I can fix this, and I'm going to.

After lunch: hexagons. Attempted to touch Dolly which made her jump and she's spent that afternoon on top of the china cabinet, way out of reach. Maybe I was being optimistic.

The 22nd & 23rd; It will teach you something.

The 22nd & 23rd; It will teach you something.

The 18th & 19th; Cannabis oil it is!

The 18th & 19th; Cannabis oil it is!