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Documenting not dying since October 2013.

The 17th & 18th; I feel pretty great about the way I look right now.

The 17th & 18th; I feel pretty great about the way I look right now.

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The 17th of April. Awake at half past five. Why? Stupid brain. I tossed and turned for a llittle bit, started listening to the Today programme, then got bored and watched an episode of Dexter. Mommy day my light was on so she came in to say hello, and I asked her to bring up my Tramadol so I could take it and give it a chance to start working before I started moving around.

I spent my morning frantically finishing Michaela's black sheep, working right up until quarter to one when Daddy and I had to go to hospital for more bloods. Clinic was totally empty as it hadn't started yet which was lovely, and Igor appeared promptly. All my cultures came back negative, but my CRP (infection marker) was 200 (it should be less than 5) so he wanted to make sure it was going in the right direction. We looked at my x-ray which showed no fractures, but the spaces between my vertebrae are smaller than they ought to be. If the pain doesn't go away then I'll need an MRI. Got some antihistamines from pharmacy as Tramadol makes me itchy, then Daddy took me to Black Sheep!

I got to see baby Blossom (so small!), and it was so nice to see Michaela back! I told her and James that I wanted short and vibrant, so now I'm a pink and blue pixie and I love it.

The 18th of April.

Three episodes of Dexter this morning. Plus several podcasts before I actually fell asleep. I'm so mad at my body because I'm not even on steroids - I ought to be able to sleep! I had my Tramadol upstairs already so I had it about forty minutes before I actually got up. After breakfast, I went through the weekend Guardian which took up until lunchtime.

This afternoon, I have finished Anna's elephant and taken a frankly absurd amount of selfies because I am obsessed with my new hair. I feel pretty great about the way I look right now. Super fly. Yesterday, Michaela couldn't get over the change in my face, which Ram also noticed, and I'm just like "Yes! This is what I'm supposed to look like! Do you now understand why I get upset about looking different "?

My right foot is swelling again a little so I'm taking furosemide but it's still quite uncomfortable inside my slipper, so I might have to lie on my back with my legs in the air for a while. I'd also really like to go back to the gym but the pain hasn't improved enough yet. And I have ulcers in my mouth that are not cooperating with the treatment I am doing, so tongue injections are a possibility this week.

The 19th & 20th; My mouth is becoming a real problem.

The 19th & 20th; My mouth is becoming a real problem.

The 15th & 16th; I've got loads of Tramadol.

The 15th & 16th; I've got loads of Tramadol.