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Documenting not dying since October 2013.

The 10th & 11th; Remarkably incredible?

The 10th & 11th; Remarkably incredible?

The 10th of July. 

I would say today has been slightly better? I am not in quite so much pain as I write this. We didn't have to close the curtains quite as early, and I am tolerating a bit more light than yesterday. 

This morning, I managed to knit two rows of my Moomin jumper, but it really is quite dangerous because if I make a mistake, it is fucked. Then again, I'm at such an early stage that losing three rows is hardly a monumental problem. 

Becky came round with Harry just after lunch, and i had warned her about the darkness so elaborated on that while Harry sat on my lap and looked at the tennis. He and I had some chats and gurgles and wriggles and giggles, then he went back to Becky to try and have a nap. This didn't really work because things kept waking him up, so then Mommy had some bouncy cuddle time before heading off to Grandma's. Becky tried to give Harry a feed, but he only did that for about four minutes before giving up, so she decided it was time to go home. He is a monkey. 

After they'd left, I managed to watch an episode of The Blacklist -  I find I can sort of see if I put some pressure around my eyebrow area and look through my fingers. Completely covering my left eye doesn't work; I still need it to some degree to see properly and the eye patch is just not practical. 

I then spent nearly an hour just giving my eyes a good rest, closed and not looking at anything at all. That has definitely been effective, although I then obviously have to get used to the light again. Still, it is the closest I can get to a nap, and I will take it where I can get it. I remain hopeful that I will be able to eat dinner in the dining room without having to leave the table as soon as I've finished eating. 

The 11th of July. 

Well, today has been remarkably incredible? 

At first, I thought it was going to be crappy, because I woke up at six and I didn't seem to be able to go back to sleep. However, I propped myself up on an extra pillow, put one of the BBC's free audiobooks on, and the next thing I knew, my alarm was going off! 

The morning was the same as the others have been; light was tolerable, no curtain-closing required. Even washed my hair! As it progressed, I expected to need to start altering the light levels but that didn't really happen today. It got to lunchtime, I went upstairs to work out, and I've been fine. I managed to do some knitting - I've transferred from the straight needles to the circular ones which was slightly panic-inducing, but it didn't fall apart and I think I'm getting the hang of it. Success! We have had to close the curtains a little bit, but that was not for my benefit alone. I do think it's time for my eyes to have a rest now, but this has been the first day since Saturday that I haven't just been wishing for it to be over. I just pray it continues. 

The 12th & 13th; I'll take the wins where they come.

The 12th & 13th; I'll take the wins where they come.

The 8th & 9th; It hurts so much.

The 8th & 9th; It hurts so much.